Anybody out there with Autistic child. Could do with friend who understands!?

Question

6 year old son sufferes with autism. Doesn't speak very clearly, not toilet trained, no stranger/danger awareness and basically with behaviour or 2 and half to 3 year old. Would just like to talk to someone who understands.

Answer 1

if your in the uk try the national autistic society, good site, very informative. I work with children on the autistic spectrum, both higher and lower functioning, definately the best kids to work with, as its so rewarding to see the acheivements they can and do make, stick with it, being a parent to any child is hard, but to be a parent to a child with special needs takes a very special person in themselves.

Answer 2

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Answer 3

Hi. I have an 11 year old son with Asperger's and an attentional deficit. Each day brings new challenges (and rewards). There are times when I've wanted to 'throw in the towel'. In our case, my son responded very well the the gluten-free casein-free diet. It seemed to help lessen his sensory integration dysfunction. The gfcf diet seems to help some kids with autism a lot, though it's not effective for all.

One silver lining to raising a child with autism is that I went back to school and became a speech therapist:)

Answer 4

my son was diagnosed autistic at 18. years of not knowing what was wrong with him was torture. He was always in a world of his own. he is 19 and now when i read all the literature on atistic spectrum i wonder why it took so long to diagnose him. my son was 9 when i finally got him to use the toilet,he had terrible behaviour and was nawre of danger. his behaviour is calmer now and he has off days more than on days and still has no sense of danger otside and inside house. I find that every little thing he manages to do is rewarding in the long run. He can walk and has speech albeit limited and i was told he wouldn't achieve this. hang in there i know it's hard but you are not alone and he'll make you so happy when he can finally di things you thought he wouldn't.

Answer 5

Go to the yahoo groups and search for 'parenting autism' that is the BEST group to join online for autism support. They tell it like it is, mourn with you, give suggestions, etc.

In real life, I'd suggest trying to find an autism society support group. If you look at www.autism-society.org, you can click on 'find chapter' and find someone close to you.

You're are unfortunately not alone, there are over 100,000 kids in the US alone with autism. I myself have two.

BTW...most people who self-identify as autistic say that they *are* autistic, not that they have autism. It's not a disease, it's a state of mind. My son proudly proclaims his autism..."I'm not strange, I'm autistic" My more severely affected daughter, will say she 'has autism in her brain' when people ask what's wrong.

Don't fret, with behavioral intervention all this will get better. Just keep plugging away. It's hard labor with little return, except for the first time you realize it's been two days and your child hasn't needed to have their clothes scrubbed clean of poo. Woohoo...we had a party at our house!

Answer 6

Check your local newspaper for area support groups. Autism has gained a lot of interest and support lately due to better diagnosis and research. Because of this, there are many resources available. Your church most likely has a support group available, and you may even be able to form a group of your own with the other parents in your child's class. Ask your child's teacher about this too.

Answer 7

(Great response from "Jimmy", sorry just had to say that first.)

My son has a primary diagnosis of ADHD but has 'autistic tendencies' and OCD. He has limited eye contact, extremely literal, no sense of fear. Limited social skills, Says how he See's all said and done is sensitive, fun, unique an eclectic bundle of emotion.(mostly held inward, until the frustration builds up to a point where is explodes out.) I don't get the hugs that i envy when i see other children responding to their mums, he only likes to be hugged when its OK with him. Be assured there are parents, as you can see through the responses to your question who understand what you are going through try a few of these hope they help.
www.nas.org.uk
http://www.wakefieldparentpartnership.org.uk/links.html
http://www.abilities.fsnet.co.uk/NationalSupportGroups.htm

I noticed on the general autistic sites there are a lot of regional groups, (UK) so there maybe one local to you.

Good Luck

Answer 8

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Answer 9

Check the Autism Society of America. There are chapters in most cities in the US.

Answer 10

Type "Autism Support" and the name of your home community in Google. You'll find a group of parents with similar problems. That's the best help available to you.