My partner has got it and it has affected his lungs - we are finding it really hard to come to terms with this long term illness - he may even need to have a lung transplant in the future.
How can we adjust? It would really help to speak to other people with the disease
2006-08-02 00:05:19 · 2 answers · asked by Lupee 4 in Health ➔ Diseases & Conditions ➔ Skin Conditions
I knew someone who had it but it was only her skin that was affected. It was very hard for her to move.
There is a foundation for it--they might have support groups or message boards. Link below.
2006-08-02 01:39:05 · answer #1 · answered by Rosie Young 5 · 0⤊ 0⤋
a friend of mine at work has it-but hers is not in the inside of her body its on her back and sometimes her neck-another friend of mine at work her mother-in-law had it on her organs and just recently passed away-im sorry what your partner is going thru-what does the dr tell you the percentage of living w/o a lung transplant-usually its starts spreading to other organs too-maybe talk to hospice-im sure your partner is in alot of pain too-maybe they can help you cope
2006-08-02 00:55:56 · answer #2 · answered by Lola 3 · 0⤊ 0⤋