First off, I was diagnosed with Crohn's in Nov. 2005. It all started in June 2003 when I was diagnosed with Erythema Nodosum, (a painful inflammatory disease that usually affects your legs). Since that time I have had numerous problems that were undiagnosable by my stupid doctor, (I have since found a new one). Since Nov 05' I have had four allergic reactions to medications (the last one landed my in the hospital with acute pancreatitus) and surgery to remove my appenidix after 5 wks on antibiotics due to the inflammation of my intestines. But now I am getting Remicaide infusions and having to give myself a shot once a wk of Methotrexate. Which I was told will require that I have a liver biopsy in about a year.
I have done alot of research online about the disease, so I know pretty much all the technical stuff. But my question is, if the Remicaide puts me into "remission", are there ways of knowing when the Crohn's is returning before the excruciating pains start again?
2006-08-25 11:18:07 · 8 answers · asked by hcollins619 1 in Health ➔ Diseases & Conditions ➔ Other - Diseases
Hi! I have had crohns since the begining of 1991 & wasn't diagnosed until Jan 98. You are the only one who will know if your crohn's is active. They can do blood tests for immflammation in the body, but it would have to be weekly. I have been on Remicade since May 05, & have had one mild flare since being on it, I was put on pred for 8 weeks & it subsided. If you don't feel right I would do a liquid diet for a couple days & definately call your dr. if you do not feel better in a week. Only YOU know your body.
2006-08-30 02:03:04 · answer #1 · answered by Jess F 3 · 1⤊ 0⤋
Hello, my mom is 55 yrs old has had Crohn's for 25 years she has a pouch on her belly and has had too many surgeries to count. There is more hope now than when she found out she had it. Hers is irreversible. She has 6inches of her small intestines left and that is it, she has no rectum either. My prayers are with anyone who has this disease,
2006-08-30 19:53:13 · answer #2 · answered by nancy l 1 · 1⤊ 0⤋
hey there. I have crohn's. i have had it sense I was 16. I;m 22 now, and there is a lot of technical stuff to know. honestly none of this matters. What matters is that you know your body. I would love to talk with you about everything. I am also on remicade. I don't knwo if you have AIM but why don't you e-mail me Chell2414@aim.com
2006-08-25 21:14:24 · answer #3 · answered by Michelle Flashlight 1 · 1⤊ 0⤋
unfortunately, there's no way to know for sure. i hope you have long remmisions, just live your life and try not to think about it that much. in the worst case, it will come back, and you'll take some medicine, and feel good again.
i have crohn too, and it sucks, but life must go on ah?
2006-08-27 07:41:20 · answer #4 · answered by david_miller722 1 · 1⤊ 0⤋
Get a copy of Elizabeth Lipski's Digestive Wellness. It is a goldmine of info on this and other GI tract problems.
Alibris.com
2006-08-25 23:29:03 · answer #5 · answered by Mad Roy 6 · 1⤊ 0⤋
I have helpful information on Crohn's. Read the testmonials on my blog roll and the other info on my page.
2006-08-30 14:26:39 · answer #6 · answered by Anonymous · 1⤊ 0⤋
I cousin of mine has it. He got really bloated then had part of his intestince remove. He is in remission for now.
Check out the wikipedia entry.
2006-08-25 18:27:23 · answer #7 · answered by Eric F 3 · 1⤊ 0⤋
This site has great info for you. Take care!!
2006-08-25 18:21:23 · answer #8 · answered by gagirl2c 3 · 1⤊ 0⤋