I am reaching out to survivors and I need their friendships right now more than ever before. I'm 42 years old and was diagnosed with Vasculitis last week. Over the past week, I had seizure auras and yesterday I had a grand mal and ended up in the ER. He said that the stresses on my body caused by vasculitis and the steroids brought it on. On top of it, I have a biopsy tomorrow (06/06) and am honestly scared of the biopsy and the results. I also face a spinal tap soon to see if it spread into the Central Nervous System, a possible cause of my seizures lately. I have no outside friends, no transportation, and live five miles from two towns in the middle of nowhere. Am I courageous to do what has to be done in spite of fear, or am I a coward unable to face these surgeries and procedures alone? I've got a really positive attitude and am not a whiner or complainer, but I can't do this alone and need to make friends and talk to others who have gone before me.
2007-06-06 03:38:19 · 9 answers · asked by Raptor 4 in Family & Relationships ➔ Friends
I live in New England and although retired from my nursing by choice and now home with baby I learned a lot in my 13 years of hospice care. I am not saying that you need it but based on your question this is what I can offer you right now.
You are in no way a coward, don't forget that even if you had someone different to hold each hand and food during this whole process you are still one being and have to deal with this in your head and heart. Try not to be afraid of the discomfort of a spinal tap, they have come a long way and some say that you barely feel anything and worrying won't change a damn thing.
If you don't have the biopsy and spinal tap you won't know what you are really facing and the best thing for any adversary including illness is knowing more than your opponent. Get all the information that you can about your condition and what if anything you can do to improve it and make yourself more comfortable.
The only way to get through this is one step at a time.
2007-06-06 07:31:43 · answer #1 · answered by New England Babe 7 · 0⤊ 0⤋
I can not exactly relate, however, my daughter is currently receiving chemotherapy for her 2nd inoperable brain tumor.
She has an incurable disease of the Central Nervous System called Neurofibromatosis, and that is what caused the brain tumor.
She was diagnosed with her first in 1994 at age 5 and it left her legally blind and developmentally delayed and caused a seizure disorder. She received chemo for 3 years - and the tumor did reduce in size, but the damage was irreversible and after the chemo she went into remission.
Sadly, in April of 2006, she was diagnosed with ANOTHER cancerous brain tumor and is currently receiving chemo EVERY week for a total of 60 weeks and has completed 34 weeks.
She also has no friends - kids tend to shy away from her. because they do NOT know what to say or how to react.
I am her sole caretaker and would be happy to talk to you anytime you need a friend.
Good Luck to you - God Bless - and Keep in touch.
Lin_Harper@Sbcglobal.net
2007-06-06 03:50:50 · answer #2 · answered by Perfect_Brat 3 · 0⤊ 0⤋
Gosh, im sorry to hear that. But if you're a Christian which i am, you can just pray. Read a little Bible and even if this doesnt work out the way you want it to, know that God loves you no matter what. Sometimes all you need is a little faith.
Good Luck! :)
PS. If you go to a church and share your experiences, you can ask some of the members to pray for you, im sure it'll help.
2007-06-06 03:56:35 · answer #3 · answered by Laura 2 · 1⤊ 0⤋
Before I was wheeled into the biopsy room, I was so scared but when I closed my eyes and pray real hard, I was not a bit scared or alone. God will be with you. Just pray hard. Think of nothing else but God and keep praying to make you brave and not afraid, He will let you feel no pain. Believe me your prayers will be answered.
2007-06-06 04:02:59 · answer #4 · answered by greentea 3 · 1⤊ 0⤋
I am sorry I can't help you, other than I think you are really brave. Maybe at the hospital/centre where you are going, they can give you some advice about support groups/services for people with your condition/ situation. In case it helps, there are a few nurses and doctors in my family and they are all caring and good at their jobs, and would do what they could to help people get the best care and feel less anxious. I wish I could help you (hopefully there are some answers that can).
2007-06-06 03:50:04 · answer #5 · answered by Max 6 · 1⤊ 0⤋
I am really sorry to hear that. I would recommend you read
some books by Joel Osteen, the minister from Texas.
He has some good insights on life. I am a 52 year old twin
who would be possibly wiling to help you. Write me at
judebusdriver@yahoo.com. PS - My twin and I "broke up"
recently and I am lonely too, plus divorced.
2007-06-06 03:47:27 · answer #6 · answered by judy f 3 · 1⤊ 0⤋
Dear Brother
May God Bless You with health and well being Amen.
Dear, even Prophets have suffered with serious illness and it was a test on them by the Lord, to see whether they sustain and still remember Him and Thank Him.
So, I humbly advice you to remember the Almighty Lord, after all He has sent you to this world with such a great wisdom and knowledge inspite of the illness you possess.
I know, you are a strong believer of God. Keep remembering Him every moment of your life. Either of the two things shall happen, you will be relieved of your ailments by His Grace and you shall live longer a Blessed person with an utmost Degree of Piety. or You might meet your Lord as every one has to and still You shall meet him as a Humble and satisfied slave of God who sustained His Test of sufferings on you.
In both of the cases you have passed the Test.
Of course, My Earnest Prayers are that By the Grace of Almighty Allah the Ultimate Healer, you get healthy and live a Normal life Amen.
I would like to meet you in person, when you get healthy God Willing.
2007-06-06 06:01:45 · answer #7 · answered by mohammad a 5 · 1⤊ 0⤋
I have never had a biopsy, but I have had several spinal taps. I will be truthful it is nerve racking but not really painful. It feels a little weird, it's a feeling I have never forgotten, but it's not pain. The last one I had I didn't have anyone at the hospital with me, but I made it through because of a nurse took time out to just hold my hand the whole time. I know you are nervous but it is better to have the test so you will know what is going on with your body. Best of luck
2014-05-11 10:33:07 · answer #8 · answered by princess_riana 1 · 0⤊ 0⤋
i'm sorry to hear that! i'm praying for you!
2007-06-06 08:00:33 · answer #9 · answered by ? 3 · 1⤊ 0⤋