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I have MS but don't seen to get very much help from anyone. Are we all here just to wither and die to be forgotten?

2007-09-17 07:32:57 · 13 answers · asked by maude 1 in Society & Culture Cultures & Groups People with Disabilities

13 answers

First you need to apply for disability with your doctor then other help will become availible to you for example if you want to work they will give you a ticket to work that you could use a a rehabilitation facility to assist you with a better education.

2007-09-17 07:56:51 · answer #1 · answered by wkemrer 3 · 2 0

People with multiple sclerosis can get social security benefits, and apply for foodstamps. Go to your local social security administration office.....Better yet...call that 1-800-772-1213 phone number and tell the operator that you need help in applying for social security by phone. That will start the ball rolling! You need to see some doctors, example neurologist to locate lesions in your brain (non-painful mri). Other tests will come after that, and call the ms chapter foundation in your neighborhood. MS does not have a cure, but there are many treatments to slow its symptoms down, there are many types of MS and you should find out what type you have and its progress. There is help out there and you can live a rich full life! I know, because Iv'e had MS about 25-years. I'm happy! You can be too!

2007-09-20 02:55:26 · answer #2 · answered by NISSI 6 · 0 0

Wow, you've had bad experiences haven't you?

MS is a recognized disability, no matter which type you have. It's also incurable so that makes it a bit more of a priority, major advantage. It is NOT fatal, if you take care of yourself, you can live a very long time.

Having said that, and not knowing exactly where you live, you need to apply for disability, SSI in the states, CPP in Canada or Provincial Disability, that's what it's there for, help for the disabled.

First, contact your local MS Clinic or MS Society, they will have all the information you need. MS is not a rare illness, there are thousands of other people just like you. There's medical care, self-help groups, peer groups, counseling, tons and tons of help tailored made for you.

All you have to do, is make a phone call, best of luck to you :)

2007-09-19 22:30:41 · answer #3 · answered by lilykdesign 5 · 0 0

I've been on ssdi for 33years. I was disabled by an accident and can't work. If you were working and became disabled, there is a disabled worker disability insurance that pays more than regular disability. Any one with any disability should get SSI, as it's for disabled persons with low or no incomes. It is the safety net and all people should apply. You have access to health care through Medicaid that you don't have to pay for, and any Council on aging will help you apply for these, And don't try any appeals without a Lawyer.specializing in SSDI. They get part of your back payments but they are very effective in getting your disability approved to begin with.

2007-09-19 17:51:40 · answer #4 · answered by redd headd 7 · 0 0

I have chronic pain and spinal stenosis. It took awhile for me to believe that I was eleigible for disability becasue I was young at the time, under 40, but I applied. The key, which an understanding lawyer gave me, was to have the doctors write additional support letters along with filling out the required forms. I recommend that because through that I was able to get Medicare and then MassHealth. And that led to PCAs who help me to be as independent as possible. They help me to be an advocate for others with disabilities. But start by making the government feel your pain and disability. The other thing is remember when filling out the forms that you are filling things out as how you are on your worst day not your best day. Good Luck

2007-09-19 14:52:42 · answer #5 · answered by kiripc 1 · 0 0

If you are disabled you can apply for SSI with the Social Security Office. I would recommend gathering up all the documentation that you have regarding your disability (tests done, doctor's reports, etc.) and have that ready for your appt. In your application be sure to specify how your disability impacts your life and your ability to function in your daily living. If you have already applied and were denied, you have the right to appeal.

And ALWAYS document everything, even phone conversations you have with a case manager.

2007-09-17 21:03:53 · answer #6 · answered by junebug 6 · 2 0

I've had Epilepsy my entire life. I'm considered disabled, even though I'm doing better.
I've gotten help through medi-caid / medi-care asst. There is also the local state help for us here Tenn-Care. Some state have similar set ups.
I've also gone through the pharmaceutical / drug companies for help getting my medications.
Depending on what your income is each years is how they base your costs.
I got all medications free during that time as I made under their limits. Ex:: With my Lamictal meds, I could make up to 45,000 a year before they'd say I made too much for help through them. Because I have kids and a husband to take care of. If I was alone the scale may be a little different. but is the same set up.

Have you gone through places like vocational rehab, or goodwill industries to try to get a job somewhere , as my friend with a similar problems, got set up in an apartment and a job through goodwill industries. They may also have some places you can contact.
Are there any support groups in your area for people with your situations. You can get helpful information that way as well.
You may want to go through a lawyer or someone like that to help you out .I went through someone when I tried to get help here, and he was able to get it for me without too much trouble. It's worth checking out.

2007-09-17 18:09:52 · answer #7 · answered by poetbjc64 5 · 1 0

Mostly you can get SSI through the Social Security administration....www.ssa.org

Then you ...if needed are able to get someone to come into your house for how ever many hours a month/week you are approved to help you with your laundry and housework..and other things you may need help with such as bathing..cooking...etc. If you are on disability..you would be on medicare and they would pay for it.

2007-09-17 18:33:15 · answer #8 · answered by Perennial Queen 6 · 2 0

It depends on what kind of help you need. Have you applied for social security benefits? Have you gone to the state rehabilitation services? Have you applied for food stamps? Have you applied for chore services?

2007-09-17 22:56:13 · answer #9 · answered by Anonymous · 1 0

a lady i know who works for disability said the key is to apply repeatedly and as often as they turn you down,and don't forget the circuit breaker

2007-09-17 19:58:05 · answer #10 · answered by Anonymous · 2 0

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