My daughter has recently start having mild seizures and it is freaking us both out. Can someone out there who?

Question

is going thru the same thing help me with the stress and worring day in and day out. The doctors say she is going to be fine and that the seizures happen in alot of kids her age.(9) and that she will probably outgrow it and that it could be puberty and it is making her hormones go out of wack. please help

Thank you

Answer 1

I have not had personal experience with seizure, but my daughter has Cerebral Palsy and I belong to 2 support groups for parents of children with special needs. I can assure you that it is NEVER normal for a child (or anyone) to have seizures. Was your daughter seen by a Pediactric Neurologist? Has she had an EEG? These are definitely steps you want to take, and I'd definitely get a second opinion. While it is true that anyone can start having seizures at any time in their life, it's not "normal" to have seizure. And also, while it's very possible that your daughter WILL simply outgrow them, it's not very likely. Is your daughter on any meds for seizure control?

Unfortunatey, the group I belong to online that has the MOST information about kids with seizures (it's called BrainTalk) is down right now, and has been for over a month, due to the servers being down. But I would strongly recommend keeping this website bookmarked:

http://brain.hastypastry.net/forums/index.php?

The other site I belong to has a few parents that have children with seizures, but none of them are your daughter's age; they're younger.

www.specialparent.org

I'm sorry that I couldn't help you with the daily stresses of having a child with seizures. I hope that someone else can. GOOD LUCK! I will keep your daughter and your family in my prayers.

Answer 2

I know how scary it is. My daughter has febrile seizures, the doctors say she should outgrow it by 5 but she's 4 now and still has them. I hope they are right. My husband also had seizures as a child and teen, he had three forms Grand mal, petit mal and complete black out seizures. He used to be in and out of the hospital and had to take meds for them. Now at 30 he has been off the meds for 5 years and still hasn't had another one. Some people are afflicted with them for life, but I don't think you should worry too much if the doctor thinks that they are mild. If you are truly worried seek a second opinion or, if you haven't already, contact a specialist and get a complete work up done on her.

And just in case it might apply to her: The reason my husband hasn't had a seizure and no longer requires meds is because we were able (with the assistance of a doctor) to find his triggers which were skipping meals and lack of sleep. He also knows that he gets a bad headache before one so he will eat a healthy meal and go to bed if he starts to feel bad.

I have also heard of a specific diet to help seizures:
"The Ketogenic Diet for Seizures." You may want to ask your doctor about this and/or consult a dietician.

One more thing. Petit mal seizures are also called absence seizures and are described as "mild" if this is the type your daughter has then you should rest assured that this type is usually outgrown after puberty and is seldom if ever seen after 20 years-old. They also seldom cause any permanent damage.

Good luck

Answer 3

I don't know that I would trust the doctor on this one. Could be epilepsy, or one of a hundred things you and I haven't heard of yet. I've never heard of a normal 9 year old girl having seizures of any kind, without some underlying cause.

I'm not trying to worry you more... actually, just the opposite. I think you should get a second opinion. The easiest way to stop the worry is to find the problem and face it head-on. If there's something wrong with MY daughter, I'm gonna find out what it is, and nothing's gonna stop me.

I certainly hope it's what your doctor says, and not something more serious, but if it is something more serious, you have a right to know. Some ailments, if caught early enough, can be corrected, as you know. And, whatever the cost, double checking is worth it in the long run.

Good luck.

Answer 4

Its going to be okay, I had seizures until I was 18 and I am perfectly okay , and I was okay then too, just seizures were a little unsettling, and scary if you don't know what your dealing with. I would, just to be careful, get a second opinion, and I am sure your doctor will understand, seizures are serious and of course you would want to make completely sure that your daughter has the best care. Plus, I think that might help rid you of some stress. Just know that you are not alone, and calm down, being so stressed out isn't good for anyone!!

Answer 5

I have never heard of kids that age having seizures alot. I would def find another doctor to get a second opinion. It could be something serious. Seizures are not normal.

Answer 6

i have very sorry this surpassed off. I have a seizure affliction, and comprehend how insensitive the international must be. Is it accessible the server become too dissatisfied to imagine obviously and hence did and stated an same component she does with all clients? of route, it ought to were tremendous customer service for the eating position to %. up the tab, in spite of the undeniable fact that it did not seem quite insensitive to me. what's insensitive is the answer one human being gave and that i quote: "perhaps you would possibly want to not be going out to eat if your newborn has seizures then?" Now, it is insensitive and that i propose THAT human being under no circumstances eat out back. we are the following. we are no longer going to stay residing house. take care of it. each and every of the great.

Answer 7

I would go above your doctor and seek out a pediatriatian and or neurologist. If you are not happy, trust your instincts and get a second opinion.

Has your doctor ordered an EEG? Has your daughter had a CT scan? Has she banged her head or ever suffered from a head injury? Does she get headaches?

My child has a brain disorder and our family doc didn't think anything was wrong. I went above him and a specialist found that a portion of his brain died at birth. Hopefully your child is fine, but don't be afraid to stand up for her rights. Who else will?

Answer 8

I'm sorry but I don't know any children that suffer from seizures from puberty. Find another doctor and fast.

Answer 9

I had the same thing when I was your daughters age, and they did stop. I now work in health care and understand that seizures are a way for your body to reset itself when it is as you said "out of whack."