The Model Who Smells Like Dead Fish
TrimethylaMinuria Can Ruin Your Childhood, Career and Social Life
Aug. 9, 2006 — - Camille has beauty and brains.
She's a former model and a Phi Beta Kappa with a master's in education. There's a part of her, though, that's not so perfect.
She smells like spoiled fish.
Camille says when she taught, students wouldn't come near her.
"They would say things like, 'Ew, this classroom stinks like dead fish.' They would call me 'Miss Fishy.'"
She asked that her last name not be used because telling her story was difficult for her. Camille described the odor as "a very heavy, intense, dark, deep smell."
"I didn't know why I was emitting such a strong odor. I mean, it can fill an entire room. Recently, it filled an auditorium," Camille said.
Her job as a teacher became excruciating.
"I was so focused on 'Do I smell? Do I smell? Are they saying things? Are they whispering? Are they laughing about me?'"
Smell Can't Be Covered
No matter what she does, Camille says she can't cover the smell. Neither showers nor perfume helps.
Camille has a medical mystery that she's struggled to understand for nearly 30 years.
It took her self-esteem and was taking her profession. She says she was often in a state of panic.
"I would open windows. I would leave the door open. I'd put fans in my classrooms. I mean the whole nine yards," Camille said.
She also felt a tremendous amount of pain. "I would cry all the way home from school. All the time."
Her childhood was no easier because Camille's ordeal began in first grade.
"One of my teachers asked me if I was showering every day. From that point on, she kind of sat me in the corner of the classroom. Kids would call me a freak. They would tell me I smelled like horse manure [and] dead fish."
We're instinctively programmed to stay away from the smell of dead fish because it helps keep us from eating spoiled or dangerous food.
That unpleasant odor is what Camille smelled like. Even worse, she couldn't detect the smell on herself so she never knew when it was out of control.
It made for a humiliating childhood.
"I had an incident in middle school where a bunch of kids cornered me in the cafeteria and threw tuna fish sandwiches at me," Camille said.
Rejected by the Adult World
When Camille got older, the insults continued. One of her first jobs was as a teller in a credit union.
"My supervisor would come by and spray my area with perfume, Lysol, and they put me in the drive-through section, which is separate from the rest of the teller area," Camille said.
Her social life was just as painful.
She dated on and off. If a man got too close to her, she says she felt like she had to let him go because he deserved better than her.
"I always thought, 'I'm a freak.' You start to see yourself as not quite human." Her life became more and more isolated -- she went out only when absolutely necessary.
Solving the Smell
She went to doctor after doctor, including specialists like internists and gynecologists. No one could help.
Just months after Camille started her dream teaching job, she quit under the strain. She thought about suicide.
"You feel incredibly helpless and hopeless. Tired of being ridiculed and feeling like a freak. So I'm going to take my life."
Fortunately, while in a deep depression, Camille found her answer on the Internet.
"All I did was type in 'fishy body odor,' then this one thing came up, trimethylaMinuria. They're saying that this chemical, trimethylamine, comes out of your body, and smells like dead fish."
Another computer click brought up the TMAU -- an acronym for the disorder -- Foundation.
Sandy, the organization's founder, also suffered from the disorder, and she didn't know it for years.
In fact, she remembers once calling the maintenance man to her New York City apartment to check her bathroom.
"It just smelled horribly. I thought maybe there was some kind of a problem with the sewer," Sandy said.
It wasn't the sewer, it was Sandy.
She didn't put two and two together until a co-worker explained why everyone was complaining about the bad smell in the office.
Sandy says her co-worker told her, "Sandy, I have to tell you that it's coming from you."
Her search for that elusive TMAU diagnosis took years and her life savings.
Sandy says she spent $27,000. She says she even had "eight different unnecessary and unwarranted surgeries."
Finally, a dentist suspected Sandy had TMAU, based on the smell of her breath, and sent her to Dr. George Preti of Philadelphia's Monell Chemical Senses Institute.
Preti is an expert in the rare genetic disorder, with only 600 documented patients in the world.
In these people, a faulty enzyme causes the buildup of a chemical called TMA, which smells like dead fish.
"It's a volatile chemical. It will come out through the lungs. It'll get into your sweat, your spit and other body secretions. So that's how it imparts its odor to the individual who has this disorder," Preti said.
Just about every food available can lead to the buildup of TMA: eggs, meats, beans, milk, cheese, bread and fish.
"The odor will vary from time to time in accordance with the patient's diet," Preti said.
Diagnosing Camille
To diagnose Camille, Preti performed tests to check her TMA levels, which were sky high.
Camille is an extreme case. Her diet is now restricted to foods that can't be converted to TMA to try to minimize the odor.
That leaves her cupboards and refrigerator almost bare.
She has developed other habits keep the odor at bay. She takes chlorophyll tablets every day. She showers often.
"I wash with several different products, and I scrub very hard. I use two different kinds of deodorant and a lot of perfume. Before I actually leave the house, I spray all of my clothes with Febreze just all up and down, and I also spray my feet and my socks with the deodorant for my feet," Camille said.
Finding Out You're Not Alone
In her whole life, she had never met anyone like herself. That was until "Medical Mysteries" introduced her to Sandy.
