Information on Fibromagila?

Question

I have so many symptoms for 6 mo. now I'm just feeling it's something more. I have had many blood test. Waiting for result on MRI. My legs and arms go paralized. My legs arms hands feet get numb. I am in constant pain. My back hurts . It all started with pain behind my right rib cage and my first liver test came back bad others came back good. I have had it flare up on me again were I was in pain there for about 2 wks. I have diareah. My stomach makes noises. My ears hurt my head hurts. Noise from a distance hurts my ears. I sometimes have to limp. And tired I am so tired. So I was thinking Lupus or maybe MS for awhile even thyroid problem my throat is bothering me to and I have gain weight. But I had a Endoscopy so wouldn't that show. I am only 36 and I feel 80 I someone who is never sick and if I am I deal with it. I don't understand why the doctors are not taking me serious. Oh and one more thing I am on depo Provera shot. Many saying not good/ 12 yrs. now. what could be wrong??????

Answer 1

First things first -- get off the Depo shot immediately. I was on it for a while and it made me lactate and made my brain swell, symptoms mimicked a brain tumor. It sounds like you may have chronic fatigue syndrome. That won't show on tests, and with it, it takes sufferers about 4x longer to bounce back from fatigue than those without it. It's where you hurt everywhere and you're tired all the time. It could also be coupled with hypothyroidism -- a condition where your thyroid doesn't produce enough T-4, which causes weight gain and a lack of energy because your body isn't correctly metabolizing the food you eat. Get some bloodwork done and have them check your TSH and your T-4 levels and if necessary you may need to be on thyroid medication like Synthroid or Levoxyl. And get off the Depo shot; get on the NuvaRing -- it's got very low doses of hormones and since it's processed directly through the body and not metabolized through the liver, that will help with headaches and other birth control-related problems. Best of luck!

Answer 2

Have you had a test to see if you are diabetic or if you have celiac disease? The difference in the results between a type 1 diabetic and celiac disease is one thing, all the other symptoms are the same. The difference- the diabetic will have ketones in the urine and the celiac will not. The tiredness will show up in both cases as well as in fibromyalgia.

What you are describing sounds an awful lot like symptoms a celiac or a person who is gluten intolerant would have. Weight gain and diarrhea are part of the mix.

Fibromyalgia patients have most (if not all) of the pressure points that are extremely tender. There is a diagram on the internet of the pressure points they test for fibro. Sleep is very difficult when you have fibromyalgia. There are a few things I found that worked to help me with the fibro. First, in order to sleep well you NEED to exercise- even if it's only a ten minute walk around the block. The exercise helps your body to produce the growth hormone that you desperately need in order to rest at night. Next,
you need to drink purified water (not fluoridated water). I did that and started feeling better. Then do a detox- first on your colon, then on your liver. If it really is fibromyalgia, the liver detox will help you feel tons better. Why? Because actually fibromyalgia although it is classified as an autoimmune disease, it is a liver disease. Think about it- other than your kidneys what detoxifies your body of wastes? The liver. Anyway, I hope you start feeling better very soon.

Answer 3

My wife has had fibro for many years... she developed it in her early 30s... she's now been off work for about 4 years and in a fight with her employer who won't recognize fibro... at least, they did until they found a Dr that said it's BS and she doesn't have it and he doesn't really believe in fibro. That is a problem.. because so many Dr's don't believe in fibro.. even though the symptoms are real.... and your pain is real. I have several links for fibro info that I can email to you if you contact me. There are also fibro support groups in many areas in Canada and the USA.
If you're in Canada, and your Dr supports you, you might be able to get CPP disability pension. Make sure you document EVERYTHING.. every piece of info you get from Drs... from anyone. Very, very important. If you can, try and keep a journal... if you can, get yourself a tape recording device like the ones reporters use if you don't feel you can write things down every day.. that way, you have that as a record as well.
As I said, contact me through this site if you want links and I'll see if I can find them for you tomorrow.
Good luck!

Answer 4

Visit this site: www.guaidoc.com

I have been on this protocol for over 7 yrs. Get the book:


What Your Doctor May Not Tell YOu About Fibromyalgia by Dr. Paul St. Amand

Also at the guaidoc.com site there is a link to an online support group of those of us who take guaifenesin for fibro. Please read the site and the book before taking guaifenesin. We take it in pill form and a certain protocol must be followed for it to work well. It is not exspensive or hard to do. Works slowly but effeciently.

Answer 5

I have been suffering for most of you symptoms for several years. I am 65. I, just this last week, found out my main problem is inflammation. I can not take aspirin or nsaids so I thought I was up a creek. I then found out about "turmeric",( which is used to give mustard its color,) is one of the best anti-inflammatories you can get. Boy does it work well. My whole body no longer stings, burns and aches.
You can buy it at a health food store in capsule form and take as the package directs. I only just started taking it so I don't know how many other forms it comes in or their application.
As to the loose bowels, I have found "sun chlorella" to equalize them back to normal. It sure is nice not to have to race to the toilet only to find , when you get there, that you didn't make it.
I hope you find relief for your problems. I also hope you check out the inflammatory thing. your organs can not work properly while inflamed, and it plays hell with your nerves also.
My best to you'
Hope

Answer 6

I have been living happily with lupus (diagnosed) for 2 years. You might want to go take the quiz on webmd to see if you do have the symptoms for lupus. Have you had a normal blood test run? If you do have lupus it will show up in your blood. From what you have said it sounds like you have an autoimmune disease. Do you have a rheumatoligist?

Answer 7

Online is http://www.fibromyalgiatreatment.com/ - R. Paul St. Amand, MD

He has a different take on fibromyalgia.

Please read about it and him.

All I know about Depo Provera is that it switched me from low blood sugar to diabetes - in one shot.

Have you been tested for hyperinsulinemia? Some of your symptoms sound like mine, from before I was diabetic. Low blood sugar can do a number on you. There is some info on that condition at www.hufa.org.

Answer 8

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Answer 9

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Answer 10

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