my son has myasthenia gravis, is there anyone out there that knows some one who suffers with it too?

Question

myasthenia gravis is a decease that stops messages getting to your muscles, so you are very weak, my son got it when he was 12yrs old, it mostly affects your facial muscles, but can affect any, my son has it 100 %, every muscle

Answer 1

I really hope this link is able to give you all the help you need.
My deepest thoughts are with you in your time of need.

http://www.mgauk.org/

Answer 2

There is an organisation called 'Contact a Parent' which can put you in touch with parents of other children with the same condition.
They are at www.cafamily.org.uk