Anybody with neurofibromatosis what kind of problems do you have?

Answer 1

I have it. Here's brief list of the problems I have.
1. My arms, hands and legs, will jerk on their own.
2. I have discomfort mostly in my legs.
3. My nerve seems to pinch on and off wherever I have a tumor.
4. I get tired real easily after walking about 45 minutes.
5. My legs will give out sometimes. (Luckily I haven't fallen, yet)
6. I'm somewhat sensitive to weather changes, as well as the temperature of a pool.
7. I sometimes have tingle feelings and numbness.
8. And then I have aches and pains on and off all over my body.

Answer 2

.Don't have it....but looked it up came up with....a condition where moderately firm, benign, encapsulated, slow-growing tumors of the nervous system arise from the supporting cells (Schwann cells) of peripheral nerves.

Answer 3

I have it and I have freckles on my neck and stomach and tiny freckles on the colored part of my eye.