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I have been told that I have endometriosis and have known this since I was 21, I am now 28. I have never had an endoscopy, this was just based on my symptoms. When I found out, my ex-husband and I tried for a year and a half with no luck. A few years after our relationship ended, I was engaged again and he and I tried a year with no luck as well. Both of these men have gotten other women pregnant before and after my relationships with them. I have recently seen a doctor and he says that this concerns him. That if I decide I want to try anytime in the future, he would skip making me wait a year of trying and immediately try fertility drugs, and then surgery if needed. Also suggesting that I not try after 35, because of health risks for the baby and mother. All of this information if very intimidating and depressing, because I feel compressed into a time frame. I am completely open to adopting, but having a child, of course, has always been a dream and my maternal clock is pounding.

2007-02-07 04:56:30 · 8 answers · asked by barefootbabee 1 in Pregnancy & Parenting Trying to Conceive

I guess I am just wanting to hear other's experiences and maybe a little support on how I need to approach this situation and how not to get get discouraged. I am in a loving committed relationship with a wonderful man, but it has only been about 6 months that we have been together.

2007-02-07 05:07:23 · update #1

8 answers

You cannot simply be "told" you have Endometriosis, based on symptoms. A surgical diagnosis is required. The disease can also be treated at the time of diagnosis through surgical removal, so whomever "told" you that you had Endo did you a huge disservice not only by delaying an accurate diagnosis, but also delaying treatment. Find a doctor immediately who will surgically diagnose and remove disease.

It is also backwards to offer IVF protocols without even diagnosing the cause of infertility or attempting to surgically remove it. Most Reproductive Endocrinologists who treat Endo patients refer them to Endo specialists first, before trying ART.

Find a new doc and refer to these links for info and support:

http://health.groups.yahoo.com/group/erc
http://groups.yahoo.com/group/EndoDocs
http://www.endocenter.org
http://www.centerforendo.com
http://www.ivf.com
http://www.endometriosistreatment.org

Good luck and don't lose hope...help is out there.

2007-02-08 01:58:17 · answer #1 · answered by Endo 6 · 0 0

First of all, how about finding a doctor who will be a little more progressive in getting you a real diagnosis and who will work with you to get the results you want to achieve without activating the stop-watch?

I had my first baby at 38 and am looking to have another at 41 after I have a fibroid removed. I have doctors who are encouraging and supportive yet give me realistic advice in terms of possible complications. They also did all the tests they had to to find out what the problem was. You cannot conclusively diagnose endometriosis from just the symptoms. How about an endometrial biopsy?

Please find yourself a compentent, progressive, supportive physician. And bravo for looking at adoption as an option - I'm with you on that one and want to adopt one whether or not I have another of my own.

Good luck, sister

2007-02-07 13:12:23 · answer #2 · answered by PamV 3 · 1 0

It's hard to get pregnant with endo, but not impossible. I know the news sounds devastating right now, but don't give up. There are plenty of options available if you can't get pregnant on your own.

I've been dealing with endometriosis for several years and TTC for 3 years. I have a 12 year old from a previous marriage, and have wanted to have more children since she was born. But life didn't work out that way. I have that clock too, and it's hard to ignore.

My husband has a problem with his sperm and I have endometriosis. Separately we would be able to have children naturally, but together we can't. The fertility doctor told me that if we haven't concieved after 2 years, it isn't going to happen. Of course, miracles do happen, but not likely. We are starting IVF within the next week. For 3 years, I said I would not do IVF under any circumstances. But when the doctor gave me a reality check, and IVF was our only option, I gave in. That desire to be a mother meant more than my fear of IVF.

Be angry, be scared, cry your eyes out; but don't give up! If you ever need a cheerleader, or need questions answered, you can send me an email.

Good Luck!

2007-02-07 16:33:03 · answer #3 · answered by sammie 4 · 0 1

I was diagnosed with endometriosis at age 19 (now I'm 35). The specialists told me that it was an aggressive form and then tried every drug known to help the symptoms and also I had several operations to remove cysts, adhesions etc. I suffered for years.
In '95 I had 'last resort' microsurgery (this was the most serious op yet) as I had met my husband to be and wanted a chance of a baby.
When I came around from the 7 hr operation, My consultant had bad news. The womb, bladder and bowel were literally stuck together and had to be separated at the cost of large pieces of tissue. The fimbrae on left ovary were missing and the fallopian tube was badly damaged.
He then announced that there was NO WAY I would conceive.
I was taking ZOLADEX and had 2 months left to run on it.
I felt totally helpless, and more or less gave up.
Waiting for my period to arrive after the ZOLADEX I felt 'different',
against my better judgement, I did a HPT. Unbelievably, it was positive.
I gave birth to my baby with no problems in July '96.
Then, with no medical intervention I conceived again and gave birth in '98 to my second baby.
11 months after he was born I gave birth AGAIN (with no med help to conceive) to a girl!!
I suffered a miscarriage at 5wks in 2002.
Then last year, while on the waiting list for a hysterectomy, I had my fourth baby. A girl.

The 'Specialists' were wrong.

I was depressed, and gave up. Maybe that was the cue for my body to relax and then it happened.
Longing for a baby will totally envelope you and it's understandable, I felt that too.
But if this happened for me, it could very well happen to you too!

Good luck to you and I really wish you all the best...

It WILL happen.

S. XXXX

2007-02-07 16:13:31 · answer #4 · answered by Welshdragon 5 · 1 1

IVF (in vitro fertilization) treatment; IUI, ICSI and Laparoscopic surgery is very cheap in India. There is one company that is very famous in India that arranges surgery for foreigners in India. They are called the Fly2india4health Consultants. I read a lot about them in the Newspapers and about their patient stories. I have also read that they arrange financing for international patients, as all surgery is not covered by insurance or by the stinking NHS.

They also have photos pasted of their International patients. You can checkout their website. The cost savings are incredible. As a doctor I personally believe that your surgery can be easily handled in India, as the quality of Healthcare available here is simply best in the world. The surgeons are USA/UK trained and facilities are 5 star.

My cousin got her IVF (in vitro fertilization) treatment; IUI surgery done there and she is more than very happy with the results. She is all praise for Fly2india4health Consultants. She paid just 20% of the cost what she was quoted in USA and it was like a wonderful vacation for her. Hope this helps

Source(s):
http://www.fly2india4health.com

2007-02-08 01:50:50 · answer #5 · answered by Anonymous · 0 1

My best friend's sister has endometriosis. She had the uterine scraping done and was still having problems getting pregnant. The doctor tested and found out she was also anovulatory (does not ovulate) and prescribed Clomid. She now has very healthy twin boys.

Wishing you all the best!

2007-02-07 13:21:10 · answer #6 · answered by bgmom 3 · 0 1

all i can say is when i gave up i got pregnant or i found out anyways but when i wanted to be pregnant no cigar

2007-02-07 13:28:18 · answer #7 · answered by miraclebaby_2006 5 · 0 1

ok and whats the question

2007-02-07 13:02:59 · answer #8 · answered by bearcatz_07 4 · 0 3

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