Her pediatrician said we'll have to consult with a neurosurgeon and discuss surgery to remove pieces of her skull before she is a year old, has anyone faced this before? What causes it and is this the only option? I know I should have asked the doctor but I was so stunned my mind went blank. She's overcome so much, she was born at 29 weeks and weighed 2lb 13oz and is now doing great only to be blindsided by a relatively rare condition that has nothing to do with her being early. Any ideas on how to help the husband cope too would be greatly appreciated.
2007-09-11 05:39:29 · 3 answers · asked by justwondering 5 in Pregnancy & Parenting ➔ Newborn & Baby
It's actually not very rare. It happens in one in about 2,000 babies and the surgery is pretty common now. My son had this, they don't know what causes it. We went to the Motts Childrens Hospital and they do about three or four of these surgeries a week. It's about a six hour surgery, a five day stay in the hospital, and three months until full recovery and all in all...one of the most stressful times of your life. But feel reassured that it is something that can be fixed, do as much research on it as possible, and if your child has to have surgery...look at pictures on the internet so that you know what to expect...and stay strong for your baby. She'll pick up on your feelings...stay strong and positive. And research, research, research. If it's the same thing my son had, it's called Craniosynostosis...go to CAPPSkids.org and click on the link for Cranio-
It's been almost a year since my sons surgery, his head is as tough as ever, he's as cute as ever, and his hair has grown over his scar. Good luck
2007-09-11 08:10:17 · answer #1 · answered by righteousbear 2 · 1⤊ 0⤋
My suggestion is lean on each other. This has been a very difficult 5 months for you but in the end it sounds like she is a tough cookie. Of course get another opinion, research, etc but stay positive. At least it sounds like there is a solution!! Good luck.
2007-09-11 05:44:37 · answer #2 · answered by echo 4 · 1⤊ 0⤋
Get a second opinion. Did they do an MRI? Anything other than poking the top of her head?
It jsut sounds a bit much to me. Not that it couldnt happen, just that he decided she needed surgery at an office visit.
2007-09-11 05:46:52 · answer #3 · answered by amosunknown 7 · 1⤊ 0⤋