since the parents are the guardians of the child, they have the authority to decide this.
it is a very difficult question from a legal and ethical standpoint.
one one hand, everyone has the right to live. so should we take that away from this poor child even though he/she is suffering from a genetic disease and is bound to a wheelchair? the parents need to look at long term survival and whether or not they can handle the emotional/physical/financial toll of caring for this child should he code and then become vegetative. it must be a very hard decision to make. legally, one cannt allow a person to pass away without helping unless a do not resuscitate )DNR) order is signed by the parents. this legal document states that the medical staff do not try anything like CPR or intubation to keep the child alive. in some cases, parents may wish that they only want certain things done - for example, they may want CPR performed, and if that doesnt bring the child back, they may say nothing else, no intubation, no medications, no feed tubes etc. CPR only. they need to make this decision together and be in agreeance with each other wholeheartedly. how difficult it must be.
2006-07-14 18:54:09
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answer #1
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answered by stascia 4
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This is a high ethical issue.
It's impossible to give a good answer.
Let's start with the legalia.
Since the question is posed with a child in mind, the parents or guardians have this decision. Though the child's wishes should be taken into account, chances are that a child with a "genetic problem" sticking her in a chair for life ain't able to articulate much.
Now, some of the moral.
There are religious belief systems which do not allow for heroic measures, either in general (anything to keep a pulse) or in specific (not permitting external blood transfusions). If the decision maker and the child are members of such a religion, then there is a high to total probability that the child will be under a do-not-resuscitate (DNR) order. Courts have ruled that this is a perfectly legal action.
Many parents, though, don't want their child to die any more than they want their child to be debilitated. However, they will move to save her life regardless.
The question is a very hard one. Medical friends have told me that this is one of the hardest things to deal with, but they have complied with the parents' wishes and not performed heroic measures to save a child.
2006-07-14 18:38:26
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answer #2
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answered by kx_wx 3
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Absolutely not. I am not in the medical profession but I know of several genetic disorders that make people wheelchair bound. Are you God, with the power to decide who lives and dies? Look up the name Dr. Steven Hawking, the noted Physicist, who has cerebral palsy and was told he would be dead by about age 25. He can't even speak anymore but has a wonderful mind. I used to be a substitute teacher and did lots of work in special ed classes, lots of kids in wheelchairs over the years. A smile on a person's face is enough to make me happy. My son was wheelchair bound because of cancer. If you are in the medical profession or know someone who is and is faced with the situation you speak of, then it is the wrong career. If you are asking only because you seek an opinion, there you have it.
2006-07-14 18:40:07
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answer #3
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answered by kriend 7
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that is to be determined by the parents...any patient can be a DNR (do not recusitate). If you are over 18 it is your decision...if you do not have a living will or are unable to speak for yourself (ie minors, those with mental disorders or those with no living wills who are in comas or incapacitated)..the decision falls to your family or someone that you've appointed to make those decisions for you. A DNR basically means that you don't want any heroic measures to bring you back if you were to stop breathing and your heart stopped beating.
I'm a nurse who works with disabled children and several of my patients have been DNR's. It's not because they are not loved, usually the opposite. These kids have been through so much pain, prodding, surgery...sometimes the parents feel that if for some reason their heart was to stop beating, they didn't want to go to 'heroic' measure to bring them back. Quality of life is a huge issue...and many of these kids don't have it. would you want to be subjected to surgery after surgery for the rest of your life when it only buys you enough time until your next surgery? I guarentee it's a hard decision for these families..but it is their decision to make.
2006-07-14 18:34:40
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answer #4
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answered by kansas8099 4
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Not unless the person has filled out and signed a "Do Not Recessutate" (DNR) order.
Quality of life is not a decision that others can make for a person - only the person experiancing the quality of life can makethat sort of decision.
This is basic medical, and legal ethics.
2006-07-14 18:34:08
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answer #5
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answered by ***** 6
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Sorry, yet in spite of in case you meant no prejudice, i do not discover that humorous. I artwork with little ones with disabilities on the preschool aspect, and characteristic had many little ones who were wheelchair certain in my instructions. lots of those little ones have seriously debilitating issues/ailments that decrease their "high quality of existence" perpetually. many do no longer live to inform the tale childhood. imagine extra about what you'll submit on right here... countless the individuals in this section are father and mom or artwork with little ones on the preschool aspect. a aspect of sensitivity to individuals of youthful little ones with disabilities will be an humanitarian aspect to do.
2016-11-06 09:47:05
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answer #6
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answered by Anonymous
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that is tough to answer . Is there lots of pain involved,,reasonable mobility, any hopes of getting improvement, how about mentil ability. and then a huge question money for care.
2006-07-14 18:46:41
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answer #7
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answered by Robert F 7
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what do the parents wish to do ? any hope for a normal life? will the mind develop?
2006-07-14 18:29:11
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answer #8
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answered by nora7142@verizon.net 6
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everyone has a right to live
2006-07-14 18:29:51
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answer #9
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answered by Crystal 4
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