Is anyone interested in an online support group for fibromyalgia sufferers? I know that there are some out there already, but most seem to be either a place where someone selling a "cure" can hawk their wares, or a place where no one is ever allowed to complain about what they're going through and say "I need to vent to someone who understands what this is like."
I'm talking about a message board, basically, where we can talk about what things work for us to reduce the pain, and what things help us get through the day despite the pain. Where we can get sympathy when we need to share our personal evil-doctor stories (or evil-relative, or evil-boss, or whatever) and know that other people have had the same problems. Where we can talk about the latest health news that has bearing on our particular condition.
If there is already such an online support group, please let me know. Otherwise, I intend to start one. Let me know if you are interested.
2006-08-29 10:46:17 · 2 answers · asked by Red 3 in Health ➔ Diseases & Conditions ➔ Other - Diseases
Sounds like a wonderful idea, you can probably leave a link at medical forums. I would be happy to promote it at my forums. E mail me the link when you are set up.
2006-08-29 10:50:41 · answer #1 · answered by Pantherempress 7 · 0⤊ 0⤋
Healing Well Forums, etc. Just search on the Web for them.
However, trust me, stay away from them. They are filled with people who are NEGATIVE and PESSIMISTIC and love to revel in their ailments, real or not.
I told a story how the drink MonaVie has crushed my chronic fatigue and made me feel like a teenager again and I was either verbally abused, called a heartless liar, or banned outright.
Stay far far away. It is a breeding ground of negativity. Trust me.
And by the way, if you haven't tried Mona Vie yet, you should. It's awesome. Let me know if you need more info. on it.
2006-08-31 22:37:03 · answer #2 · answered by MotorCityMadman 3 · 0⤊ 0⤋