My Ebstein-bar is 4,300. Normal is below 100. My Dr. is not well adversed with this disease, but I have found many web-sites regarding it. I have a brother that is Arthritic, and a sister in-law that started out with fibro and now has MS. I am not able to work anymore and all of these pills are horrible. In one article by Robert Bennett which is head of the OHSU Reumatoid dept, unfortunatly just retired, has been using methadone 10mg. Two tabs one to two times a day. My brother says it really works for him and has now drowsy side effects like the others meds. Has anyone tried this medication? If so, has it worked for you. My quality of life is nothing anymore. Any info would be greatly appreciated.
Thanks,
Linda
2006-07-19 07:00:30 · 7 answers · asked by Anonymous in Health ➔ Diseases & Conditions ➔ Other - Diseases
HI
I have tried Methadone for my fibromyalgia. My dosage was 10mg 3 times a day. I was nauseated, would nod out all the time, and after about 4 days of beginning to take the medication I started to get a pounding headache. I also had very bad nightmares and couldn't drive I was so messed up. It was a horrible feeling. Methadone was the worst pain medication I have ever used and I have tried them all. The Pain medication that works best for me is Oxycodone. If it is started out at a low dose and gradually increased until the pain is under control the side effects are minimal and go completely away once your body becomes use to it. The only problem with Oxycodone is its a short acting medication lasting 6 hours so you have to take it 4 times a day and have break though pain. My doctor recently switched me to Oxycodone ER, which last 12 hours. (Generic for Oxycontin) The longer acting narcotics if used properly are also less addictive because you don't have so many ups and down, therefore you are less likely to take more than prescribed to control the pain.
Good Luck :)
2006-07-21 04:24:44 · answer #1 · answered by paulamcneil1223 3 · 0⤊ 0⤋
Hi Linda: I was very recently diagnosed with fiibromyalgia myself, and the first order of treatment, according to my doctor, is a good sleep pattern. I would read all you can on-line about fibromyalgia, as I did, as it was very informative. AND, you need to either get a referral to either another rheumatologist or a doctor who can address this issue with you. I was given a medication that my insurance plan will not cover, but I had samples enough to know that it was very effective for me. Now I intend to get something OTC that will hopefully have the same effect. The trick is to stay up during the day as much as possible. I was prescribed a mild sleep medication to assist at night, and I've been doing considerably better. Hope you get some answers from a doctor you trust.
2006-07-19 07:07:57 · answer #2 · answered by janberridge 2 · 0⤊ 0⤋
A friend of ours at church has fibromyalgia. She has been taking a natural product called Reliv for a few months, and is doing a lot better. It has been a tremendous blessing in our lives as well. My wife has a severe immune deficiency problem. She has spent most of each day sick in bed for years. She was unable to carry our first child to term, which is a horrible burden for anyone. She got pregnant again, and her body was in the process of rejecting the pregnancy as self defense, as the little bit of life was being sucked out of her. Fortunately, somebody told us about Reliv. Our child is happy and healthy and active. My wife now enjoys great health, and only sleeps 7 hours a night.
Reliv is the best product out there. It has been listed by Fortune magazine as the 11th fastest growing company. It has been featured in Businessweek, Forbes, and this month it is featured cover to cover in Success from Home magazine.
I would be happy to tell you more. You can contact me at worknman73@yahoo.com
Take care and God bless,
Michael
2006-07-19 16:25:35 · answer #3 · answered by worknman73 2 · 0⤊ 0⤋
Sadly I have this too and have major ups and downs with it. I have had the best results with a pure diet. No additives preservatitives, whole foods only! brown rice, veggies, fruit, proteins etc.
2006-07-19 10:32:15 · answer #4 · answered by rosechad413 1 · 0⤊ 0⤋
went through the same thing.... actually it was prozac that ended up helping me. it regulated my sleep patterns and my pain was suddenly under control!
don't give up. keep trying different meds until something works.
God bless you!
2006-07-19 09:23:52 · answer #5 · answered by Janci 3 · 0⤊ 0⤋
I must tell yuo how saddened that i am but I knwo there is God and there is a reason for everything...God is with you kid! Always!
2006-07-19 07:20:06 · answer #6 · answered by likeskansas 5 · 0⤊ 0⤋
http://health.groups.yahoo.com/group/Fibromyalgia-CFS/
http://curezone.com/diseases/fibromyalgia/
2006-07-19 07:05:20 · answer #7 · answered by Anonymous · 0⤊ 0⤋
Please see the webpages for more details on Fibromyalgia.
2006-07-19 07:20:05 · answer #8 · answered by gangadharan nair 7 · 0⤊ 0⤋