Chrons disease?

Question

My Daughter was diagnosed recently and i'm not sure how to react.
How serious is it ?

Answer 1

My daughter was diagnosed with chrons @ 13 yrs old, she lost a lot of weight and was very ill with it, after 3 months in hospital because it wasnt diagnosed straight away, she maintained her lifestyle back and was soon outgoing again, her school was ok with her trips to the toilet several times thru her day, the end resort was her having an operation and a Ileostomy bag on @ 15 yrs old due to the treatment not having an effect, shes 18 now & goes out every Fri,Sat night & rolls in @ 2,3 am she goes to work, shes had a boyfriend for 6 months now & shes so happy, good luck

Answer 2

Everyone's disease is different, it depends on what symptoms she is having. Not to scare you, but after being diagnosed with Crohn's disease for a year I had to have a foot and a half of my small intestine taken out .

Crohn’s disease is chronic inflammation usually affecting the ileum, although it can affect any part of the gastrointestinal tract. The disease is characterized by cobblestone ulcerations along the intestinal wall and the formation of scar tissue and may cause obstruction. The symptoms and the activity of the disease can come and go. Even though many effective medications are available to control the activity of the disease as of now, there is no cure for Crohn's disease. The disease can have many complications, both within and outside of the intestine.

Since Crohn’s disease affects the bowels where a majority of the nutrients that the body needs to function are absorbed, many patients with Crohn’s disease have problems with malnutrition and adequate intake.

Answer 3

I would do a Google Search and see if you can get on a 'support group' for Chrons Disease...

Or, even a Yahoo Support Group as they seem to have a lot also...

They have a support group for just about everything under the sun and they will help you with all the "tricks" that they know, and on the Do's and Dont's of living with it...

I wish you well..

Jesse

Answer 4

If your daughter wishes at some point to try some natural supplements that have helped others in dealing with this condition, here's a list of what has helped others. These are Shaklee all natural products.

Optiflora: to repopulate the bowel lining with "friendly bacteria"
Soluble Fiber: to provide soft buld & reduce frequent stools
Alfalfa Complex: anti-inflammatory; high mineral content - promotes healing; promotes cleansing of bowel irritants
Zinc Complex: promotes healing
B-Complex: anti-stress; increases absorption
Vita-E + Selenium: aids healing
GLA Complex: essential for tissue healing

For more info or questions, feel free to contact me.

Hope this is helpful and best wishes.

Answer 5

My son was diagnosed about a year and a half ago. It's something she will have to take care of the rest of her life. He is on four different medciations, a strict diet and has to be near a bathroom at all times in case he gets the sudden urge to go. He is doing much better since his diagnosis. But he does have good days and bad days.
Good luck with your daughter. My heart goes out to you.

Answer 6

Yes... it is spelled chrohn: Crohn's disease (also known as regional enteritis) is a chronic, episodic, inflammatory condition of the gastrointestinal tract characterized by transmural inflammation (affecting the entire wall of the involved bowel) and skip lesions (areas of inflammation with areas of normal lining in between). Crohn's disease is a type of inflammatory bowel disease (IBD) and can affect any part of the gastrointestinal tract from mouth to anus; as a result, the symptoms of Crohn's disease can vary between affected individuals. The main gastrointestinal symptoms are abdominal pain, diarrhea, which may be bloody, and weight loss. Crohn's disease can also cause complications outside of the gastrointestinal tract such as skin rashes, arthritis, and inflammation of the eye

Answer 7

I think if your daughter listens to her doctor and eats the way they tell her to she will do all right. I have a niece who has this also. She has a lot of problems and has had a couple of surgeries, BUT she insists on doing things her way. She doesn't eat like she's supposed to and she doesn't always take her meds. I think she is her own worst enemy when it comes to Chrons. My advice to your daughter would be, "Listen to your doctor and do what he says".

Answer 8

My wife was diagnosed last year - during an emergency appendectomy - and is okay. She had 9 inches of intestine removed. This is a very drastic measure and normally doesn't need to happen. Since there's really no cure for Crohn's, it's just treated with medication and diet. Other than adjustments to her diet, things are pretty normal.

Answer 9

This can be very serious and debilitating. Chrones disease can necessitate surgery to remove badly damaged sections of the gut so take it very seriously but do not be too concerned until you have more details of how bad it is. Do a search on NHS direct for more info

Answer 10

Crohn's disease is a chronic disease process that can ultimately result in the loss of the large bowel. It is painful, it can be socially embarassing.

http://www.crohnsandme.com/Default1.asp

This is a very good website and can help you and your daughter to cope with this serious diagnosis