please help?

Question

i am going in for a operation on my endometriosis next thursday and i have asked them to give me a historectomy aswell as i cant cope with my menstral cycle but they don't seem to be taking me very seriously what can i do to persuade them,

sorry people i forgot to mention that i am 25 i have one child and after i had her i was told to avoid conceving again

natalie as i said i was told i was to avoid conceivingh again so there is no way i could contemplate any more kids but thanks for answering i ahd a very hard time with my daughters pregnancy i nearly lost here they told me it was like an allergic reaction to pregnancy

Answer 1

Hi there Sally, My name is Sally to. I suffered from endometriosis myself. It was hell I know. Periods were all messed up. LONG and HARD. I would curl up like a ball and cry because it hurt so bad. I had two Laperoskapys, was on a steroid I cant remember the name but that was for 6 months and I could not have sex with my husband with out it hurting me. I prayed and begged the doctor to give me a hysterectomy also. When I was first diagnosed with it I was 25 just after I had my first child. They didn't want to do anything until I tried all my options. I even tried staying on Birth control for periods of time. I finely got my hysterectomy after 6 years fighting with my doctor. When I woke up from the anesthesia he apologized to me saying that It was really bad and that he should have done something sooner.

It might take a second opinion for you to have this done or give you more options. I would suggest going to a female GYN. Good Luck!!!!!!!

Answer 2

An hysterectomy is a big operation, and if you are young and have not had children yet then it is unlikely they will do it, not without some serious counselling first.

If you have had your children and are over say 35 or 40 and therefore unlikely to want any more, then I don't see what their problem is.

If it is the latter then perhaps you could take your partner or a friend with you to help push your case, and put your request in writing, telling them you cannot bear to go on throughout the rest of your life with the pain and heaviness of your cycle.

Even if you are young and have no children, it is your body at the end of the day and you have the right to make decisions about it. Just make sure that choice is right, because an hysterectomy is so very final, there really is no going back.

Sorry I can't think of anything else to suggest right now.

EDIT: As you have a child, and have been told not to have any more then I would seriously push for it to be done. If you are not happy, swap your doctor. We pay them, and if they don't satisfy our wishes then we are more than entitled to find another.

The only thing I can think of regarding reasons why they may not be up for doing the op is that you would have to (probably) have hormones for certainy the next 20 years or so as you would no longer be producing them yourself. Lack of balanced hormones can cause mood swings and other problems.

I would ask your doctor to explain *exactly* why they won't do it, and if this is the reason then you should be entitled to a full explanation of the consequences of either no hormones or being on hormone treatment. Otherwise, how can they expect you to make an informed decision?

If you still decide this is what you want and they refuse then go else where if possible. Or threaten to stay put in their office until they agree to it! And take a friend/mum/partner for moral support and to back you up :)

Just remember that it is a big (and final) op, and takes a few weeks to recover from too.

CG.

Answer 3

I have had the same problem before and I really do sympathise with you.I had a hysterectomy (although not because of the endometriosis) If you don't have children I personally would urge you not to opt to have this major surgery. I have children (and don't really want any more) but I still look back on the operation and wish there could have been another way. Please think really hard about this. Once you have had your womb removed there is no going back. They don't just take away your womb they take away your choice to have more children (whether you want them or not). See what happens after this op on Thursday. Maybe your menstral cycle will ease up and be more bareable. I hope it goes well. Just to add they can remove the womb and leave the ovaries so h.r.t is not always necessary.

Answer 4

A hysterectomy is a major operation which will mean you are not allowed to even lift a kettle or iron for about 6 weeks (to avoid internal scar tissue or adhesions forming), plus, you will have to have HRT if you don't want all the side effects of an early menopause. Trust the doctors - they can probably sort out your menstrual cycle with something like Deprovera (which stops your periods) Ask your GP or surgeon to go though the pros and cons of all possible options with you.

Answer 5

Just explain too them that you have no future plans to have anympore children not just because you was asked to stop convicing but you palnned to have only one in the first place (even if this is a lie). Also menbtion that you cant cope with the menstral cycle, say how it is affecting you and how stressed you may be getting over it

good luck

Answer 6

Hi, I had this problem as well i couldn't get the NHS to listen to me about wanting a hysterectomy I ended up having it done private, luckily hubby's health insurance payed out... If you are serious about wanting the op you should make it very clear to them that it is what you want. good luck with it all i hope it all works out for you...
By the way it was the best thing i ever did and would choose to do it all over again, i am 37 by the way... and i was back to work as a chef after 6 weeks...

Answer 7

Is this your first operation? Are they doing a laporoscopy? While in there, they may discover that your endometriosis is not in an area that would be affected by a hysterectomy. The level of pain you are experiencing is not related to the amount of endometriosis you have. Some women have horrible pain w/a small amount of endo, and vice/versa. Also, please keep in mind that a hysterectomy may or may not cure your symptoms.

Answer 8

They will not give you a hysterectomy jus because you cant cope with your cycle.
Also the fact that you are 25. You could change your mind regarding children in a few years and thats why they wont too.
A lot of people have trouble with their cycles due to endometriosis, so what would be the point of having surgery to be rid of your endometriosis if you are gonna have a hysterectomy?
Your cycles will more than likely improve once you have recovered from surgery., im assuming that is the point of your surgery, and if it is, there would be no point giving you a hysterectomy.
A lot of people have trouble with their cycles, if we all requested hysterectomies because of troubled cycles, the NHS would be in dire straights.

Answer 9

I suffered badly with my menstral cycle during my teens/mid 20's, making me violently sick and in ALOT of severe pain. Like you I was diagnosed with endometriosis, but mine was treated with a course of hormone injections, inserted into my tummy, by my G.P.
Don't despair. You will feel better at the end of your treatment. I don't know how old you are, but please reconsider, especially if you are young.
You may want a family in the future. And taking such drastic measures, cannot be reversed.
Think carefully about your decisions. Maybe your doctors are doing them for you??

Answer 10

My heart goes out to you.I too had the same problem.I was 32 yrs old and they took my uterus out and one ovary.It depends on your age and how many kids you have before the will do a hysterectomy.You might want to get a second opinion before you have one because it will throw you into menopause unless you take hormone replacement therapy.But you can only take the for a short time(five years)then you have to stop taking them.But as soon as you do you well go though menopause.So make sure this is what you want to do before it is done.