How to get treatment for genetic disorder(22p+) for my kid(3 1/2 years old)?

Answer 1

contact these Resources

Support Organization for Trisomy 18, 13, and Related Disorders

2982 South Union Street

Rochester, NY 14624-1926

Fax: [phone]

Tel: [phone]

Email: [e-mail]

Internet: http://www.trisomy.org



The Arc (a national organization on mental retardation)

1010 Wayne Ave

Suite 650

Silver Spring, MD 20910

Tel: [phone]

Fax: [phone]

Tel: [phone]

TDD: [phone]

Email: [e-mail]

Internet: http://www.thearc.org/



National Down Syndrome Congress

1370 Center Drive

Suite 102

Atlanta, GA 30338

USA

Tel: [phone]

Fax: [phone]

Tel: [phone]

Email: [e-mail]

Internet: http://www.ndsccenter.org





For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone [phone]; web site www.rarediseases.org or email [e-mail]



Last Updated: 2/2/1998

Copyright 1987, 1990, 1998 National Organization for Rare Disorders, Inc.

I hope this helps