If anyone has more ideas, please post them for my Fibromyalgia page. If time runs out, please forward to my email. I need all the help I can get with this. Thank you.
2006-09-03 10:21:38 · 5 answers · asked by Chay 2 in Health ➔ Diseases & Conditions ➔ Other - Diseases
I have Fibromyalgia and One thing I have not found is one part of having it for me and I have been told by many people with fibro as well. They feel like they have bruises I mean just a slight bump will hurt a lot more then it should. if somebody gives me a poke the pain feels like a bruise and can go and on and on like the pain will go and and come down a little and then go up again. this can go on for a short time or a few minutes until it passes.
this is one thing I have not seen in on webpages about fibro
2006-09-03 11:18:27 · answer #1 · answered by Mrs Magoo 4 · 0⤊ 0⤋
What do you have so far?
Not knowing what you have on your web site, this is just a bit of what I'd look for (and you may have already):
I think that people with fibro need a lot of reassurance of the "you're not alone, and you're not crazy, lazy, or stupid" variety. (Ever hear a doctor say that a patient has chronic pain because they're mentally retarded? And this is supposed to help with the depression that comes of hurting all the time HOW...?)
Advice especially on how to deal with doctors who don't take the patient's pain seriously would be a big help -- something more than "look for a new doctor," because not everyone has that option, and we'd be doing that anyway if we could. A list of other resources, such as a link to the Arthritis Foundation's web site and forums/message boards for people with fibro. (I remember a Yahoo group called Fibro-Frogs... Haven't been there in years, but it was a good one.)
No "just buy this product and you'll be cured" stuff, or advice that amounts to telling everyone that ALL people with fibro are overweight and diabetic. Things like that don't help, and just make us feel worse.
I'm just bouncing ideas here... As I said, knowing what is already there would make offering suggestions a lot easier.
2006-09-03 19:09:26 · answer #2 · answered by Red 3 · 0⤊ 0⤋
Check out fibrohugs.com for some ideas. I haven't been to the site in a while, but I think the whole sense of community--WE have fibromyalgia and WE are going to help each other deal with it--is probably the best aspect of the site. I think I'm the only guy I know personally who has been diagnosed with it, and I've gotten a lot of surprised reactions from people when I tell them I have it. Actually, if someone I don't know very well sees me limping or not moving very quickly, I just tell them I had a sports injury--I just don't tell them that I had the sports injury 20 years ago. :-)
2006-09-04 06:06:39 · answer #3 · answered by Pastor Chad from JesusFreak.com 6 · 1⤊ 0⤋
what have you got so far? I used to be an assistant to a lady that suffered from fibro. Some of my experience may be helpful, but there is so much I would have to write a book to touch on it all.
2006-09-03 17:31:02 · answer #4 · answered by AlmostSpoiled 2 · 0⤊ 0⤋
sounds like a great start. I'd be happy to help, but I'd need to see what you have so far. do you have a link?
2006-09-03 17:35:34 · answer #5 · answered by when's my next vacation??? 4 · 0⤊ 0⤋