CMT is a fairly rare neuromuscular disease, and I have a family member with a similar disease. I do not want to give you any medical advice, but I do want to give you some general advice that our family has learned over the years:
1. Get the best medical care you can--a good neurologist and physical therapist, a good general physician that you trust.
2. Take the very best care of yourself--watch your diet, get plenty of rest, do all the good things you can for yourself.
3. Get support--you can find groups on the internet to stay in touch with. You will find that many people do not know what this disease is all about, so you want to find other people to talk to who do know what you are going through.
4. Consider supportive regimes such as massage, hypnosis, spiritualtiy, anything that gives you that extra bit of energy you need to cope.
5. If you want to research to see any new treatments or experimental trials, you can use the PubMed website at http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?DB=pubmed
Good luck to you!
2006-06-24 18:45:23
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answer #1
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answered by Ponderingwisdom 4
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Next time you're in to see your doctor, why not ask him/her questions about the disease and what the potential long-term effects are? That way you'll know for sure and can make an educated decision. Then play the worst case and best case scenario in your head. Could you handle the worst? Would it change your feelings for him? About kids - you can always adopt or get a sperm donor if genes play a really high roll in the disease (do either of his parents have the disease?)...there are ways around it if you take the time to investigate. At the end of the day, a person with a physical disability is no different than a person without. It makes no difference to who that person is at their core, and that's who you love.
2016-03-12 21:12:24
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answer #2
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answered by Niketa 4
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You will need a prescription medicine that can only be had from a doctor-dentist.
So, get professional medical help and follow instructions.
2006-06-24 18:42:08
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answer #3
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answered by marnefirstinfantry 5
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go see a doctor
2006-06-24 18:37:05
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answer #4
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answered by Evel Man 3
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