inspiration for endometriosis?

Question

I am 24 years old and have suffered with endometriosis since I was 13. It was only diagnosed after my second laparoscopy when I was 21. It has been a nightmare. My OB/GYN said that it is between moderate-severe. I need some advice about what steps to take. I dont want drugs. I dont want birthcontrol. I have tried it. And I refuse to take testosterone or go into early menapause.
What I truly want is children. More than anything in the world. My husband and I are more than ready.
What do I do. What is it like to be pregnant with endo and then afterwards. Need some tips.

Answer 1

I have endometriosis as well, moderate-severe, just like you. It started when I was 15 and it hasn't stopped BUT it is now improving. I've tried many different traditional treatments including: Lupron for 6 months which induces menopause with pretty bad side effects; birth control pills which actually make the problem worse.

I hate drugs and I don't believe they fix the problem so I turned to alternative medicine. The only thing that is actually FINALLY giving me relief is a combination of acupuncture, reiki, a great herbal supplement I found at www.endometriosis.com, homeopathic medicine and Evening Primrose pills.

I started my alternative treatment on May this year and my symptoms have improved greatly. With alternative medicine the symptoms don't go away overnight, you will see a slow, steady improvement.

Pregnancy is believed to relieve the symptoms and in many cases, it cures it, since you're really not ovulating during those 9 months. If you are ready for children I would definitely say go for it. Just make sure your endo hasn't clogged your fallopian tubes, if it has, a simple surgical procedure can be performed to unclog them.

Best of luck, blessings and I am sending you lots of positive and healing energy.

Answer 2

I was 22 when my right ovary ruptured. It was full of endometrial tissue. They took my ovary, tube and appendix. I had endometrial tissue attached to my bowel, intestines etc. .And that as they say is only the beginning...... So I know what I'm talking about. I have had EVERY kind of test, procedure, and surgery connected to this illness. I had a total Hysterectomy 30 years ago and I still have problems that the edometriosis caused.
The main problem you have is the endo gets worse every time you have a period. and infertility is part of Endo. There is a drug (I know you don't want to take them) called Danazol. My fertility specialist put me on it before I tried to get pregnant to try and lessen the Endo. Then fertility drugs like Clomid, and HCG can be taken. I know EVERYTHING about what you are going through. But there is hope. I had 1/2 an ovary left when I became pregnant with my daughter. pregnancy sometimes cures Endo (mild cases) I ended up having a total Hysterectomy a couple of years later. Email me if you have any questions about any procedures, drugs etc. PS testosterone won't do a damn thing to help Endo. simply give you more hair.
You don't need to induce menopause. Danazol won't do that

Answer 3

Perhaps your hormones are just out of whack. I hope that is the case if you want to have children. I believe everyone should be able to have children. I don't believe you would have started out with endometriosis, but it is quite possible that you developed it over several years. I also have the hot flashes, and I am 26. Hot flashes and cold flashes coming in alternating bursts. I went to a Chinese medicine doctor. I have been getting accupuncture and using Chinese herbal medications to help regulate this particular problem. They also have helped to regulate my cycle. You have to be careful in choosing a doctor. Make sure they are certified as a doctor in your state by getting online or calling the state board of health to find out before you make an appointment. I truly hope you get things sorted out. I have dealt with these types of issues for quite some time too. Doctors often have the view point that you are "too young" to have such ailments. My aunt had to have a total hysterectomy when she was 15 years old because she had ovarian cancer, so age is definitely not a factor and you'll just have to keep looking until you find the right person to help you. Good luck!

Answer 4

I suffer from severe and agressive endo. I began feeling the first symptoms at age 22 and wasn't diagnosed until I was 27 when I was having trouble conceiving.

If you are married and ready for children, then don't hesitate. Each month that you suffer from endo your chances of conceiving decrease. The adhesions can form on your ovaries, tubes and uterus and make them not function correctly.

My doc had told me that if I had started trying to conceive as soon as I met my husband (instead of three years later) that I would have had a better chance of conceiving without medical help. But unfortunately I didn't know any better at the time. With my severe endo, I had a less than 1% chance of conceiving naturally without any medication. That is a scary number to hear. So don't wait especially if you are ready.

Being pregnant with endo is no different than a regular pregnancy. The good part is that the pain is gone. You get 10 months of no symptoms or pain. So that is very nice. And sometimes pregnancy can eleviate the symptoms of endo all together. However this is most likely in women who suffer from mild to moderate endo.

Good Luck!!!

Answer 5

Being pregnant actually helps the endometriosis. Unfortunately I did not take that route. I have had it since 17 years old. Had a laparoscopy and took Lupron Depot twice with 6 month therapy. It was absolutely awful but it did help alot. I know it has come back again. I'm 30 years old now, my husband and I really want at least one child but considering how bad my endometriosis was when I had surgery who knows. One of my sisters has it as well. Her pregnancies really helped her pain after she had her babies. During pregnancy your body is not bleeding so it is not irritating the endometrial tissue inside the uterus. She had not problems during her pregnancy.

Testosterone for endometriosis??? Never heard that, i've heard of Lupron, Birth Control pills, and progesterone but not testosterone?? Good one, i'll have to look that one up.

I guess, from hearing from my sister, she did very well during her pregnancies and she has endometriosis. Mine is worse then hers but she still has it.

Goodluck!

Answer 6

It is more difficult to concieve with endometriosis and is more of a difficult pregnancy but it is a possibility. Just keep on trying.
The one good thing about delivering a child when you have endometriosis is the severity decreases with every child you deliver. Good luck

Answer 7

Infertility can be caused by a huge number of factors: hormone imbalance, Polycystic Ovarian Syndrome, Endometriosis, Anovulatory Cycles, physical blockage, inadequate hormone production, short luteal phase, lack of lutenizing hormone, high levels or prolactin, and many others. How to get pregnant https://tr.im/oAJMg

Poor nutrition often plays a major role, as does exposure to toxins. Age plays less of a role before menopause than was originally thought. While there are many wonderful naturally minded fertility specialists out there, in many cases it is not possible for them to test for and address any of these possible underlying issues.

Answer 8

I'm sorry I don't have endo, but I would do some research on several search engines if I were you (typing in pregancy and endometriosis) it should bring something up. . .try it on aj.com or google.com or mamma.com . . .these search engines have been very helpful to me. Also, just estimating but I think if you get pregnant the symptoms you have from endo should subside because you won't be having periods if you are pregnant, and correct me if I am wrong, but doesn't the symptoms of endo usually get the worst around the time of your period?

Answer 9

If you can be pregnant or if you have infertility problems I reccomend to follow this method http://pregnancy.toptips.org

Many factors can cause a couple trouble in conceiving a baby, I'll list a few of the most common ones in women:
Anorexia or other dietary dysfunctions
Lacking amounts of FSH and LH are produced, so ovaries aren't as functional as they could be, and so not many eggs are produced
Stress, causing periods to become irregular
Medications such as cancer treatments,antidepressants, hormone therapy, pain killers, and antipsychotic drugs can all cause temporary infertility.

With the method that I posted above you will be able to get pregnant!

Answer 10

There is no reason to assume that with proper treatment, you won't be able to get pregnant. While the disease is a leading cause of infertility, with treatment, most women with Endo who want children can have them. Pregnancy is not a cure like some people think, but it might provide temporary relief. It is important to have the disease effectively removed first so that you aren't suffering afterwards while trying to care for a newborn. See www.centerforendo.com for details and join http://health.groups.yahoo.com/group/erc to interact with others who understand. Good luck and know you're not alone.