Do you or anyone you know suffer from ms?

Question

On the news last night there was a discussion about a condition called Hughes Syndrome.The symptoms are very similar to ms, & they reckon that there may be some people wrongly diagnosed as having ms,when in fact they have Hughes,which can be treated with aspirin.Hughes is caused by a thickening of the blood,which affects the brain.I don't want to give false hope,but if you know anyone with ms,ask them to go for another test,you never know,it just might help them.If my understanding of this is wrong,please forgive me,I'm only trying to help.

Answer 1

Actaully, I have Antiphospholipid Antibody Syndrome (APS) - it is not internationally known as Hughes Disease. APS is usually treated with both Coumadin and aspirn as it causes both venous and arterial clotting.

Yes, there are many patients that were diagnosed with atypical MS and really had APS.

Here are some articles to help support your mission to help people get the proper diagnosis. The APS Foundation of America, Inc is doing the same thing. :)

For those who don't want to click, here is a brief rundown: APS is associated with recurrent clotting events (thrombosis) including premature stroke, repeated miscarriages, phlebitis, venous thrombosis (clot in the vein) and pulmonary thromboembolism (blockage of an artery found in the lung due to a clot that has traveled from a vein). It is also associated with low platelet or blood elements that prevent bleeding. Recently, however, even more disease states have been linked with APL including premature heart attack, migraine headaches, various cardiac valvular abnormalities, skin lesions, abnormal movement/chorea, diseases that mimic multiple sclerosis, vascular diseases of the eye that can lead to visual loss and blindness.

Answer 2

I heard an interview with Dr Hughes (the man who discovered it in the early 1980's) on Radio Scotland yesterday. He stated that around only 5% of MS sufferers may be misdiagnosed.
You might be able to listen again on the BBC website.
Also, although the disease can be treated by aspirin, if the symptoms are so severe that it looks like MS you will probably need more acurate treatment like warfarin and a close monitoring of your INR (clotting) levels.

Answer 3

Thank You for this post!!! I heard from a friend from Scotland today, who sent me the link to the website about Hughes Syndrome and MS; here's what she said:

"Today's newspapers gave info. about Hughes Syndrome and MS from doctors. I have just read the website. Think you and others will be interested.

http://www.msrc.co.uk

Look under 'About MS and Associated Illnesses'."

She sent the info to me because she knew that I'd been successfully managing the symptoms of MS for over 45 years.

So, I've posted it here in addition to the ogher commentators, so that those interested can look up the site themselves!!

Best of luck.

Answer 4

I'm so excited! My mum has MS and I would be so happy if it was hughes syndrome! You don't need to apologise, any glimmer of hope is a blessing to those with MS.

I have been on the website and printed some information off about it and will see if we can get a blood test done for her.

Thank you once again. xx

Answer 5

my mum has ms and it was years before she was officially diagnosed, they tend to do MRI scans before saying whether someone has the disease because they can see whether they have scars on the myelin tissue's of the brain and spinal cord. somehow i doubt that a blood disorder can cause the type of scarring many people with ms have! the myelin tissue to put it in layman's terms is the insulator for the brains electrical connections, if the electrical current is misdirected it causes the symptoms of ms.

Answer 6

No. Ya see, M&M's understand some thing earlier they pass into "the bag". They know that for the remainder of their exsistance, they may be residing next to somebody of a similar colour, or somebody of diverse colour. And as time is going on, they'll pass around and at last could stay part via part with M&M's of all colours. additionally they understand they might end their time with anybody of their contemporaries. Who is often used with who would be interior the inevitable "mouth of doom" via fact the lips close out the easy for an enormously final time. so they know going wherein are equivalent and could finally end up interior a similar place while all is declared and carried out. and then all of them exchange right into a million (colour).

Answer 7

I think it's a very kind thing you have done by posting this. You are raising awareness and perhaps even helping someone get the right diagnosis. It's nice to see someone kind and thoughtful on this site trying to help people compared to some of the drivel and nastiness that gets posted on here.

Answer 8

dont apologise for sharing such vital news, I have a friend with MS and I know she ll want to explore this further..this friend is only in her 20s, she is on anti-depressants and cant work...no way to be so young. thanks again for sticking your neck out

Answer 9

I HAVE A FRIEND WHO HAS MS AND KNEW 2 PEOPLE WHO HAVE DIED OF THIS TERRIBLE DISEASE .I HOPE THAT ANYONE THAT THINK THEY HAVE OR ANYONE THAT THINKS THEY KNOW ANYONE THAT HAS M/S, READS THIS AND HOPEFULLY IT WILL GIVE THEM SOME HOPE FOR THE FUTURE

Answer 10

WoW I have a neighbor with MS. Thanks for posting this. Im gonna see if I can talk to her about it.