My 11 week old son has ocular albinism i only found out dose any one out there know any thing about this?

Answer 1

I posted this answer to another person asking about their nephew and thought it might help you too---

Hello. I'm 24 and have lived with ocular albinism all my life. My parents discovered my condition when I was 18months old. I have had experience with regular public school and also a specialized state run school for blind and visually impared students. When I was growing up my parents treated me the same as my sister. My vision was not a limitation-I did everything all the other kids did. I really didn't even know I was different until I was in school. Large print books, CCTV's, magnifying glasses, thick tipped black markers, and paper with thick black lines were provided free through the state. At first all the other kids were curious about why my book was huge and such but as the years went on I slowly became the outcast. I am a very intelligent person but by 3rd grade my teachers decided the "slow" class would be better for me. DON'T LET YOUR NEPHEW BE DONE THIS WAY!!! Yes, we are different but that doesn't mean stupid. By high school I found out about the state school for the blind and decided to try it. It was a completely different world. Everyone there was blind or low vision so no one was the outcast. The classes were smaller but the curriculum was the same as public school and it's so much easier to learn without the constant stares. Anyway, now I am a happily married woman and my husband has no vision problems. There are a few tips I can give from personal experience: buy sunglasses and lots of them-everyone in the family should wear them so your nephew doesn't feel different. Stock up on the sunscreen and everyone should be wearing it anyway, but your nephew is going to need it everyday-no exceptions. Make it fun and teach him early on to put it on himself and take responsibility for his skin. There are a lot of companies that make sunscreen that goes on blue and dries clear--it makes it more fun to use. Also, don't move furniture!! Visually impaired people like things to be in the same place and we tend to be very organized people. Moving furniture is like throwing us in front of moving traffic..lol. Give him the chance to experience life with others like him--most state schools for the blind have summer camps where kids from all other the state meet and spend a week or two. I would be happy to answer any questions you may have.

Jill

The previous poster said it isn't serious but it can be VERY serious. Blindness--yea, that's pretty serious!

Answer 2

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