My daughter in law has epilepsy, she sometimes has a hard time too. But, she went to college, has a degree in english, and is currently writing a book. She has a purple belt in karate. She's a wonderful girl, with a delightful sense of humor, and a great personality. She made her wedding gown totally by hand, as the needle moving up and down on the sewing machine would catch the light and seem to be flashing and would set off seizures. You can learn to cope. Good luck.
2006-09-15 13:43:56
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answer #1
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answered by mightymite1957 7
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One time, in high school, there was a group of people in my science class doing some pretty neat experiments, and one involved a lot of smoke and strobe lights, and after the experiment, I had a seizure. I blacked out, but someone was filming and caught it on camera and I basically just fell out of my chair and curled up into the fetal position. It wasn't the kind where you flop around like a fish out of water. I tried to get back into my chair, but I couldn't. After about 30 seconds, someone finally helped me. They grabbed my arms and the teacher came over and grabbed my legs and they carried me to the nurses office. It was sad though, how a few people saw me rolling around on the ground trying to get up but no one even did anything. Even the group doing the experiments didn't even stop. Some people ignored me completely. I have never had a seizure ever again. It must have just been a freak thing, but it was sad, because what if the teacher wasn't there? I would have been on the ground in pain for a long time. And, with the release of the new video on eBaumsworld.com with the back dancer having a seizure on stage and no one helping her, it really affected me. I didn't find it funny at all, and after the incident with me, people in the school couldn't stop talking about my seizure. It made me pretty popular, but not in a good way. I can't imagine how you must feel when people see you have seizures. You just need to remember that you are not alone. There are many people who have the same condition as you. Someday, there may be a cure, and you are not abnormal. There is a large group of people with the same condition as you so you are not the only one. You are a normal person. I know how you feel in the sense of being alone. I am gay, and I always thought that I was abnormal because I don't have the same interests as most other boys do, and it really made me depressed, but trust me, you will learn to accept it as part of youself just as I did.
2006-09-17 13:39:15
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answer #2
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answered by Caribbean Blue 4
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I have a 9 1/2 year old son who started having absence (petite mal) seizures before his 2nd birthday. He was put on Zarontin and from age 7 to 9 was seizure free.
Last March he started having grand mals. We put him on Depakote and he has been seizure-free for 2 months.
At no time in his life have I let him get away with being anything other than "normal." I will not accept "abnormal," and he would never be faced with the question you have because of my attitudes. I grapple with whether he should play football, and have decided that it's his life and he should get to live it any way he would if he didn't have the seizures (possibly excluding driving).
My advice is: Get a great neurologist, talk about the depression, which might be part of the seizure disorder, anyway, and get on a great new med which might handle both issues (Depakote does).
Then, live your life the best you can. That's all any of us can do.
2006-09-16 00:52:26
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answer #3
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answered by ? 7
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The seizures are just part of your reality, and I am assuming that the depression you sometimes may feel about having them is probably also part of being someone who has seizures.
I know its not convenient, and its not the way you prefer it to be, but your having them shouldn't be any bigger deal than, say, someone else's having anxiety attacks or any other imperfect situation.
I've known people who have seizures from time to time; and for all of them the biggest adjustment was required in the beginning, when they first started to have the problem. After a while, it just becomes part of people's lives and they figure a way to work around it one way or another.
I suppose a certain amount of feeling bad in the beginning is to be expected, but - really - there should be no reason to feel bad about it once you're used to it. Its just a part of your life. I'm not even sure it would be fair to expect yourself to just accept it, because sometimes a little refusal to "just accept" something isn't a bad thing. I think more, though, that what you should do is become used to working around it and dealing with it. Learn if there are things you can do to keep the seizures to a minimum, and then don't let them get to you.
I shouldn't bring this up because it may not apply to the type of seizures you have and because you may already know about it, but I think it would be wrong of me not to mention it just in case....
A few years ago there was a thing on tv about some people (children I think) who had seizures that couldn't be controlled. Someone decided to test out whether or not a certain type of fat may help them, and in some cases it did. I have not heard more about it since, and for all I know it may be something doctors now bring up to patients who have seizures. Anyway, I thought I'd bring it up; because a young man I know have seizures as a result of a brain injury at birth that caused some minor cerebral palsy; and from what I've heard he is supposed to eat a certain type of diet.
I imagine you've been online looking up any ways to approach the problem of seizures, so I'm not assuming I've told you anything; but if, by any chance, eating a certain amount of a certain type of fat may reduce the frequency or severity of your seizures, I just had to mention it. What I've said is from nothing but seeing one news piece on a program and is probably useless. Still, I had to say it just in case there's a small chance.....
2006-09-15 21:14:04
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answer #4
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answered by WhiteLilac1 6
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While I can understand your frustrations with having seizures, no way should you ever feel bad because of a medical condition. You need to re-think and re-define your definition of normal. You are a normal person that has seizures.
2006-09-15 20:46:09
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answer #5
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answered by Raggedy Ann 3
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Accept it, normal is what you make it, just because my brain is broken does not make me less of a person, just because it may take me more time to process thoughts and speak with words does not mean i am less then any one else. There for normal for you is you have seizure. Accept your self for who are and people will accept you for who you are, if not that is their lost not yours. You are special in your own individual way Please do not be to hard on your self. We all have some type of imperfection, the problem is accepting one another for our individual imperfections.
2006-09-15 22:12:35
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answer #6
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answered by soulstore 2
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I don't really know what your going thru but I guess that you would feel down about your seizures. What I do know that these are the sorts of things that life throws at us and we just have to pick ourselves up and get on with it - remember there is ALWAYS someone worse of that you. Take Care
2006-09-15 20:47:35
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answer #7
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answered by Anonymous
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I have had seizures but now they are controlled by medication.
I live a normal life as long as I pop the pills twice a day. Don't get depressed sweetie, just learn to live with it! ;)
2006-09-15 21:15:38
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answer #8
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answered by Anonymous
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If you're having seizures, you NEED to go to a doctor to FIND OUT WHY. If you do know why you are having them, and cannot be rid of them, you need to continue to live your life; you must find it within yourself to accept them as a part of life, because if you don't you will never be able to be happy. I wish you good luck!
2006-09-15 20:42:52
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answer #9
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answered by Anonymous
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You should really try to accept it. I am in a wheelchair because I hurt my back several years ago and sometimes I feel the same way you do, but really at the end of the day you have to accept yourself for who and what you are, good or bad. Be strong, you'll be okay.
2006-09-15 22:37:40
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answer #10
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answered by cryptoscripto 4
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