Have you been told you had MS,only to find you had Lyme's? Please tell me your story. Thank you
2007-03-19 11:16:10 · 5 answers · asked by thirsty mind 6 in Politics & Government ➔ Other - Politics & Government
Well, this is exactly the position I find myself in right now. I've been under the impression for the past year and a half that I have MS. I've been on Copaxone for over a year. During that time, since I've been "distracting" (for lack of a better term) my immune system from fighting the Lyme, more Lyme symptoms have been coming out, not just MS symptoms. Putting all the symptoms together led us to seek testing for Lyme.
The only exposure I could have had to Lyme was either as a child, or when I was in college, both quite a while past. Even my potential college exposure was at least 15 years ago. Nonetheless, I still tested positive to Lyme IgM (and equivocal to IgG) using Western Blot testing.
I get to start my own high-dose antibiotic therapy this Wednesday. I get a stint in my chest into which I can self-administer my medication.
The great question, of course, is whether or not I actually have underlying MS. I guess that's a lets-wait-and-see kinda thing. I get to ask the doctors on Wednesday. I'm also curious about what will happen to my Copaxone use. Oh well.
If you're interested, I'll be posting updates on my blog at http://blog.steinvillage.net.
CJ
2007-03-19 14:53:20 · answer #1 · answered by CJ 4 · 1⤊ 0⤋
My son has Lyme disease and has been dealing with it for 10 years. When he first started having symptoms, he went to doctor after doctor trying to find out what was wrong. One of the things mentioned was MS. He did a LOT of study on every neurological disease he could get his hands on. He had even been tested once for Lyme disease - that came back negative. He felt that many of his symptoms lead to Lyme disease however.
He literally thought he was going crazy. Then he found a clinic in Southern New Jersey run by a doctor who had the disease for 20 years. My son went there and finally, after TWO MORE tests, they were able to diagnose it. It is a very tricky and very deadly disease. Fortunately, he was place immediately on high doses of antibiotics and stayed on them for over a year before he was stabilized.
He has only had 2 or 3 flare ups in 10 years. When that happens, he goes right back on the medication.
Good luck to you. Take care of yourself and take the medication when you need it. It can be controlled successfully but can be deadly if ignored.
2007-03-19 11:42:03 · answer #2 · answered by Anonymous · 2⤊ 0⤋
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2016-05-14 15:08:00 · answer #3 · answered by Anonymous · 0⤊ 0⤋
Ouch. Not sure which i'd rather have. MS is nasty but Lyme's is really bad. "Lyme's is the disease for the man who wants to experience everything." as Bill Bryson described it. I hope you don't have either.
2007-03-19 11:20:41 · answer #4 · answered by jezza 3 · 0⤊ 0⤋
no, but I would like to hear yours
2007-03-19 11:23:21 · answer #5 · answered by Anonymous · 0⤊ 0⤋