I have a six month old daughter, my first. She was born with Optic nerve hypolasia, she may be blind.?

Question

I love my baby so much. I am not sure to what extent she can see, or even if she can see at all. I want to help her the best i can, but sometimes i just feel so sad when i am with her b/c i want more than anyting for her to be absolutely perfect and she isn't, i feel sorry for her that her life is going to be harder, it changes everything when something is wrong with your baby. Does anyone have a child with a problem like this, or have any advice on what would be the best way to start to raise this little girl.

Answer 1

I was told that my son was going to be blind when he was 2 months old. It was really hard to believe at first but I kind of knew it before I was even told. The doctor told me he wanted to try a corrective surgery when he turned four months which would give me a 50/50 chance. At this time me and my husband were trying to cope with the fact that whatever house we were going to buy, we were going to stay in the rest of our lives and not move any of the furniture. It was really hard looking at my son and watching his glased over eyes that went every which way but straight. I am not a real religious person but of coarse I went to the lord and asked for help. My husbands mother took my son to her church the Sunday before the surgery and took him in the preachers office and had all the elders pray for him to make sure he was going to be ok since he was only 4 months. I brought him home that night and did my rutine of holding elmo in front of him trying to get him to follow it which I thought he did at first but he never did it before so of coarse he didn't do it now. I gave him a bottle and for the first time it looked like he was actually looking at me...well we took him to the doctor on Wednesday to have a look at his eyes one more time before fridays surgery and the doctor told me twenty twenty vision...I almost passed out. When they are young like this they have a chance...Kids develop at different speeds mentally and physically. I am very lucky now but those two months were so hard on me...I cried every night. It is really hard...but you just love your baby with all that you have...there is going to be hard times especially when she gets older. Be the best mother you can be, and teach her special ways to overcome this. You will think of these things as you go along. I wish you well...

Answer 2

She may be different, but she IS perfect, because God made her. Don't ever think any other way. It's not going to be any harder on her than on any child, because she doesn't know any other way. You must treat her as a normal child and let her do things other normal children do. If you treat her as if she has a handicap, she will believe it to be so and will act accordingly. All you can do is love her and encourage her to do the best she can, just like with any other child. You will have to watch out a little closer for her, but she will learn to work with the tools she was given. And her other senses will be heightened because of it. Many people, blind from birth, have gone on to lead very productive, and even exemplary lives.

There are institutes that can help people in your situation. Ask your doctor to refer you to one or two. My prayers are with you.

Answer 3

I don't myself, but a friend of mine was born blind and her familly has helped her to live a very full life, is going to law school now - it will be hard but if she feels loved she will be able to do whatever she wants

Answer 4

try to prepare your life style and hers for whats to come, make sure she has the right school plans and the right equipment at home, never make her feel different by mentioning t all the time and be more attentive to her needs since she won't be able to do many things by herself. the only thing you can do is prepare for your future with her.

Answer 5

First off - correction - your baby is perfect and you should never - NEVER - feel pity for her. Just treat her "normal" and everything will work out.