I've had MS for about 40 years and am the lucky 2-5% who progresses very slowly and stays in Remisssion for long stretches of time.........
2006-07-12 07:49:24 · 6 answers · asked by jssmoi**** 2 in Health ➔ Diseases & Conditions ➔ Other - Diseases
I have a friend with MS - same issues. She had great success with 3 methods to control her energy.
#1. Meditation - she used movement meditation similar to yoga
www.dancemeditation.org
#2. Breathing - she used Anna Coy's breathing CDs to increase her energy level.
http://www.heartofbreathing.com/
#2. Wild Divine - it's a biofeedback system promoted by the people who produced the movie what the bleep. She used it and claims that it really helped her to learn to control her energy.
http://www.wilddivine.com/
I'm not sure she felt it gave her more energy but she was able to direct it better into the things she wanted to do, reduce insomnia, etc. To have energy at the times she really needed it and to not expend energy at times when she didn't need to (worrying or trying to fall asleep for example).
If you want to know more you can email me:
gimpagain@yahoo.com
it looks like she doesn't have a website right now (she recently moved to colorado springs to get cooler weather because of the sensitivity to heat in MS) but this is a much older website.
http://www.fiddlechicks.com/players/cowles.htm
2006-07-12 07:59:26 · answer #1 · answered by Sufi 7 · 0⤊ 0⤋
Your senario sounds just like my wifes. She has had MS only for 17 years though and we have been married for 11 of those. I used to be somewhat bothered by the fact that when I was at work and I would call her and she would be doing this and that. By the time I got home, she was whipped! She would fatigue every night and wake up with some fatigue still. She would have a flare up of some degree every summer. Sound familiar?
She was looking into the different drugs to take when she decided to go "alternative" and get products to make our home a wellness home. It was about 4 weeks afterward that I noticed she had more energy in the evenings and we could even do things after work. She's not jumping off the rooftops mind you, but what a difference. Best of all, she has not had a flare up in the 4 years since.
2006-07-16 19:40:24 · answer #2 · answered by job_buster 2 · 0⤊ 0⤋
The best treatment for MS is LDN, hands down. It is the only medication that can stop MS in its tracks! No other medication can do that. Most people on LDN have less fatigue and less urinary urgency. It is very cheap, has almost no side effects, it is easy to take since it comes in a capsule and although it does not cure MS it prevents further progression. Please check it out! Tens of thousands of people are taking it worldwide and the number is growing every day!
2006-07-15 07:12:35 · answer #3 · answered by Gabi K 1 · 0⤊ 0⤋
I have MS and heat hammers me. I stay in my pool or the A/C or I found a vest at Staycool vests.com phone them at 1-866-782-2665 The vests work really well.Heat causes the fatigue . I do my cleaning etc in morning when I'm less fatigued. Rest for short periods during the day. best of luck and hang in
2006-07-17 01:22:44 · answer #4 · answered by pets20 1 · 0⤊ 0⤋
I too suffer from MS. Fatigue just comes with the disease. But, it helps to stay cool and get plenty of exercise. Don't try to over do yourself. That could cost you days in bed.
~ willowdove ~
2006-07-12 09:33:53 · answer #5 · answered by willowdove 1 · 0⤊ 0⤋
go to fibrohugs.com they have a lot of info not only about fibromyalgia but also about ms pluz chat rooms where u can talk to others
2006-07-12 14:42:34 · answer #6 · answered by sshhorty2 4 · 0⤊ 0⤋