See this is how it is. My eldest son has hydrocephalus (water on the brain) which requires a shunt. Within the past 10 months he has had 9 surgeries. He also has epilepsy, asthma, and ADAH. Now with his epilepsy he sleeps in the same room with me, his father and baby brother. We can't afford to get the house equipped with items to fit his disability. So his mattress is on the floor surrounded by pillows. He can't sleep by himself because over a year ago he had a bad seizure and fail out of his bed and hit his head. If I did not take a bath room break we would have never knew. He is getting older now and want his privacy. He can't take a bath by him self because he might have a seizure in the tube. So I have to be in there with him and he feels so uncomfortable with that. He keeps telling me he want his own room with his brother and monster trucks. I keep telling him it will happen when his brother is old enough to tell when he is having a seizure. What can we do? need help
2006-09-03 17:08:58 · 9 answers · asked by sweetlee725 2 in Family & Relationships ➔ Family
Contact your county social service department. Most states have health care help programs which I believe your family will easily qualify for.
2006-09-03 17:15:11 · answer #1 · answered by Just Ducky 5 · 1⤊ 0⤋
I just want to say first of all that you are doing a wonderful job. Many people just wouldn't be able to taken on what you have taken on. Is there anyway his father could help him w/ his bath? That may be able to make him more comfortable. They make these shower chairs that have some straps and such on them maybe u could get something like that so he could have some privacy. As far as his sleeping I really don't know how to help there. Just maybe put him as far from ur bed as possible on his mattress and just incourage him that soon he will be able to sleep in his own room. You just want to make sure he's gonna be ok. Just explain to him the best you can. I wish you lots of luck!! God bless you!
2006-09-04 00:19:49 · answer #2 · answered by Ange 3 · 0⤊ 0⤋
The best suggestion is to get some type of family counseling to help deal with the situation. I know that it has to be a very hard burden on your family, financially, emotionally, mentally, etc... A family counselor in your area would be able to help you and your family with all areas, including your specific problem. They are trained in areas like this and could possibly even introduce you to other people that may be going through the same things that you are so you don't feel alone.
You could look in the phone book for a family counselor, contact your health department or mental health center.
The best of luck to you.
2006-09-04 00:22:51 · answer #3 · answered by picturekevin23 2 · 0⤊ 0⤋
I'm sorry that I don't have an answer for you , your storie just touched my heart, my brother had seizures as a small child too and I know how it can take a toll on your family..I wish I had an answer that would help..Medication helped my brother and a monitor to hear anyhting in his room..God bless you all..Surely someone will have an answer your looking for..Good Luck..
2006-09-04 00:19:45 · answer #4 · answered by Just Dreamin' 4 · 0⤊ 0⤋
Is your son receiving social security disability? If not, you can apply and he may be eligible for a monthly check to help with the special equipment he needs. also, check with you county's social services dept. You may be able to get an attendant to help with your son and give you a few breaks once in awhile.
2006-09-04 00:26:49 · answer #5 · answered by kelsey 7 · 0⤊ 0⤋
Try contacting the Asthma Resource Center and I believe you meant AD/HD, so try their website too. They can give you information about free items and benefits you may be entitled to, which can help you deal with this difficult situation. I wish you all the best.
2006-09-04 00:23:28 · answer #6 · answered by heyrobo 6 · 0⤊ 0⤋
You really aren't saying what kind of help you want or need. My guess is that you are stressed out and need a break. I don't blame you. Start locally with community centers or churches, they can either help you or direct you to people who can.
Good luck.
2006-09-04 00:20:19 · answer #7 · answered by sean1201 6 · 0⤊ 0⤋
God Bless....and your right he can not sleep alone and at some point his brother will be able to inform you of seizures. Until then he has to be watched. Good Luck to you and yours.
2006-09-04 00:13:01 · answer #8 · answered by Diamond in the Rough 6 · 0⤊ 0⤋
Have you been in touch with the epilepsy foundation...www.epilepsy foundation.com
I am epileptic and am 56 years old...My heart goes out to you and your family ....But I would contact them if not contact social services they might be able to suggest something
2006-09-04 00:22:28 · answer #9 · answered by Mrs. M 5 · 0⤊ 0⤋