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almost three years ago i was diagnosed with endometriosis. it started off really painful but they put me on the depot birth control shot to help with it. since jan 2005 i have had 4 surgeries to scrape out my ovaries. the doctors thought that with all the surgeries on my ovaries and on my cervix to get rid of the cancer there, that i couldn't have kids. well last june i gave birth to my lil midget,she is my miracle baby. my doctor said that almost all women who have endometriosis don't get it back after they have kids. a month after i had my daughter i was back in the er because the pain was back. it's not just slight pain either it is so bad my whole body curls up and i can't move until the pain is gone. now they have me on the hormone therapy to help stop more from growing but i am still having excrutiating pains. it's just gotten worse over the years and i am at my wits end. after three years of intense pain to the point i was perscribed 750mg vicodins and that didn't help.

2007-02-09 07:39:21 · 4 answers · asked by ber-ber21 2 in Health Women's Health

well i am now on darvacets and they don't even help. i have been trying to find someone who has been through this or is going through this and i have not had any luck. i just want to know that i am not alone in this and what has happened with other people who have overcome this or been through it.

2007-02-09 07:41:07 · update #1

thank you for those who have answered already, it does help. but mine is located in my ovaries.

2007-02-09 07:55:07 · update #2

unfortunately they won't even take out my ovaries even though i have my tubes tied and won't have another kid due to my traumatic high risk pregnancy. only because i am going to be 22.

2007-02-09 08:04:54 · update #3

4 answers

I feel for you. I found out 6 years ago that I have Endo. I was lucky though because I was able to carry to children to term. Not w/out problems, but they are here now. I have been on many pain medications along w/ the depo and lupron shots. Right now my doctor is going to start me on Danazol for a trail period. The side effects sound horrible, but the specialist that I saw in Chicago offered me more info about it and I am more comfortable w/ taking it. W/in the past 6 years I have called and begged for them to rip it out because I can't take the pain any more, but because of my age (i am 27 now) they won't. First my insurance won't approve it and my doc thinks I am to young. I also live w/ a heating pad on at all times. I can tell you that I LOVE Cura Heat pads. They are like heating pads w/out the cords and they get me through my day at work when I can stay at my desk w/ the plugged in heating pad. They last for 12 hours and I don't know what I would do w/out them. You can find them in an orange box at Walgreens.

I hope this kind of helps you knowing that I know your pain and understand how you feel about not getting any relief. If you would like please feel free to email me if you ever need to talk or vent to someone who is going through the same thing you are.

2007-02-11 09:58:25 · answer #1 · answered by gethelp9 3 · 0 0

I had endometriosis. I didn't have any symptoms until after I had my first child. My pain was awful. They treated me with birth control, Lupron injections and 3 surgeries. The last time I said enough is enough and decided to have a hysterectomy due to uterine fibroids and ovarian cysts adding to the problem.

2007-02-09 07:56:23 · answer #2 · answered by kiddos2 2 · 1 0

I dealt with pain and bleeding for years before my hysterectomy. Endometriosis feeds off estrogen. As long as you produce estrogen, you will have endometriosis. It sounds like you have had a few laparoscopies as well. I had about 4 before my hysterectomy. With those laps, you gain scar tissue. Endo attaches itself to the scar tissue as well. They were going to put me on lupron. I figured why go into chemical menopause for such a short time, just to have your body turned back on in a few months. (generally you can use the lupron for 6 months, depending on your age and other risk factors).
I bled for 9 months before my hysterectomy. It was a very painful recovery. I went to physical therapy for a few months afterward. I still have endo on my bladder and small intestine. The pain and the agony has ended. Sure, I still get little pangs of pain, but NOTHING like it was before. Best of luck!

2007-02-09 08:04:17 · answer #3 · answered by sab 3 · 1 0

My wife had pretty severe endometriosis as well. It was downright debilitating for her at times. She had a procedure called endometrial ablation where they go in and basically cauterize the lining of the uterus. It made a world of difference

2007-02-09 07:46:27 · answer #4 · answered by Mark B 5 · 1 0

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