I've recently been diagnosed with myesthenia gravis, would like to hear from others as to their solutions ? ta

Question

If anyone ha gone through this and has had treatments other than steroids I'd like to hear from them !!

Answer 1

Altogether there are about 80 recognized autoimmune diseases, including including myasthenia gravis. Like other autoimmune diseases, myasthenia gravis can go into remission temporarily, sometimes for long periods of time.

All of these diseases develop when the immune system mistakes the body's own tissues as a threat to health and begins producing antibodies to attack them. What distinguishes one disease from another is the target.

Because autoimmune diseases tend to flare up and subside in response to emotional ups and downs, it's often recommended to experiment with some type of mind/body treatment – hypnosis, psychotherapy and guided imagery therapy. Chinese and Ayurvedic medicine are also worth exploring. The following measures are worth trying for anyone with an autoimmune disorder:

Decrease protein intake toward 10 percent of daily calories; replace animal protein as much as possible with plant protein.

Eliminate milk and milk products, substituting other calcium sources.

Eat more fruits and vegetables regularly and make sure that they are organically grown.

Eliminate polyunsaturated vegetable oils, margarine, vegetable shortening, all partially hydrogenated oils, and all foods (such as deep-fried foods) that might contain trans-fatty acids. Use extra-virgin olive oil as your main fat.

Increase your intake of omega-3 fatty acids.

Take ginger (start with one capsule twice a day). Turmeric can also be helpful. Try "Turmeric Force" capsules from New Chapter and follow the dosage directions on the package.



A whole third of patients improve without treatment, particularly early in the course of the disease.

Myasthenia gravis can be controlled with medications but must be used with careful medical followup because they may cause major side effects.

Surgically removing the thymus gland (which often is abnormal in myasthenia gravis patients), improves symptoms in some and may completely cures others.

Another therapy offered is plasmapheresis (removing abnormal antibodies from the blood)

Answer 2

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Answer 3

efinition

Myasthenia gravis is a neuromuscular disorder characterized by variable weakness of voluntary muscles, which often improves with rest and worsens with activity. The condition is caused by an abnormal immune response.
Causes, incidence, and risk factors

In myasthenia gravis, weakness occurs when the nerve impulse to initiate or sustain movement does not adequately reach the muscle cells. This is caused when immune cells target and attack the body's own cells (an autoimmune response). This immune response produces antibodies that attach to affected areas, preventing muscle cells from receiving chemical messages (neurotransmitters) from the nerve cell.

The cause of autoimmune disorders such as myasthenia gravis is unknown. In some cases, myasthenia gravis may be associated with tumors of the thymus (an organ of the immune system). Patients with myasthenia gavis have a higher risk of having other autoimmune disorders like thyrotoxicosis, rheumatoid arthritis, and systemic lupus erythematosus.

Myasthenia gravis affects about 3 of every 10,000 people and can affect people at any age. It is most common in young women and older men.
Symptoms

* Vision changes:
o Double vision
o Difficulty maintaining steady gaze
o Eyelid drooping
* Patients with generalized disease may also have:
o Swallowing difficulty, frequent gagging or choking
o Weakness or paralysis (may worsen with exertion later in the day)
o Muscles that function best after rest
o Drooping head
o Difficulty climbing stairs
o Difficulty lifting objects
o Need to use hands to rise from sitting positions
o Difficulty talking
o Difficulty chewing

Additional symptoms that may be associated with this disease:

* Hoarseness or changing voice
* Fatigue
* Facial paralysis
* Drooling
* Breathing difficulty

Signs and tests

Examination may be normal or may show muscle weakness that progressively worsens as the muscle is used. In many patients the eye muscles are affected first. Reflexes and sensation are normal. Weakness may affect the arms, legs, breathing or swallowing muscles and any other muscle group.

* Standard EMG results are usually normal. Repetitive stimulation (type of nerve conduction studies) are more sensitive.
* Single-fiber EMG is even more sensitive.
* Acetylcholine receptor antibodies may be present in the blood.
* A Tensilon test is positive in some cases but must be interpreted carefully by an experienced doctor. Baseline muscle strength is evaluated. After Tensilon (edrophonium, a medication that blocks the action of the enzyme that breaks down the transmitter acetylcholine) is given, muscle function may improve.

Treatment

There is no known cure for myasthenia gravis. However, treatment may result in prolonged periods of remission.

Lifestyle adjustments may enable continuation of many activities. Activity should be planned to allow scheduled rest periods. An eye patch may be recommended if double vision is bothersome. Stress and excessive heat exposure should be avoided because they can worsen symptoms.

Some medications, such as neostigmine or pyridostigmine, improve the communication between the nerve and the muscle. Prednisone and other medications that suppress the immune response (such as azathioprine or cyclosporine ) may be used if symptoms are severe and there is inadequate response to other medications.

Plasmapheresis, a technique in which blood plasma containing antibodies against the body is removed from the body and replaced with fluids (donated antibody-free plasma or other intravenous fluids), may reduce symptoms temporarily and is often used to optimize conditions before surgery.

Surgical removal of the thymus (thymectomy) may result in permanent remission or less need for medicines.

There are several medications that may make symptoms worse and should be avoided. Therefore, it is always important to check with your doctor about the safety of a medication before taking it.

Crisis situations, where muscle weakness involves the breathing muscles, may occur. These attacks seldom last longer than a few weeks. Hospitalization and assistance with breathing may be required during these attacks. Often plasmapheresis is used to help end the crisis.

Support Groups

The stress of illness can often be helped by joining support groups where members share common experiences and problems.

Answer 4

A family member has this debilitating illness. Personally, I recommend exercise- yes, exercise. Why? Simple, MG weakens your muscles and impedes their ability to respond properly. In other words, your body refuses to obey you. Gentle exercise helps to maintain muscle tone and strength, and helps to manage pain without drugs. Mat pilates is a good option- I've seen it work. Talk to the instructor first: she should be knowledgeable and sympathetic, and able to devise a program that works for you. If you have trouble finding such an instructor, go to www.powerpilates.com. They have affiliates worldwide and should be able to help you find one in your area.

Answer 5

My grandma was diagnosed many years ago with it. She had to get a shot before she ate otherwise she couldn't swallow and then graduated to a pill. She is doing great now but had to be real careful with everything she swallowed. Best of luck to you.

Answer 6

Paint your own toe-nails instead of sitting for a pedicure.

Answer 7

Take a lap around the grocery store before you begin shopping.

Answer 8

Paint your own toe-nails rather than sitting for a pedicure.

Answer 9

Host a party—the cleaning and prep work can keep you off the couch.

Answer 10

Place your stapler far enough away you must stand up to get the item.