I want to hear from someone who has had endometriosis or other similar problems with their womanly parts... !?

Question

Ive been having herendous cramps to where I throw up, turn white, get clammy, and faint. I will curl up in a ball and pray to god I don't die because the pain is so herrendous. I'm afraid I have endometriosis or cervical cancer or something of that nature and I'd really like to hear from some people who have gone through these things and what their symptoms were... I'm just kinda scared to find out. I'm going to go to a gynocologist, hopefully, next week but in the mean time I'd really like to hear from you guys.

Answer 1

Firstly, endometriosis is NOT a hormone imbalance!!! Not even in the realm of that.....
Endometriosis is when cells that would normally make up the lining of the uterus are found outside the uterus. It is commonly found on the fallopian tubes, ovaries, bladder, bowels, plevic floor, and ligaments in the pelvis. They implant themselves and grow and change with the hormone flutuations in your cycle. Now, because you have horrendous cramps, does not necessarily mean you have endometriosis. It is not a forgone conclusion. You may just have a lot of prostoglandins produced when your hormones are high. These compounds are necessary to produce the 'cramps' to start your period. In some women, these compounds are very high causing you to have severe cramping. Try Motrin, Aleve, or have your doctor perscribe a blue (or yellow) pill called Anaprox or Naproxen. These drugs, taken on advise of your doctor should help with your pain and cramping.
The chances of your having cervical cancer is probably remote and certainly if you did suffer from it, would not account for the cramping.
Endometriosis can ONLY be diagnosed through laparscopic surgery. This is when three tiny incisions are made in your pelvis and umbilicus (belly button) and cameras are inserted to give the doctor a definitive diagnosis of the disease.
You could have a disease called adenomyosis which is essentially endometriosis of the uterus. Endometriosis, is chronic and there is no cure. Hysterectomy is not a cure for endo as it can be present microscopically in the pelvis and can still flourish with the little hormones your body produces. Anyone who tells you they can 'cure' it is lying.
Think positively, you may not have it.
I have suffered from it for 27 years and have appeared on television to help other women with the disease. Please get a proper diagnosis.
Again, it is not a hormone imbalance.
Lastly, ask your doctor to refer you to a pain clinic in your area and you can see a pain specialist who will advise you on what you should do and what medications to take.
You have a right to adequate pain control. Do not accept anyone telling you it is normal to have this kind of pain, it is not and you should not be subjected to it. Do not suffer, you don't have to.
Good luck!!!

Answer 2

Sorry to hear your problem, but happy to tell you it's not likely endometriosis, you simply don't have the symptoms. With endometriosis, you will bleed alot, and often,even months at a time. You will have a dull achy like feeling/kinda like menstral cramps,but more spread out over your lower abdomen. Sex will be somewhat painful, and just when you thought the bleeding was going to stop, it's back right after having sex. If you were trying to have children, you would have difficulties. My journey with endometriosis ended with me having a complete hysterecotomy. The plan was to remove the uterus,tubes,and one ovary so that I wouldn't go into menopause. That failed, when surgery happened, the "good" ovary had been taken over by the endometriosis,I was in full blown menopause at 27. Hormone therapy continues,I'm now 50.On to the cervical cancer, I don't think that is a symptom, as well. What it might be, is a fibroid tumor, or an ovarian cyst. If the severe cramps are your only symptom, I think they will treat you hormonally. Good luck, be glad it's not endo.

Answer 3

I have endometriosis and have been dealing with it for 10 years now as far as an official diagnosis although I started having symptoms of it when I was 16. It wasn't til I was 25 that I got diagnosed thru a laparoscopy.

Which is an outpatient procedure.

This does definitely sound like endometriosis to me and no one doesn't necessarily have to have heavy bleeding with each period. Even though yes heavy bleeding can be a common symptom of endometriosis.

The average time of diagnosis for endometriosis is 9-11 years. It took me 9 years to get a diagnosis. The reason it took me 9 years is b/c I had other drs try to tell me that it was not my female organs but my Irritable Bowel Syndrome when I knew that it wasn't b/c the pain I had was too low to be the GI area.

In the time up until I had surgery to definitively diagnose it in Aug of 1997 I was pretty much in bed for 9 months b/c of the pain that it caused.

Endometriosis is a manageable disease as the other posters have said and for some it can mean using a combination of things in addition to surgery some of them of the alternative means such as dietary changes.

Pls check out this site:

http://www.endocenter.org

It has a lot of good info on there as well about endo.

Hope this is of some help.

