I had my uterus removed in 2001 because i had endometriosis and scar tissues bad. I had painful periods, heavy bleeding, and painful sex. At first I had a laparoscopy done and within 2 months i had the surgery. My doctor said she didnt want to take out my ovaries because i was too young (21). I had endometriosis all over my adominal wall , matterfact my uterus was stuck to my adominal wall alone with my bladder. Now it been 6 years and i feel like my condition is getting back worse. Do you think i need another scope to clean up my pelvic area? Also i think those monthly cyst and the endo have beaten up my ovaries, because my sexual drive is not there anymore.Please help me i dont think my new dr. understands where iam coming from. He keeps giving me birth controls.
2007-02-20 15:30:11 · 6 answers · asked by Tillylace 2 in Health ➔ Women's Health
If your doctor did not truly excise (see http://www.endometriosistreatment.org for info on what excision is and why it is superior in terms of surgical treatment) all disease from all locations, then he or she simply superficially removed some of it from some locations, leaving active disease behind to cause symptoms and continue to thrive. There are many true Endo specialists out there who can offer definitive help, instead of superficial surgeries, medical suppression and unnecessary hysterectomies (hysterectomy is NOT a cure for Endometriosis nor is oophorectomy - look up aromatase enzyme information as it relates to Endo and you'll understand why). I do feel a consult followed by a definitive surgery with a specialist would be your best bet. Good luck and feel better.
2007-02-22 05:27:01 · answer #1 · answered by Endo 6 · 0⤊ 0⤋
I strongly believe that endo can spread. As the other poster said each case is different. This is also one reason why there was a big debate among some of the top endometriosis experts about whether or not endometriosis was a systemic disease and I strongly believe that it is especially after what it's done to me in the last 5 years. Removing the ovaries will not stop the endometriosis from being a problem.
I would recommend finding another dr who has more experience with treating this disease. It sounds to me like your dr is not that experienced with treating it.
As for another scope, yes, that's possible especially now after 6 years.
Here's a wonderful site that can give you some excellent resources about endometriosis as well: http://www.endocenter.org
The other poster makes a good point about having a sonogram to check for things such as ovarian cysts because if big enough these too can cause a lot of pain.
2007-02-20 22:36:53 · answer #2 · answered by sokokl 7 · 0⤊ 0⤋
Yes Endo can spread. Right now the only "cure" they have for Endo is a total hystertomy. I found out I have Endo right after I turned 22 and none of my doctors here would take it all out, because of my age. So I have done every under the sun. The best results I had were w/ Lupron injections for 6 months and then I switched over the to Depo shot and it really kept my system surpress and I felt great. I hadn't felt that good in years. I think it's time to talk to you doctor again, and if you feel you can get through to him then maybe it's time to look for a new one. I know I went 5 doctors before I found one that really was in it for me. I still see him. He understands that when I call there is a problem.
Good Luck
2007-02-22 03:29:09 · answer #3 · answered by gethelp9 3 · 0⤊ 0⤋
I would like to start off by saying that my mother and I both have endometreosis, so my opinions are from experience, but still just that opinions. My mom had her uterus removed and one of her ovaries. This solved her problems, I have my uterus, and I just had my second laparoscopy, this helps my problems. This disease is unfortunately different for everyone. I do believe that you need to find a new Dr. If you live in the southern California area, I have a GREAT one. You might want to ask your Dr. to do a diagnostic vaginal ultrasound. He should be able to see any growth this way to better help you figure out what is going on. Also, if your Dr. won't listen to you, then you need to find a new one. Remember, YOU are the patient, he is there to help you with your problems, and if he is not doing this, then you need to move on. I hope that you find all of the answers that you are looking for, and if you need anything else please feel free to email me. I might not have the answer that you are looking for, but a shoulder to lean on that has been in your position is always nice.
2007-02-20 15:46:48 · answer #4 · answered by Anonymous · 0⤊ 0⤋
After having gone thru 5 laparoscopys done and removal of my tubes and right ovary I also had stage 4 endo I did lupron for 6 mnths and then went back on birth control my symptoms always returned w/the birth control pills. I would switch Dr's asap! I also had huge cysts and after doing IVF I had my kids on Christmas day 2005 and in May had my hysterctomy I feel 100% better. Hugs to you I know what you are going thru
2007-02-22 15:20:20 · answer #5 · answered by misskitty32003 2 · 0⤊ 0⤋
You really need to read "Endometriosis Bible & Violet Protocol" by Zoe Brown (also available in electronic format here: http://www.endometriosisbible.info ). It's about how to eradicate endometriosis disease forever. It worked for me, you will see results in only a matter of weeks. Good Luck!
2014-09-12 02:09:39 · answer #6 · answered by Anonymous · 0⤊ 0⤋