Does anybody know anyone with HLHS?

Question

HLHS is Hypoplastic Left Heart Syndrome. My daughter has it, and I was just wondering how many other people may have it. If you know anybody, just let me know. Also, let me know how they are doing. Thanks.

Answer 1

I'm sorry to hear about your daughters condition and I hope everything works out well.

These two websites may help you contact other people in a similar situation.

http://www.lhm.org.uk/
http://www.cafamily.org.uk/Direct/h59.html


Good luck !