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I HAVE ALS. IT IS REAL NASTY AS FAR AS BECOMING TOTALLY DEPENDANT ON OTHER PEOPLE. I LOVE LIFE HOWEVER NOT AT THE EXPENSE OF MY FAMALIES EMOTIONAL,PHYSICAL & FINANCIAL WELL BEING.THE QUESTION ISN'T IF I AM GONNA DIE , BUT HOW WHEN . JUST BECAUSE SOMEONE CAN BE KEPT "MEDICALLY" ALIVE, IS TRULLY LIVING?

2006-08-05 22:23:08 · 19 answers · asked by thnkr 1 in Health Diseases & Conditions Other - Diseases

19 answers

I pray that you have the Lord God and His Son in your life,..He promises you life eternal, if you beleive...and gives you such peace in your heart, that you know you have something to look forward to...I am sure that those who are around you and love you, don't see you as any kind of medical burden, if that is what you are wondering....You have a cross to bear, but I am sure without a doubt, that they would rather have you here as long as they can...Of course your quality of life is not what you would have it to be...that is why the Bible tells us to live each day as if it were our last....My prayers are with you. I pray that you find peace with the Lord through His Son...He knows what you need before you even ask Him...your family would have it no other way, other than to take care of you, believe me. God Bless you

2006-08-05 22:31:31 · answer #1 · answered by MotherKittyKat 7 · 0 0

What do your loved ones say about your situation? If you have a DNR, they will have to respect your wishes, as most families do. I understand ALS is gradual and you will know when you can no longer function at a level consistent with any enjoyment or love of life. Have you discussed this with your Docs.?

There is also Hospice, it isn't just for cancer patients, but for any one who has a terminal illness. By using this service the physical care and financial expense are all taken care of. The medication is programmed 24/7 of the best results and you do have the options of life and death that wouldn't be available to you otherwise.

Hope this helps, bless you.

2006-08-11 07:21:25 · answer #2 · answered by Anonymous · 0 0

You said you love life... that's your own answer. Your spirit will keep trying to live even when your mind is trying to convince you that there's no point.

I have Multiple Sclerosis. There are days when I feel as you do, but usually I'm glad the next day that I got to see the sun rise and I got talk to my family at least once more.

If taking care of you is becoming too difficult for your family members, is it possible for you to move into a hospice? Ask your doctor for information about it and about ALS support groups in your area. Those groups are not just for people suffering from ALS, but can be a good source of support for your family members. There might be services available to you and your family that others at the group can put you into contact with.

If nothing else, you'll have people to talk to that understand the feelings you're having right now. Please reach out to your community before doing something rash.

2006-08-05 23:07:28 · answer #3 · answered by Answer 3 · 0 0

No good answers to this question... but think about this, you obviously love your family since you are concerned about their well being, ask what if they where in your shoes, would you then think about them being dependent on you?
on the other hand I do fully understand the question of being kept alive, when the time comes I do not wish any "heroic" measures and do not want any chemo or other stuff that is going to make me sick for a year so that i may "live" another year, I rather enjoy that year and then die

2006-08-11 03:19:48 · answer #4 · answered by lportil 3 · 0 0

Ok, now you have to understand that this is not all there is. Where you go from this life is much better. I'm not in your shoes, but I have been and it just wasn't my time to go. This is the ONLY reason I'm here typing this right now. There comes a time when life doen't seem worth holding on to, and you feel you are a burdin to your family. You have got to stop thinking this way as it only depresses you more. The reality of the situation is; you are afraid of dieing. Fear of the unknown, and feeling sorry for your family being held hostage by your illness is normal for anyone to go through. Think back to someone like your parents, grandparents that went through the same thing. You are not unique, or your problem is no different. Things always has a way of working itself out. You are NOT ready, and your are NOT at peace with your destiny. Many people have died and came back to life, and the story is all the same! The light, the overwhelming peace, the warmth, and relatives telling them to go back because its not their time. Thousands of people will testify to this same thing including me. I'm not trying to push religon, but you have got to know that all of this is real. Make peace with yourself, your family, and more than anything your maker! Yea thow I walk thru the shadow of death, I will fear no evil for thow art with thee. When your quality of life isn't worth living, draw upon your faith, and ask for relief. It will come! All will work out for your family, and they will survive just fine. After seeing the other side, you will be at peace with it all, and you will realize that what i'm telling you is the truth! Bless you, and I will see you on the other side. Amen.

2006-08-05 22:59:22 · answer #5 · answered by Anonymous · 0 0

Yes it is worth living! Your family has hope that something can and will be done so you can live longer or have a better quality of life. Besides we all face death and just don't know when! Keep working at life and try to be as happy as possible for your family and yourself. Dear Heavenly Father I ask that this person receive the peace that only You can give. I pray that he will live as You want him to and I pray that he can and will be an example of abounding love and faith for his family and they for him. Please guide him in his daily life and help him know that life is a precious gift to be cherished. Help him with activities to keep his mind busy and to stop thinking negatively about what is to come. If he doesn't know Your Son as his Lord and Savior, I pray that he will open his heart and allow Your love to enter in. I pray that through his illness he will be a special peace-filled witness for Your Kingdom and that others will see the change that only You can make in a person.I ask these things in Your Son's name and thank you for the privilege to pray to You for him . Amen

2006-08-05 22:39:02 · answer #6 · answered by Anonymous · 0 0

You just keep on living your precious life. That's why we have family, god gave us family to lean on when times are bad. Enjoy every last minute of your life. Life is short and people take for granted how precious it is. My deepest sympathy is with you. I don't know or shall I say come to grips with death until I took care of my grandfather with a terminal illness that took his life 8 mo. ago. I watched him die. So what your family is experiencing isn't what you think. They are probably not wanting you to suffer. I wish there was more I could say. Live to the fullest and don't worry about nothing. Enjoy the beautiful days ,enjoy emotions,sadness,anger,and happiness. Enjoy each one of them for what they are. Most of all live until you can't live anymore and that's when it will be over,

god bless you.

2006-08-05 22:38:06 · answer #7 · answered by capster 2 · 0 0

Were all going to die at some point, I resigned myself to that fact long ago when my father passed, don't think of death as an end think of it as a new beginning, you get to find out whats on the other side! Don't you know heaven's got one hell of a band. CAR PA DIEM live not in yesterdays shadows or tomorrows dreams! GOD loves all his children..even me

2006-08-05 22:36:56 · answer #8 · answered by Anonymous · 0 0

Who can understand such a thing?
If I had no voice, no hearing or speaking abilities,
and had10 minutes left to consider all that I am:

I would give those last 10 minutes to seeing all the ones that I love in the same room surrounding me, speaking to me though I could not hear, touching me though I may not respond, loving them though I could not tell them.

2006-08-13 03:08:50 · answer #9 · answered by Chip 2 · 0 0

medicaly alive urm isnt good more of a burden an another think attack life for it will kill us all some day and think life and when comes smile and said ive3 done well and honor this moment wiht my last bit of braeth

2006-08-05 22:27:36 · answer #10 · answered by ? 2 · 0 0

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