Answer 4

In re: the above response...to the contrary. Endometriosis does NOT cause heavy or excessive bleeding in every woman or girl with the disease. It does, however, cause the exact symptoms you are reporting. There is a wonderful, free screening and education kit here which might help you better understand and see if you might have the disease (which can only be diagnosed through surgery, but symptoms can be indicative):

http://www.endocenter.org/pdf/2006ScreeningEducationKit.pdf

You're not alone. Help is out there; please don't stop seeking answers until you get the assistance you need and deserve. You don't have to suffer in silence.

Answer 5

Used to get that once a month for a few hours. I had to plan my life around that day.

I would pray to be healed, or to let me die, because the pain was so great. It might be just an awful hormonal imbalance (which is essentially what endometriosis is, as well)..

Better off to support the hormones through natural means and NOT through hormonal therapies provided by the pharmaceuticals. I also had to deal with my digestion issues so that I could actually assimilate the nutrients necessary for my hormonal support. There are supplements that help. But be careful, and read a lot! I had to kiss a lot of ineffective toad supplements before I found the ones that worked!

Answer 6

Sounds like it to me! Endometriosis, that is. The most common symptom is NOT heavy bleeding it is excrutiating pain often compared to labot pain. I have had it since I was 17 I am now 31. So I know the pain and the symptoms. I would pass out, throw up, get diarrhea, get cold sweats. I literally wanted to be shot because of how painful it was. My bleeding was never really that heavy. It was just painful, wait, it was debilitatingly painful. It took 4 years to finally diagnose me. They tried me on the pill to help with the pain and that never, ever helped. Just made me get ovarian cysts every month. I started working in Nursing in Ob-Gyn which helped alot. I finally sat down with my doctor and told him I know I have Endometriosis. I had a Laparoscopy and yes, it was moderate to severe endometriosis. He cauterized the lesions which were all over and one of my fallopian tubes (on the left) was completely closed. That is the side I had most of the pain. Even intercourse was painful. About a week before my period I would get so swelled up (my low abdomen) I would look pregnant and I'm pretty skinny.

Anyways, after the surgery, which isn't that bad. Same day procedure the put me on an injection of Lupron Depot 3.75 for 6 months. This medication put you pretty much in menopause. The reason being is, endometriosis feeds off of estrogen. The Lupron depleats your body of estrogen so the endometriosis doesn't grow back. Of course, it can always come back. Of course again, mine did. This time knowing my history and my symptoms, my doctor just treated me with the Lupron again. Just know it has horrible side effects. Hot flashes like there's no tomorrow, mood swings, vaginal dryness, irritability...etc. BUT it works!

They will probably do an ultrasound to rule out ovarian cysts, tumors, fibroids or anything else. They may even put you on birth control if you are not already taking them. If you are then I would seriously recommend a Laparoscopy!

I did really well after the surgery and medication treatment. It was really worth it. I thought to myself, If I was that bad with my periods how an I going to have a child if I can barely stand this pain. The doctor told me, women who suffer from endometriosis, suffer pain and their labor is alot easier because they already know what horid pain is like.

I hope you don't get shuffled and ignored. The average is 4 years to diagnose endometriosis, those are statistics. But really take my advice. Once they have done all the tests to rule all those things out, just have a laparoscopy and if they see endometriosis, have them cauterize it.

Mine is so bad now, I can't have kids. I never wanted any but within the past year my husband and I have changed our minds. I guess because the option has been taken away.

If it is endometriosis, take care of it. The sooner the better.

Just to put you at peace. Usually, cancer is not painful! Cysts, fibroids, tumors can be due to them growing in size.

Good luck and please i'd like to know what your status is. You can email me with ANY questions.

[e-mail]

Answer 7

Endometriosis treatment; IUI, ICSI and Laparoscopic surgery is very cheap in India. There is one company that is very famous in India that arranges surgery for foreigners in India. They are called the Fly2india4health Consultants. I read a lot about them in the Newspapers and about their patient stories. I have also read that they arrange financing for international patients, as all surgery is not covered by insurance or by the stinking NHS.

They also have photos pasted of their International patients. You can checkout their website. The cost savings are incredible. As a doctor I personally believe that your surgery can be easily handled in India, as the quality of Healthcare available here is simply best in the world. The surgeons are USA/UK trained and facilities are 5 star.

My cousin got her IVF (in vitro fertilization) treatment; IUI surgery done there and she is more than very happy with the results. She is all praise for Fly2india4health Consultants. She paid just 20% of the cost what she was quoted in USA and it was like a wonderful vacation for her. Hope this helps

Source(s):
http://www.fly2india4health.com