Anyone out there who has endo + is in MEGA pain 90% of the month will understand this.I am being put on different medication every couple of months + having side affects to them and then taking more medication for the side affects.u go in to the doctors + say you need stronger pain killers + they ask u to lay on the bed while they poke at your abdominal area.Where it hurts anyway + they make it worse.They give u pain killers + send u packing.These pain killers more aless knock u out + then u have to go to work.A full time job that u need to pay ur bills.Then u walk in + ur employer says u look ill but they wont let u go home cause u have already had previous days off due to being so tired.u sit at ur desk in pain + some how manage to get through the day.Its home time u get home it takes double the time to get home due to pain or being drugged up + then u are to tired to eat or do anything + then just sleep.does any1 know of a endo specialist in the SE. Sorry about the anger.
2007-02-01 02:34:57 · 6 answers · asked by joanna 1 in Health ➔ Women's Health
Re: the above...masturbation does not help Endometriosis in any way; neither does orgasm, use of tampons, pregnancy, intercourse during menses, hysterectomy, or menopause. Those are misguided notions.
In any event, moving on to your post. I totally understand your frustration and pain, and you are not alone with this disease. The first thing to do is find a support network, as suggested above. There is a phenomenal group of over 3,000 others from around the globe located at http://health.groups.yahoo.com/group/erc. You can also find local, in person groups under the umbrella of the free research, education and support organization listed above (http://www.endocenter.org).
The key to managing Endo successfully is to have it truly removed. Not just laser ablated or vaporized or suppressed temporarily by Lupron and other hormonal ilk, but truly removed through excision. To learn about excision, visit http://www.centerforendo.com, http://www.endometriosistreatment.org, http://www.drcook.com and http://www.endoexcision.com. Maybe one of those specialty treatment centers for Endo will be close enough for you to travel to for treatment, as is often necessary with this poorly understood and debilitatingly painful disease.
Good luck and remember you are not alone.
2007-02-01 06:16:44 · answer #1 · answered by Endo 6 · 1⤊ 0⤋
I attach a few links that may be useful. The first one is a Florida endometriosis research organization, and the second one is a list of endo online support groups. The women on some of these will be able to give you better advice than us unexperienced types.
At the end of the day, you have to empower yourself as a patient if you want the treatment you need. A lot of docs are poorly informed about endo... so next time you see your physician, ask for a referral to a specialist OBGYN. Be insistent until you get the results you want.
2007-02-01 03:11:39 · answer #2 · answered by MissA 7 · 0⤊ 2⤋
You have had a lot of good answers far so I won't harp on about it. As one who suffered endo when doctors didn't even have a name for it and employers were less than sympathetic and would stop your wages for being away with it I want to point out that it is now a recognised illness and as such you are entilled to a sick note for time off work if it gets that bad, so please don't suffer when a day in bed can make all the difference.
Hopefully in the not too distant future a cure can be found for this very debilitating illness.
Lots of cuddles and try some gentle exercise when it gets bad. regards Nettie UK lass.
2007-02-01 08:03:45 · answer #3 · answered by Anonymous · 1⤊ 1⤋
hi, i feel the same as i also have endo, i was sent home from work this morning as i was in so much pain i couldn't walk. I had taken my strongest pain killers so when i got home at nine i slept untill half an hour ago. My boss is very sympathetic but i just feel like i'm letting her down. And the best part is i'm doing all this so at some point i might be able to have children but nobody know's if i'll be able to, and i'm only 23.
2007-02-01 03:01:18 · answer #4 · answered by girlinleeds 2 · 1⤊ 2⤋
first of all im sorry that you are in pain , i know bills have to be paid but companys have to run too. Have you considered going on dissabilty? If you are in constant pain you cant do a full time job.
2007-02-01 02:40:55 · answer #5 · answered by cookie 3 · 0⤊ 2⤋
masturbation helps prevent endometriosis, it's been proven.
2007-02-01 03:34:53 · answer #6 · answered by Anonymous · 0⤊ 3⤋