My son was recently diagnosed with this and I was wondering if anyone else out there has children with this condition.
2006-06-15 09:08:16 · 4 answers · asked by beanietara 3 in Health ➔ Diseases & Conditions ➔ Other - Diseases
I know quite a bit about the condition, I was looking for others who have been through it either themselves or with thier kids.
I would like to compare experiences.
2006-06-20 19:08:55 · update #1
Thank you for the links.
2006-06-22 06:59:02 · update #2
My son was born with it. I had brothers whom we now believe had it. One of who died because he was born in 1949 & the doctors back then didn't know what it was. It can now be fixed with surgery. My son had two surgeries when he was a baby. He's almost 16 yrs old now and perfectly healthy. E-mail me?
2006-06-15 15:27:09 · answer #1 · answered by aunt_ki 2 · 0⤊ 0⤋
infrequent or painful passage of bowel movements, is one of the most common problems in pediatrics. Treating Hirschsprung's disease requires surgery to remove the affected bowel and then join the healthy bowel segments. There are three different approaches, each with a high rate of success. The choice depends on the overall health of the child and the training and experience of the surgeon. Sometimes a single surgical procedure is recommended to remove the aganglionic segment, then bring the healthy bowel down to the rectum, and join it to the rectal wall: this is called a "pull-through" operation. If an infant is too small or a child is critically ill, a temporary colostomy may be necessary prior to the pull-through. In a colostomy, the colon is brought out to the surface of the abdomen so that stool contents can be discharged into a special bag for disposal. Subsequent to the colostomy, the pull-through surgery can be planned. The colostomy opening can then be closed at the time of he pull-through, or, in some cases, at a third operation after it is clear that the pull-through is working.
For most children with Hirschsprung's disease, there are no long-term complications after successful surgery. A significant minority of children, though, are troubled with persistent constipation, encopresis (stool incontinence), or persistent enterocolitis.
2006-06-15 09:10:05 · answer #2 · answered by geritology 2 · 0⤊ 0⤋
My daughter has Short-Bowel (gut) Syndrome, but I have no experience with what your son has. Here is a link to a support group for Hirschsprung's Disease. I'm sure they will be more than willing to answer any questions that you may have. I hope this helps. :)
http://health.groups.yahoo.com/group/Hirschsprungs_Disease/?tab=s
2006-06-15 09:18:50 · answer #3 · answered by cattmeow2 2 · 0⤊ 0⤋
glyconutrients will help. i can put you in touch with a woman that
can tell about her son.
2006-06-25 05:12:39 · answer #4 · answered by Anonymous · 0⤊ 0⤋