pain and endometriosis?

Question

I was the one who had asked a question about all kinds of pain w/ periods, strange bleeding and severe back pain; last thursday I had a D&C, hysterocopy, ablation and laparoscopy- they found 9 areas of endometriosis..and an ovarian cyst. My Dr. burned all of these and did the ablation in my uterisis. First I have a comment regarding all of this; I have been having non-specific pain for years- with my stomach, 'IBS", some crazy periods and recently the added back pain; what I want to say is-YOU DON'T HAVE TO LIVE WITH PAIN- YOU AREN'T CRAZY AND IT IS NOT JUST CUZ YOU ARE A WOMAN- make the Dr. look, and give you answers..I certainly wasn't happy to know I had it but I sure was glad to know that all this time I wasn't a whiney hypochondriac either-
My question is this; are 9 areas alot? and what are the chances that it may grow back?(I am only 36 so they didn't want to do a hysterectomy)
who else out there has had this procedure and how are they doing now?

Answer 1

Probably not that relevant but I had a large ovarian cyst and my doctor was thinking about removing it but he waited till after my period and it went away. I was told that at the start of every period women get ovarian cysts but they usually aren't that big. Only the larger ones are painful and most do go away.

Answer 2

Pain is a relative experience. 1 area can be deemed 'a lot' by one woman who is hurting; and 100 areas can be deemed not a lot by another woman who is in no pain.

In terms of literal medical staging, 9 is not necessarily "a lot" - again, not minimizing your pain and symptoms, just going by the ASRM staging criteria - the higher stages typically have extensive abdominal involvement, massive adhesions and deep, infilitrating disease and therefore a higher score on the staging points scale. Were you not given a stage by your surgeon?

Hysterectomy is not a cure for Endometriosis, despite old wive's tales and uniformed stories to the contrary. If all disease was not completely removed (i.e., through excisional methods - see www.centerforendo.com and/or look into aromatase and Endometriosis to see why hysterectomy is not curative), is it reasonable to assume that unfortunately, it will recur. It's not so much a recurrence, inasmuch as a lack of proper removal. There is no region that "cannot" be treated or "gotten to" - such limitations are a result of the surgeon's skill and not the disease itself.

Visit the following sites for more info and support. Good luck to you and hope you are healing nicely.

http://www.endocenter.org
http://www.endoexcision.com
http://www.centerforendo.com
http://www.drcook.com
http://www.endocenter.org/pdf/2006ScreeningEducationKit.pdf
http://www.endocenter.org/supportgroups.htm
http://www.endocenter.org/aromatase.htm
http://www.endocenter.org/pdf/surgery%20vs.%20gnrh.pdf
http://groups.yahoo.com/group/erc

Answer 3

I've had the surgery the same as you when I was 31 and now I'm fine. When my doctor cleaned out the endomeriosis, he prevented it from returning to my organs by putting a mesh on them. I haven't had any problems since then. Not sure how they did yours to complete. Also, I'm glad they didn't do a hysterectomy, it's not an answer to endometriosis. There is an association in Wisconsin, Endometriosis Association where you can get alot of help from. www.endometriosisassn.org Sign up with them for additional help. You'll be happy you did.

Answer 4

i also have endometreosis. i was going thru unbearable pain constantly for 4 years.no one was telling me much at all i never learned what it was(cause i had no way to research from the comfort of my home), that is until i met up with my current doc.. on my first visit with him we had a consultation for 45 mins. before he even checked me. and then he gave me my exam and by the time he was done i was in full blown tears. he looked at my husband and said that anyone with that much pain during a pelvic has to be going thru endo. then we went thru the series of test and all we were going to try the lupron shot but we learned it was $1300 for the first shot and another1300 for the second. with my insurance it still would have been 600 total. (we were on a fixed budget and couldnt afford it.) so i have been on the depo prevera for the last year which has given me some relief. but then in sept. i was given another diagnoisis of a uterine prolapse. which is when the uterus has fallen into the vaginal caviity. so all this has put me where i am today. awaiting my hysterectomy in 10 days.and im only 28.

what im trying to say is i hope this all works for you, and hopefully you have no more pain i really truly understand what you are and have been going thru

good luck

Answer 5

You sound like youve had my medical history. Im 40 Know at the age of 30 i ended up in emergency doubled over they ended up going inside and thats how i found out.Mind you i found out after i woke up from surgery. They told me what they had all found and what they did about it. Im not sure how many of those sists things they call endometriosis i had but i was also full of all kinds of scaring tissue i have 1 dead ovary and both tubes are blocked. Its been 10 years and in those ten years it has got gradually worse again. Grant you no where near the pain i used to go through. The result of this operation has been very good for me. Myself ive never had kids and i havent used protection against pregnancy since i was 27 unfortunatly endometriosis plays arole in that department. But i do know personlly another lady that did have children after the operation she considers herself lucky.

Answer 6

They're starting to recommend that people with IBS, or IBS-like symptoms be tested for celiac disease, which is an intolerance to gluten (wheat, rye, barley and oats). A lot of people with celiac were misdiagnosed as having IBS for years. (18 years for me). It takes an average of 11 years for a person with celiac to be diagnosed.

Here's a webpage by the National Institutes of Health on celiac -
http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/

And another from the Mayo Clinic -

http://www.mayoclinic.com/health/celiac-disease/DS00319

If that starts sounding familiar here are a couple of message boards for people with celiac and other gluten intolerances.

http://www.glutenfreeforum.com
http://www.celiacforums.com

You can also be intolerant to other common foods and get IBS-type symptoms. Soy, corn, eggs, yeast, dairy, etc. can all cause major issues. You may want to think about keeping a food/symptoms journal and see if you can identify the culprit(s).

I hope you feel better soon.

Nancy

Answer 7

You really need to read "Endometriosis Bible & Violet Protocol" by Zoe Brown (also available in electronic format here: http://www.endometriosisbible.info ). It's about how to eradicate endometriosis disease forever. It worked for me, you will see results in only a matter of weeks. Good Luck!

Answer 8

She will have to cross to the surgeon instantly for appendicitis. If the appendix bursts you'll honestly have soreness alleviation... nonetheless, you stomach might be filled with unhealthy intestinal micro organism => may end up in peritonitis=> may end up in septic surprise. Appendicitis begins off indistinct, nevertheless it movements to the correct reduce stomach. She could have nausea, vomiting, and a fever. If you believe she has appendicitis, please cross to the MD or emergency division. It could be very difficult to spot appendicitis by way of indicators and signs she is experiencing. Since we don't seem to be MDs and can not make a analysis, I believe it is bigger to be riskless than sorry.