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I was recently diagnosed with epilesy. My live-in boyfriend tells me it's all in my head. My seizures rarely involve repeative movement. They are primarily sensory disorders involving inability to speak and/or disorientation. I rarely lose consciousness. He's seen a seizure, but he thought I was drunk.

2006-12-29 05:27:27 · 16 answers · asked by mediahoney 6 in Social Science Psychology

16 answers

It might help him to go with you to the doctor, and have the doctor speak to him about your disorder and how your seizures affect you, and any potential medications that you are on. There are many, many forms of epilepsy, and he's probably only familiar with the kinds that are the most obvious. If you were diagnosed very recently, he may not have had time to adjust to the fact that you have a serious medical disorder. He could be upset/worried about you, and he might think that the best way to make his feelings go away is to deny the diagnosis altogether.

2006-12-29 05:36:27 · answer #1 · answered by L S 1 · 1 1

I think you have a more important question or questions you need to ask yourself like why doesn't he believe you? Does his disbelief mean he doesn't trust you? Why would he think you were drunk? Is he shallow or self centered and he doesn't notice when something is up with you? If so, why are you with him.
My daughter has eplipsy and it's not life threatening but it can place you in a situation what is dangerous. What if your cooking a burger and have a siezure? Not all seizures involve repetitive movement and you may not always have a grand mal or may noy ever but you also can. He better wake up and mell the coffee and find out what he can do to help your enviroment be seizure friendly. BTW there are programs that have seizure dogs that you can get that will help you during seizures. They (the dogs) are even trained to phone 911 for you. Some organizations charge a fee to help cover the training cost and some require you to pay all vet fees others dont. The dog is allowed at any and all places with you jut as a seeing eye dog is.
Good luck if you need support email me

2006-12-29 05:41:49 · answer #2 · answered by whirlwind_123 4 · 0 0

Hmm.... Very odd! Has he had any previous contact with epilepsy? Has he ever seen anyone having a full-blown attack? Mind you this can be very frightening to watch, especially if the person seizing is some one you love! Most of us compare epilepsy with massive attacks, on the floor, hand, arms, legs all over the place. Maybe he is scared that this will happen to you, especially if he doesn't feel prepped to help you. Does he know CPR? Would he know what to do if you was to have an attack whilst he was with you? Or if you were out on the town together? You need to talk to him and find out why he has these feelings and thoughts about your illness.
Lene.

2006-12-29 05:51:50 · answer #3 · answered by Anonymous · 0 0

I am very sorry to hear that. I had epilepsy and was lucky enough to have the full support of my husband. Your boyfriend needs to understand what is going on. Can you take him along to your doctor and have him explain to him why you have seizures? Would he be open to read a book or something online? I feel with you and wish you all the best.

2006-12-29 05:50:26 · answer #4 · answered by Anonymous · 0 0

OMG! What an idiot! I am so sorry to say that but..
Seriously, if he has seen an episode and has heard your doctors diagnoses then I don't know what more you can do. Uh, if you take meds and I am sure you must then I guess show them to him. But if he can't accept or believe you then how is he gonna believe you in other situations?? Think about it! You should have a serious discussion with him and if he is not accepting of this then I think he doesn't care to much and I think kick him to the curb hun!

2006-12-29 05:36:12 · answer #5 · answered by J. A. M. 4 · 1 0

You need to gather up information he can read. He needs to educate himself on epilepsy. Pick up info at the doctors office or the library. He needs to be aware of all the symptoms so if you need his help during a seizure, he'll know what to do.

2006-12-29 06:20:33 · answer #6 · answered by autumn 3 · 0 0

Don't waste your time living with someone who treats you this way. He not only refuses to commit to you with marraige, but he does not even take you seriously. The stress of having someone like this in your life is not good for your epilepsy. It will be hard to begin with, but after you move on, if you will demand respect from a man and refuse to allow him to use you for sex, and convenience, without commitment, then you will be happier in the long run. You will be able to find someone who will support you and understand when you have siezures and help you, rather than mocking you by refusing to listen.

2006-12-29 05:37:27 · answer #7 · answered by Krista13 3 · 1 0

Take him with you next time you have a doctors appointment and have your doctor explain to him what goes on in your seizures, you might want to surf the net and find info on how others can cope with a loved one with that diagnosis.

2006-12-29 05:36:44 · answer #8 · answered by ednaywilliams 2 · 0 0

He sounds pretty insensitive to me. Epilepsy isn't matter taken lightly. Have you had a heart to heart talk about this with him? If you have, and he still doesn't take you seriously, he's either in denial, or he's just plain ignorant. Either way, HE needs to get his act together. Or you need to find someone who's sensitive to your feelings, and possibly your needs.

Good luck.

2006-12-29 05:35:40 · answer #9 · answered by JustAdude 2 · 2 0

Dump the idiot. If he doesn't trust you to accept your condition he's selfish and clueless. Moreover, if he thinks you were drunk it shows what he readily identifies with...my guess is the guy spends a fair amount of time drunk himself.

2006-12-29 05:39:33 · answer #10 · answered by bufordpp 1 · 1 0

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