I have Lupus....Im only 23........?

Question

Can anyone tell me how they deal with it? Its also really making me depressed at times..........

Answer 1

I have Lupus, too. I am 25; I was diagnosed when I was 17, and ended up having to leave school in my last year due to health problems, but you know what? You read up on it and educate yourself so you know all there is to know.

What are your symptoms?No two people with Lupus are exactly alike, so everyone must learn whats right for them.

Keep a good relationship with your doc, get a good rheumatologist or other specialist, join and on-line support group so you can meet others who truly understand.

I know its hard to accept, and harder still to live with, and anyone with this weighting on them would feel depressed, but be assured that this is not fatal. It can be, of course, and there are certainly sad or horrifying stories, but there are many people--arounda good 90% I believe I read- who live a long, long time; you and I could still live to be 100, and spend most of those years with aches and pains and fatigue, but nothing much more.

We just have to learn to know ourselves, and above all, listen to our bodies.

Contact me if you want to talk. And take care of YOU.

Answer 2

My prayers are with you. Lupus is a lot more common these days then it was at one time. I have a nephew who has it and my husband has an uncle who has it. I also had a neighbor years ago who had a 5 year old daughter who had it. (they moved so I do not know the condition of that child today) All I can think of is to join some support groups. I have included sites at the bottom for further research for you and also some support sites . Hang in there and do not be depressed. I know it is easier said then done but Lupus has a way of coming and going in symptoms and I am praying your symptoms will go into remission for the next 80 years.

I have taken the following article from :
http://www.niams.nih.gov/hi/topics/lupus/slehandout/#Lupus_10
Hope for the Future

With research advances and a better understanding of lupus, the prognosis for people with lupus today is far brighter than it was even 20 years ago. It is possible to have lupus and remain active and involved with life, family, and work. As current research efforts unfold, there is continued hope for new treatments, improvements in quality of life, and, ultimately, a way to prevent or cure the disease. The research efforts of today may yield the answers of tomorrow, as scientists continue to unravel the mysteries of lupus.


here are some support groups:
http://www.itzarion.com/lupusgroup.html
http://www.lupus-support.org.uk/
http://www.lupus.org/support/groups.html
http://www.acor.org/lupus/
http://groups.msn.com/Lupussupportgroup/messages.msnw

And here are some research groups:
http://www.lupus.org/
http://www.niams.nih.gov/hi/topics/lupus/slehandout/
http://www.nlm.nih.gov/medlineplus/lupus.html
http://www.rheumatology.org/public/factsheets/sle_new.asp?aud=pat
http://www.emedicinehealth.com/lupus_systemic_lupus_erythematosus/article_em.htm
http://www.kidshealth.org/kid/health_problems/bone/life_with_lupus.html
http://www.kidshealth.org/kid/health_problems/bone/life_with_lupus.html
http://answers.yahoo.com/question/index;_ylt=AuExMHmkVhr_ntt8p7Laa3wjzKIX?qid=20061106094444AADHTB7
http://www.apsfa.org/lupus.htm
http://en.wikipedia.org/wiki/Lupus

Answer 3

I have a friend who has lupus. She is very active when she can be, which is most of the time. I have health problems, not lupus, but chronic problems. You will need to learn how to improve your diet and your health generally. Lupus is an auto-immune disease. It causes inflammation of different tissues. Many people learn how to keep the problems to a minimum with trial and error. Look for support groups on yahoo groups and google groups. I have found that there are lots of people using their computers to talk about what's going on with them on those groups. It can really help a lot, especially when you're feeling down. You can go on there and explain and get feedback from people who have similar problems and how they've dealt with them.

I am sorry that you have lupus, but you will find
out how to deal with it so you have a good life.
It sucks to get something like that so young!

I am not sure how old my friend was when she was diagnosed. She's in her mid-50s now. It took a long time for doctors to figure it out back when she got it. She raised two daughters, works and has a good life. She found a good doctor to work with who is an MD but does naturopathic too.

Answer 4

I was diagnosed when I was 28. I am now 40 and still going. The best advice I can give is to be positive. If you are feeling depressed talk to someone you trust and love. Just remember your not alone, there are a lot of us out here.

God bless
James

Answer 5

My wife was diagnosed when she was 15. She's now 29 and a practicing dentist. She's had her ups and downs throughout the years but overall is doing great. You have to stay positive and share your depression with someone. Talk to a friend your parents anyone who is close to you. Let them know how you feel and let them be there for you when you need them. Sometimes it's difficult but with support you can have a wonderful life.

Answer 6

very sorry to hear that my brother died of lupus after 7years of treatment hope they discover a cure for you.

Answer 7

donot mind
it will be cured