Question about side effects of Parkinsons disease drugs?

Question

My Mother has advancing Parkinson's disease and has been given several alternate drugs to control the shaking.
The drugs have worked in some cases, but the side effects are always too bad for her to continue taking them. The doctors don't seem to be able to help her with this.
Has aniyone else been thru this and found a solution....either a new drug...or an alternate therapy....or even a drug that helps curb the side effects (usually she becomes very lethargic or too tired and sleeps all day) Any help or siggestions would be greatly appreciated...
I should add that she is not willing to have surgery to implant a device that may help the problem with electrical impulses.

Answer 1

I am not sure of any alternate therapy or any new drugs. But I listed below of list of Organizations that you could write or call and see if you can find any additional information. Sorry I couldn't be of more help. Good luck to you, your family and your Mother. My thoughts are with you. :)

Organizations

American Parkinson Disease Association (APDA)
1250 Hylan Boulevard
Suite 4B
Staten Island, NY 10305-1946
Phone: [phone]
Fax: [phone]
E-mail: [e-mail]
Web Address: http://www.apdaparkinson.org

This not-for-profit organization has information and referral centers in most states to provide information on local health services, availability of doctors experienced with the disease, and updated information on medications. APDA has 90 fundraising chapters and more than 400 support groups nationwide.



National Parkinson Foundation (NPF)
1501 NW 9th Avenue / Bob Hope Road
Miami, FL 33136-1494
Phone: [phone]
1-800-327-4545
Fax: [phone]
E-mail: [e-mail]
Web Address: http://www.parkinson.org/

The National Parkinson Foundation provides information on problems related to Parkinson's disease. It also maintains the Bob Hope National Parkinson Research and Rehabilitation Institute. NPF conducts research on Parkinson's disease, provides doctor referrals, and sponsors a variety of educational programs.



Parkinson's Disease Foundation, Inc.
William Black Medical Building, Columbia-Presbyterian Medical Center
710 W. 168th Street
New York, NY 10032-9982
Phone: [phone]
1-800-457-6676
Fax: [phone]
E-mail: [e-mail]
Web Address: http://www.pdf.org

This national not-for-profit organization is dedicated to research on the cause, prevention, treatment, and cure of Parkinson's disease and related conditions. It maintains laboratories and grants postdoctoral and student fellowships. It also provides referrals to support groups and neurologists.

Answer 2

The Parkinson's Reversing Breakthrough?

Answer 3

You might want to google "LDN parkinson". Low dose naltrexone has been used in a limited number of patients with varied success. Most of the experiences have been with MS, so that is where most of the information will be found. LDN works by increasing endorphin levels, thus strengthening the immune system. There are videos on You Tube of the 2008 LDN Conference. The son of Herman Wouk, the writer, has a video on You Tube describing how he was cured of MS with LDN. He suggests that anyone interested in learning about LDN should join the Yahoo Group lowdosenaltrexone.

Answer 4

OK,, here goes,, my husband has a similar ds that makes his legs shake,, we found that rubbing vics sauve,, yes vics on his legs nightly has significantly reduced his legs from jerking and he has been able to take less and less neurontin and other meds,, we found out about this from a man who wrote an article in a newspaper that he did it and it worked for him
try it,, nothing to lose and it won't hurt her

Answer 5

http://www.parkinson.org/site/pp.asp?c=9dJFJLPwB&b=184301
http://www.parkinson.org/site/pp.asp?c=9dJFJLPwB&b=238635

Also jimsonweed which must be prescribed by a physician in the USA, and octacosanol. You should discuss using these medications with her physician before taking.