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Milestones
Milestones aren't typical when you have a premature baby. They may be delayed or come as result of tremendous courage and effort. For parents, their baby's milestones are often a reminder of how far their child has come since their early birth.
Our babies' milestones can be bittersweet and wildly joyful at the same time. Often they are also milestones for us, as parents.
Here are some postings from the Preemie-L list as parents discuss some of the milestones that their growing babies and children have recently achieved ....
Rolling over
I have to admit on our family calendar I keep track of such things...like the first time our son laughed, the day the 02 left, his coming home from the hospital, and one of may favorite milestones...the first time he rolled over which is one year ago tomorrow.
Our son has torticolis and has some stiffness on the right side which has benefited from his PT. We of course thought when he flipped over due to his stiffness that he had rolled over and waited for the next opportunity. When it wasn't happening we realized it never truly happened. We started working with him regularly and the day he started rolling over he got so excited (you could almost see the proverbial lightbulb go on) he kept doing it again and again...even in his crib, over and over.... It will always bring me a smile of remembrance.
Viviana (mom to 33 weeker Zachary, BPD...)
3rd birthday
I remember thinking age 3 would never come. I also feared what 3 would bring. The doctors gave us such a grim outlook in the NICU.
Well, Joseph celebrated his 3rd birthday on July 8th. With that brought such contentment for me. He is now a graduate of EI and of his Special Ed classes. He is no longer behind in any area and AMAZINGLY is way ahead in speech. One year ago he was testing at the level of an infant in speech (11 mos) and now he is testing 1 to 2 years ahead of his birth age.
He is bright as a tack and remembers things that blow us away. This being the same boy who at 5 weeks old was predicted to have a future of retardation, CP, deafness, yada yada yada... His NICU stay was marked by profound episodes of severe hypoxemia and also a small IVH which is what these docs based their predictions on.
Physically he is very well advanced (more amazement because he didn't sit without support until almost his first birthday). He is also growing like a little out of control weed ;) He is 36.5lbs and 38 1/4in tall.
So my advice to the new members to this journey. Take the predictions with a grain of salt because nobody ever knows for sure.
MIRACLES happen with this boy daily!!!
Keriann Mom to Krissy 13 -FT, Jeffrey 9 -FT, Donnie 6 -34 weeker, Joseph 3 -31 weeker SEVERE PPHN (almost ECMO), RDS, IVH, PDA, numerous transfusions, jaundice, etc.
Before you were conceived, I wanted you
Before you were born, I loved you
Before you were a minute old, I would have died for you.
Vincent's day out
My frail little 26 week baby is now almost 8, so there've been many milestones. He has mild CP so many of the milestones have involved the kind of physical achievement that most babies and children take in their stride, literally.
A few weeks ago we took a friend, visiting from Spain, on a tour of the Yarra Valley wineries (a goumet region 2 hours out of Melbourne, Victoria where we live). We picked a nice restaurant and had a very relaxing day. Anyone who goes to restaurant with a child with mild CP and has a relaxing time has reached a milestone that was unimaginable to us in the NICU :)
Vincent was delighted with it all. He picked the table, ordered his own food after extensive consultation with the menu, discussed his choices with the waitress - with a bit of flirting thrown in - managed all the cutlery, glasses etc on his own, took himself to the bathroom when he wanted to go (after excusing himself), enjoyed the meal, suggested we go "somewhere else for coffee and dessert" and generally had a very sophisticated time of it.
I thought my life was over when Vincent was born, and we were told about his brain bleeds. We spent all the first year sad beyond words, and living in dread of what time would reveal about the extent of his brain damage. So much has happened since that time, and the milestones have been legion.
Even until recently I thought it would be plastic plates and MacDonalds for another decade, and that he would always need help. I'm starting to see glimpses of the man Vincent will become and it's awesome. I believe he'll be able to manage the CP and still live life to the full. There's something in him that's so strong, so radiant and so joyful. I used to think it was his prematurity and the hardships of his life that had given him this.
These days I can recognize that it's just Vincent - the force of life that he's always been from the movement he was conceived. Realizing that is a milestone for me.
