Has anyone ever had baby with giant omphalocele and what was the outcome and recovery time?

Question

Getting ready to go into labor any day and no doctors seem to have any answers on what to expect?? Please help if you can.>>

Answer 1

I assume you will be having c-section.

The doctors are correct, they wont know until the baby arrives exactly what they are dealing with.

Ask your OBGYN if there is any type of support group for you and the baby's father...you will probably need it, and they can be a great source of information.

I hope you are delivering at a hospital that is prepared to take care of you and the baby.

God bless, and good luck to all of you.

Answer 2

You will most likely need a c-section and baby will need to stay in a Level III NICU and probably need multiple surgeries.

Assuming no other chromosome defects or co-existing problems, baby should have a good prognosis but will most likely be on a vent and have feeding difficulties, at least initially.

http://www.chop.edu/consumer/jsp/division/generic.jsp?id=81171

Answer 3

This website offers support from Mom's who have experienced this with their children:

http://www.omphalocele.com/

And here's a whole page of resources that might be of help to you:

http://j.webring.com/hub?ring=omphalocele

I hope you can find some comfort with at least one or two of these sites.

Good luck! =) Best wishes for a very happy baby and the easiest possible recovery for both of you.