would someone to plz let me know if after laparscopy surgery for endometriosis if it always came back?

Question

i am 20 years old and just found out 2weeks ago that i have endo. i immediatly had surgery b/c of a cyst on my right ovary and endo on the back of my uterus w/ little blotches here and there. (that was lasered off) i have been doing research now b/c i had no clue what endo was and was shocked to hear i had a cyst>let alone endo... my question is has anyone not had a reoccurance since surgery? i am very worried now just hopeing i dont get this again> please help!!!

Answer 1

Re: the above - Endometriosis is not a psychosomatic disorder, nor is it caused by "emotions." It is a real disease caused by real hereditary factors, real immune dysfunction, real environmental toxicants, and real gene dysregulation. To suggest otherwise does an incredible disservice to the 89 million women and girls struggling with the disease around the world.

It is also not something that can be "prevented" as yet (though certain lifestyle and nutrition changes may help some of the lesser symptoms), because researchers still don't know the absolute cause of all Endo in all women - and there is still no definitive cure (the nonsensical "orgasm and tampon" theory deserves no credible mention herein in terms of prevention). Not hysterectomy with or without oopherectomy and/or salpingectomy, not pregnancy, not medical suppression, not menopause, not surgery.

Endometriosis doesn't "come back" after laser vaporization, ablation, cauterization, fulguration or any other superficial form of removal including Harmonic scalpel or other method. It can't "come back," because *it was never truly removed* in the first place. Only at the hands of a true Endo expert who can meticulously, surgically *excise* all disease from all locations ("all" meaning "all" - as bowels, bladders, ureters, nerves, kidneys, diaphragm, and any place it happens to be) can a patient expect the rate of recurrence to be slim to none for the long term. Most Endo specialists (see http://www.centerforendo.com, http://www.endometriosistreatment.org, and http://www.endoexcision.com for true excisionists) have been using excision as the sole method of treatment for decades and have reproducible data showing the rates of recurrence over those decades, in thousands of patients, to be right around 10% - versus "regular" ob/gyn surgeons who "get what they can" and then suppress their patients with Lupron or other meds, where the recurrence rates are greater than 60% within the very first year.

Do not waste your time with doctors who do not understand Endometriosis or listen to those who are clearly uninformed. This disease has the potential to negatively impact every aspect of your life, and it must be dealt with effectively in a timely fashion. Meds, repeat surgeries, unnecessary hysterectomies, induced menopause, prescribed pregnancies and the other ilk often used as treatments by the general gyn community will only serve to further prolong your pain and continued symptoms.

Visit the sites above to learn more about excision as the most effective technique and visit http://www.endocenter.org/pdf/2006ScreeningEducationKit.pdf to learn accurate info about the disease, including the Aromatase enzyme, which is responsible for persistent disease after hysterectomy and/or removal of the ovaries, and how to get help. Also suggest http://health.groups.yahoo.com/group/erc and http://groups.yahoo.com/group/EndoDocs for info and support from others as well.

Good luck and don't waste any time getting the assistance you need and deserve.

Answer 2

I have had my endo removed surgically once every two years for the past ten years. My doc finally said that I needed a hysterectomy - at 36. I tried birth control pills and it didn't help. I have never been able to get pregnant and the thought of having a hysterectomy was depressing at my age. My suggestion is that if the endo isn't bothering you - like if you aren't experiencing any pain and you're not trying to get pregnant - then let it go. Pregnancy is a cure for endo during pregnancy - but it can recur after menstruation begins again. Good luck, at your age it seems like this might be something you have to keep your eye on.

Answer 3

It's possible but please don't worry about it. I've had it done as well 5 years ago and have been fine since, and my endo was at stage 4 and I had some bad cysts too. Some doctors will want to put you on depo provera afterwards to prevent it from returning. The depo made me bleed all the time so I never went for another shot. My life has been better since and although it took a few months for me to feel all the benefits, most of the pain is gone. Just be aware of your body and communicate with your doctor. At least you already know what could be wrong. I had pelvic pain for a long time before a doctor suggested I could have endo. Just don't worry about it.

Answer 4

I had surgery for endo and it came back but worse. I had it all of my life and I know it can be very painful. I finally had to have a total hysterectomy to get rid of it but I was over 40 years old. If you ar young, the birth control pill will ease the symptoms. Ask your doctor if there is anything else that may help. It could run in your family as well. Best of luck to you. I feel or felt your pain!

Answer 5

There are several things that you can do to prevent endometriosis from coming back. Believe it or not, getting pregnant is one of the best treatments. There are also some medications, like Danocrine, that helps with preventing recurrences. Some people never have a recurrences, others do. There is no way of knowing whether it will come back or not. I would suggest that if you do want children, you go ahead and have them at an early age. I had class 5 endometriosis and had to have a complete hysterectomy at the age of 28 year old.

Answer 6

I had endmetreosis a few years ago. To tell you the truth I knew that mine stemmed from an emotional problem. We carry all the bad things that have happened to us as women in our reproductive organs. And you may not believe me but once I let it all go, emotionally and physically I got pregnant. (They say pregnancy can cure it) I have not had a problem since and it has been years. If you do not take a moment to reach inside yourself and let the problem go it will never go away. And your endo. will keep coming back. Good luck!

Answer 7

He may be seriously concerned about some of the side effects from that operation; there have been deaths reported from women and men having it done to them, and feels you could do better using other means to lose weight. Go see your regular doctor and ask him if there is anything else besides that, that you can do to lose weight safely. If I figure right thats over 80+ pounds overweight, you really need to get it off, if nothing else for your healths sake and your daughters sake, wouldn't you like to be there the day she get's married? Might not if you die of a heart attack or other overweight related thing, that in itself ought to motivat you to lose the extra weight by dieting and exercise. If you have access to social aid, you can see anyone you wish to see - your husband might not like it, but it's your body after all, and it's your life in some danger from the weight. You need to do something, it may help with your depression also, since self-worth has alot to do with depression. Do something regardless, lady you need help.