Anne, mother of Jessica (f/t now 10 and Vincent 26 weeks now 7, grade 4/grade2 IVH) Melbourne, Australia
Growth milestone
Seeing John Henry at the pool this summer, I realized he's not skinny/small anymore! He's edging toward the 75% for height and weight but it wasn't so noticeable among his schoolmates. Of course, he goes to school with quite a few children a year older than his adjusted age in his grade and some very large children so he's still smaller than many of them, but I could really see the difference when he was hanging out with a bunch of same aged boys at the pool. He's definitely not the skinny one anymore, still slender, but much sturdier looking. At the pool we saw a girl he liked in PreK, who used to be at least a head taller than he was, and now she and he are quite similar in height.
Suzanne (mom to John Henry, 24 weeks now 7 and at least a hefty 56.5 pounds)
Potty trained!!!
For those who don't know me too well, I am Tracy mom to Stephen. He was a 33 weeker due to an abruption and had (among other things) a grade three IVH. For those of you who do know me, you know I have long moaned about him still wearing diapers (he is now 6 years old) well here is the big news of the summer.... STEPHEN IS FINALLY POTTY TRAINED!!! He needs reminding, but he is in underpants during the day and finally has it down! Horray horray!!!
Hugs, Tracy mom to Stephen 33 weeker now 6, mild MR,CP, severe ADHD, SID, and probable autism. and wonderful and HEALTHY!
Kindergarten
Kahlila will start kindergarten in a week. I think that she is pretty excited, although she will be sad to leave friends from her pre-school, and she is probably a little nervous as well. She is also finally completely toilet trained (just in time for kindergarten!). :-) The book "Getting to Dry" was very helpful for us to help her stay dry overnight, which she is now doing on her own, with rare accidents. Her transition to kindergarten has inspired me to evaluate my priorities and stretch the boundaries of my work schedule. So, DH and I will alternate coming home early from work in order to meet her bus and have her home in the afternoons after school (we will by necessity bring a little work home with us). I am very excited about this prospect.
Someone had mentioned that they had been on this list for 4 years. Amazingly, so have I (just that the time has gone by so fast). I don't know where I would be, emotionally, without you.
With much love, Mary, mom of Khalila, former 24 weeker
Feeding milestones
Since feeding is Charlie's main preemie issue (or was, until his liver cancer was diagnosed a month ago -- I guess that trumps the rest of them!), most of the milestones we get excited about revolve around food. Last week, he accomplished a huge one, even in the throes of chemotherapy -- he ate an entire Oreo cookie! At almost four years of age, it was the first cookie he has ever eaten, and the first time he has ever tried anything like the sticky creme in the middle, a nearly impossible texture for him. Such a small, "normal kid" thing, but such a big deal to us...
I guess Jack had a milestone last night, too -- he had some rice cereal for the first time last night, and handled it masterfully. It's not so much a milestone for him as it is for us, though -- we've had no reason to anticipate any feeding problems with him, aside from some mild reflux and difficulty latching on. But it's a tremendously healing experience to wave that little spoon in the vicinity of his mouth and have him snap it up, while beaming with delight.
-- Terese, mom to 24-weeker Charlie (10/10/98), 31-weeker Jack (1/13/02), and FT Liam (10/17/95), newly minted kindergarten graduate!
Matty's Milestone
I was just thinking the other day, how since Matty's last visit to the NICU - he has seemed more settled to me. I was wondering if it was an artifact of my own expectation, or it this was truly related to him having gotten the answers he was looking for. And then my answer came -- (hence his milestone -- ah, MY milestone too!) Matty was looking at some more of his NICU photos and came to one of me holding him and he has his hand near his mouth...and he said "look mom, I'm blowing you a kiss when I was in NICU." This is the first time in his 3 1/2 years that he has ever attributed any positive comment about his NICU stay, or photos. In the past his comments have all been about -- "and you weren't there" or about his isolette being "scary." What a milestone! Thank God for receptive NICU nurses who've addressed the needs of one of their many graduates -- Thank God for healing!
:) Priscilla Hernandez Hacker, Ph.D. (Mom to Matty 26 1/2 wkr, now 3 1/2; and f/t Zachary 10 1/2)
2007-03-24 18:52:42
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