i have been told i have olsen weber rendu syndrome what is that ?

Answer 1

I have pasted some information regarding this, there is also a list of resources listed below that. You can contact them for more information on the syndrome. Best of luck to you & Take Care! :)

Synonyms

HHT
Osler-Weber Rendu Syndrome
Rendu-Osler-Weber Syndrome
Disorder Subdivisions

Hereditary Hemorrhagic Telangiectasia Type I
Hereditary Hemorrhagic Telangiectasia Type II
Hereditary Hemorrhagic Telangiectasia Type III
General Discussion

Hereditary hemorrhagic telangiectasia (HHT or Osler-Weber-Rendu syndrome) is a rare inherited disorder characterized by malformations of various blood vessels (vascular dysplasia), usually resulting in excessive bleeding (hemorrhaging). Chronic nosebleeds are often the first apparent symptom associated with hereditary hemorrhagic telangiectasia. Malformation of various blood vessels may result in abnormalities affecting various organ systems of the body including the lungs, brain, and liver. Hereditary hemorrhagic telangiectasia is inherited as an autosomal dominant trait.

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Resources

March of Dimes Birth Defects Foundation

1275 Mamaroneck Avenue

White Plains, NY 10605

Tel: [phone]

Fax: [phone]

Tel: [phone]

Email: [e-mail]

Internet: http://www.marchofdimes.com



HHT Foundation International, Inc.

P.O. Box 329

Monkton, MD 21111

United States

Tel: [phone]

Fax: [phone]

Tel: [phone]

Email: [e-mail]

Internet: http://www.hht.org



NIH/National Heart, Lung and Blood Institute

31 Center Drive MSC 2480

Building 31A Rm 4A16

Bethesda, MD 20892-2480

Tel: [phone]

Fax: [phone]

Email: [e-mail]

Internet: http://www.nhlbi.nih.gov/

Answer 2

Osler-Weber-Rendu syndrome, also known as hereditary hemorrhagic telangiectasia, is an autosomal dominant disorder identified typically by the triad of telangiectasia, recurrent epistaxis, and a positive family history for the disorder. The major cause of morbidity and mortality due to this disorder lies in the presence of multiorgan arteriovenous malformations (AVMs) and the associated hemorrhage that may accompany them. The disease has a wide spectrum of presentations; patients may be asymptomatic or have multiple organ involvement, presenting at any age. Treatment mainly is supportive and consists of controlling and treating the bleeding. The prognosis of the disease is good as long as bleeding is promptly recognized and adequately controlled.

Answer 3

Osler Rendu Weber syndrome is the same as Hereditary hemorrhagic telangiectasia, which is defined as -

http://www.medterms.com/script/main/art.asp?articlekey=6678

Answer 4

first; it is not olsen, it is osler,
2ed;this is a disease with abnormal vessels in brain (cerebellum}
,retina (eyes) and sometimes in spinal cord,these abnormal vessels sometimes tend to bleed.

Answer 5

Maybe it means you are afraid to GOOGLE things

Answer 6

Try this: