Now that I am on kidney dialysis, why do I feel so bad and tired.? I still do not have any desire to eat.?

Question

I felt better before I started dialysis. After the treatment I sleep the rest of the day and all the night. My life is passing me by. When does it get better?

Answer 1

Hi, Jackie, how long have you been on? I've been on dialysis for two and half years. I felt the same at the beginning, still do. People tell me I looked like hell before I started, I just didn't notice. They told me I look better after starting, healthier I should say. It it hard. It does get better, but some days will be better than others. How do you feel the other days. If you still feel bad, tell your Doctor or nurse maybe you need something changed. Maybe they aren't taking enough off or sometimes they take off too much. I had a really bad time for two months, I could barley walk. It took quite a while for them to discover I was low in Iron, really low.

I know Doctors are good, but sometimes things are overlooked, maybe your not explaining to the nurses. Tell them how your feeling, it took one savy nurse who wouldn't let it rest to help me. They could just be thinking your feeling normally tired, and it's true we feel tired. But sometimes you have to let them know, check a little deeper.

Good Luck, it will get better and it will get worse. Sometimes I have to force myself to do things even though I know I'll feel bad after and during whatever I'm doing. Just remember your not alone, but your feeling are yours, others like me will have similiar feeling, but you are allowed to feel and think anyway you want. Never let anyone make you feel bad for feeling any way you want or just dismissing you.

I hope I haven't depressed you more, I'll get off my soap box. Good Luck.

Answer 2

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You're probably already aware that dialysis is a process for removing waste and excess water from the blood, and is used primarily to provide an artificial replacement for lost kidney function in people with renal failure... With that in mind, I'll try my best to answer your question. There are a few different types of dialysis, but I'll just assume you're referring to Hemodialysis which filters your blood using a machine. Dialysis itself does not hurt and will not make your health worse. In regards to the follow through/any bad or strange side effects; unless you are very sick for reasons other than kidney failure, dialysis should help you feel better. Some people feel better the first week. Others notice a difference after a few months. Having said this, I have read conflicting opinions on the issue- with some people saying that dialysis makes them feel tired and unwell... I can only assume that it's very much an issue entirely dependent on your own body. I hope this helps, and you might want to check out some of the sites below.. The last one (the forum) seems to be giving good honest opinions from those that have had or are having dialysis at the moment. Be well.

Answer 3

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Answer 4

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RE:
Now that I am on kidney dialysis, why do I feel so bad and tired.? I still do not have any desire to eat.?
I felt better before I started dialysis. After the treatment I sleep the rest of the day and all the night. My life is passing me by. When does it get better?

Answer 5

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Answer 6

It seems to me that there are 3 important factors that cause people to be exhausted post-dialysis:
1) They could be following their diet better (especially potassium).
2) They are drinking too much.
3) They have other health problems which compound the problem.

When you have too much potassium or water in your body, and it is quickly removed, it is hard on your heart and can leave you feeling exhausted.

But really, most of my patients feel tired after dialysis. Some of them have switched from dialyzing in the morning to the afternoon or evening, that way they can sleep when they get home and they feel like they haven't wasted their day.

Try to get a good night sleep and eat well at least an hour before you come in. Try doing different things while you're in your chair. Try sleeping (maybe you aren't sleeping enough) or try being more active. I know that sounds strange when you're not supposed to move very much. But try reading, doing a crossword puzzle or sudoku, do cross stich or put photos in albums - anything to keep your mind active. Try talking to the person in the chair next to you. Just keep trying different things. You can ask your nurse or doctor for suggestions. You might also look into doing peritoneal dialysis.

As far as comparing how you felt before dialysis with how you feel now, it's a dangerous comparison. If you were to stop dialysis, you would feel better for a little while, you might have some weakness in your arms and legs, you'll develop a little swelling, and then you will die suddenly of heart failure due to a buildup of potassium.

There is no exact time frame for when things get better. I had a patient who recently switched from doing dialysis in our clinic to doing home dialysis. When he first came to us he was a jerk. He was rude and sarcastic to all his techs and nurses. But he turned into a nice person and seemed more energetic and less affected by the dialysis (in a physical sense). We asked him what made the difference, how he was able to change. He said it was about changing his attitude and accepting the disease. It was now about him managing and taking control of the disease than the disease controlling him and his life.

Answer 7

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Answer 8

Some people do better on dialysis than others. Be sure your hemoglobin stays high so you're not anemic. My daughter is 20 and has had dialysis for the last 2 1/2 years. It's not perfect but it keeps her alive. If you can try to get a living donor. There's more info on our website at http://www.xanga.com/i_korn. Best of luck to you!

Answer 9

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- Passing only small amounts of urine and stopping and starting while urinating
- Swelling in my ankles and lower legs
- Puffiness around my eyes with brain fog and moodiness
- Chronic fatigue and shortness of breath when exerting myself
- Loss of appetite and not wanting to eat at all
- Increasingly higher blood pressure
- Bouts of anxiety and depression
- Muscle cramps which were worse in my legs

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Answer 10

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