disorders and disability, smith magena syndrome?

Question

Smith Magena Syndrome, HELP PLEASE?
My daughter is 16 and has Smith Magena Syndrome and its a mystery to me some of the behaviors she is haveing. I do not know anyone that knows someone that has this syndrome. I am at the point that my head hurts, my heart and I am exhausted. If you can help me click on my avitar and you can e-mail me. Or if you know any information I will be watching for a responce. thank-you. A desperate mom.

Answer 1

You can get more information about smith magenis syndrome at www.prisms.org or at Smith Magenis , PO box 741914, Dallas,Tx 75374 Hope this helps someone out there