where can i get information as to why i was born disabled? my mum wont tell me anything any suggestions?

Question

basically i have short limbs like thalidomide but the drug was banned 20 yrs before i was born

Answer 1

Go to your doctor and ask him or her. Sometimes there aren't any real reasons

Answer 2

My daughter is disabled, so I'm trying to think of this from a Mother's point of view. I think the best place to get this information would be from your Mother. There could be a million different reasons she's withholding this information from you. She might still feel guilty that it's her "fault" you are disabled; even though it's most likely that it's nothing she did or didn't do. Your Mother might be having a hard time with accepting your disability; and is therefore afraid to explain things to you. Or she might not have the words to describe to you what happened.

One of the leading causes of many disabilities is a baby being born premature. You might want to find out if you were born early. I can also tell you that the most common type of disability (among children in general and especially preemies) is Cerebral Palsy. Cerebral Palsy is a Neurological condition that effects the way a person can or can't use their muscles. There is no problem with the muscles, the problem comes from the brain damage the baby was aflicted with either before birth, during birth, or shortly after birth. If you feel your condition matches this description, Cerebral Palsy is what you'll want to look up on the internet.

You might want to try talking to your Mum again about this. Tell her that you want to learn things from her, rather than 'guessing' about stuff over the internet. If you can, assure her that you will not blame her for anything, no matter what. Depending on your age and maturity (which maturity is something you appear to have) she might be ready to talk. Tell her she's not alone in having a disabled child. Refer her to the following site:
www.specialparent.org It's an on-line support group for parents of children with disabilities and special needs. It sounds like she might need to speak with people who are living similar circumstances. I'd hate for her to be alone if she's having any problems adjusting.

Try not to be too hard on your Mum. I'm sure she has your best interests at heart. Us Mothers don't always know how to handle our children's questions, and sometimes it really makes us feel bad if we don't have the answers. Your Mum might not have had much emotional support when you were born, and might not completely understand her own feelings at times.

I want to commend you on trying to find out what your disability is and what the cause is. I know someday I'll tell my daughter about her premature start in life. She's only 4 now, so there's no way she could even understand that yet. She does know she has Cerebral Palsy; but of course, is too young to know why. It's really tough for us parents at times. I hope you are able to get some answers from your Mum. And I hope you can find out a lot about your disability so you can benefit from the information. GOOD LUCK!

Answer 3

Firstly I think you need the name of your Disability and from there you can look at the cause or causes of the disability.
Go to your Doctor as your medical history will have been recored from birth. Or it should have been. Even if it hasnt your disablity should have a name of some sort. By that you should be able to look it up and find out more about the condition and how it comes about.
Looking at your previous questions about forensic's You should be used to the idea about get to the source of the problem.
Hope that helps

Answer 4

There are many reasons for disabilities, genetic, something that maybe your mum did, or something that happened to her during pregnancy, medications she took while pregnant, or just a million to one mis-connection while you were developing in the womb.

There arent always hard set answers, you should go to your gp and talk to him. But be aware that if its something that could have been prevented, you my find it very diffcult to deal with.

Try again with your mum, and say that you are going to go to the doctor to talk about it.

If she feels responsible for your diability, she may well open up and talk to you about it rather than have a doctor tell you. If she really doesnt have any idea why, your gp should be able to shed more light on it.

If you gp says its just one of those things, no reason, you are going to have to let this drop. Sometimes these things happen and we have no control over it, and know real knowledge of why it happened, so have a good long think about whether you want to really know, it could cause more heartache and questions than you started with.

Answer 5

Hi,
There may be many reasons why your mum doesn't want to talk to you about this. Maybe she mistakenly thinks she is to blame.
If you really want to know, then go and discuss it with your GP. You have a right to see all medical records held about you.
As other people have mentioned, these things often have no explanation. You may just have to accept that you were born this way for no reason.

I hope you find the answers you're looking for.

Answer 6

A lot of the time there is no reason why. It could just be a genetic mix up at conception. If your mum drank very heavily or took drugs during pregnancy that could lead to malformations. Try to accept and love yourself as you are. There s not always a reason why that we can understand.

Answer 7

Is your mother doing more damage by NOT telling you?
Do you really need to know why?
It depends on your disability and I'm sure you can find some suggestions for that. Obviously, if it's due to something she did when she was pregnant or after you were born, only she can tell you that.

Answer 8

there is not always a reason. All you can do is learn about your disability. KNOWING why it occurred has no real value. I have a disable 10 1/2 year old i don't know why. I took my vitamins went to every doctor visit never smoked or drank. It happens all you can do is accept it everyone has limits and disadvantages it makes us human.

Answer 9

There are some questions better left unanswered. You are a child of the universe, no more or less than the stars you have a right to be here and whether you know it or not the universe is unfolding as it should. Get on with your life. Your brain is not disabled

Answer 10

do a search for whatever it is that is your disability. but have some faith in your mom, it may just be that god made you that way and there is no explaination. some people are just born disabled with no rhyme or reason. so do some research, and if you find it is due to maybe a drug/alcohol/cigarette issue, then ask, but if it all says it's genetics, then what is there to ask?

Answer 11

Why don't you visit your GP and discuss your disabilities with them, use the internet, the NHS website can give you a general look before you go more specialised.
Would it not be possible to discuss the condition with your mum explaining why you need to know, ask her what it is that makes her so anxious about discussing it with you.