Sandy showed Camille all the "useless medications" she had been prescribed over the years for conditions she didn't have.
Sandy says she hopes her TMAU Foundation will help fund research for the orphaned disorder.
As for Camille, she wants doctors and the public to know about TMAU, and to devise a school curriculum to help children who are "different" not be ridiculed as she once was.
2007-03-20 14:17:13
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answer #1
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answered by Anonymous
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What part of you smells?? I'll try to cover all the basis without more detail:
Perhaps you're just sweating excessively. I am the same way. Deoderants and over-the-counter anti-perspirants don't really work for me. I sweat more than most people. It's more common than you think. Go to the pharmacy and ask for "Drysol" at the pharmacy counter. It comes in mild and strong. Apply a nice slathering. It'll work.
Eating once a day is probably not helping. Without food, you're not only at risk for other health probs, but you're breath would be a little stagnant. It's healthiest to eat several small meals throughout the day. If the smell is breathe-related, find a sugarless gum you like and chew it throughout the day, but especially after eating. Also, try and stay away from spices. Avid curry or garlic eaters tend to secrete the spices from their pores.
Get Gain laundry detergent. It smells amazing. It's stronger than most detergents. Use a full cap in a smaller, rather than larger, load. It sort of just smells really fresh. Be sure to use a really strong smelling dryer sheet too.
Last suggestion: have you considered that the people telling you smell are just full of crap. Like, perhaps they just realize you are self conscious about it and are just being mean. Don't surround yourself with negative people who don't have your best interests at heart. They are not worth your time.
Good luck. Hopefully these suggestions will help.
2007-03-20 21:19:16
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answer #2
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answered by K 5
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When people talk about "bad body odor,” the source is usually the mouth, underarms, genital area, or feet. Sweat itself is odorless, but a bad "sweaty smell" can develop after sweat reacts with bacteria on skin. Bad breath, or halitosis, is usually the result of salivary juices acting on particles of leftover food trapped in the mouth.
Most of these odors are easily avoided by practicing good hygiene: bathing daily, using shampoo and soap; brushing your teeth twice per day, flossing and using mouthwash; and laundering clothes regularly. Certain foods such as garlic, however, as well as onions, coffee, tobacco and alcohol, can produce odors that linger despite brushing and even seep through your skin! Many people find it difficult to be near heavy garlic eaters. An easy solution is to stop eating garlic for a week and see if the problem improves (ask an honest friend!).
2007-03-20 21:12:22
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answer #3
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answered by AMBER D 6
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If all you say is really truthful then your parents should have you in a doctors' office rather than you seeking help on a website.
Body odour is common to all people but, unfortunately, the amount of odour varies per individual, race, enviorment and even diet.
Hiding odours with colognes and lotions does nothing to cure the situation, should a cure even be possible.
Body odour is caused and noticed because of oils in the body that excrete thru pores of the skin and, when exposed to air, it soon becomes pungant of odour if the oil content has too much fat in it and insufficient salt (saline) level.
I would suggest the most you can do for yourself right away is to change your diet by eliminating fat foods drastically as well as foods that are cooked in fat. I would also suggest you exercise extensively to increase sweating as sweating is a self cleansing agent of the body.
If you refuse to go to school because of this, you have another problem as well. Go to school regardless.
Meanwhile, you really must see a doctor in order for your situation to be identified and cared for properly. There is no alternative
2007-03-20 21:39:45
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answer #4
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answered by farplaces 5
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There is a disease, I saw it on either 2020 or Dateline. This girl went for years before she found out what she had and what to do about it. Search their websites and maybe you can find the name of the disease, it was a very long name. Or ask your doctor about a rare disease or disorder that causes you to smell even though you are clean. He should know or know how to look it up in the medical journal.
2007-03-20 21:11:49
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answer #5
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answered by doris_38133 5
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If it's body odour, look at what you eat because some things make your BO smell worse (garlic, onions etc)
Maybe those other people know it makes you upset to say that about you and just say it to stir you up...ask someone who you trust like a parent or close friend to tell you the truth.
If they say it is a problem, visit your doctor
2007-03-20 21:14:06
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answer #6
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answered by fitMel 3
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Eat more meals. Don't be anorexic. lol. Um, I would suggest using a nice smelling perfume. Works. If it's your hair, it wouldn't hurt to spray just a little. Everyone will notice if your hair smells good. Maybe it's your period...or your breath.
2007-03-20 21:11:18
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answer #7
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answered by Anonymous
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there are disorders wherein bad smells are expelled through the pores. if you are concerned about this you should speak with your doctor. also you may want to think about a healthier diet, diet has a lot to do with your body's performance. that includes smells.
if you're a guy... why are you posting in women's health?
2007-03-20 21:12:42
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answer #8
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answered by kerri c 5
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Eat more. Perfume. What parts smell?
2007-03-20 21:11:55
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answer #9
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answered by Anonymous
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what part of you smells
2007-03-20 21:10:07
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answer #10
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answered by gary g 1
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go talk to a doctor
2007-03-20 22:20:56
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answer #11
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answered by Anonymous
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