English Deutsch Français Italiano Español Português 繁體中文 Bahasa Indonesia Tiếng Việt ภาษาไทย
All categories

last Tuesday at 18 wks my baby was diagnosed with semilobar holoprosencephaly. She had only half a brain, heart problems and other deformities. Chance of survival was 0%. I had to have a medical induction, as her she had water on the brain and it was causing her head to swell. Emma Catherine was born alive and we had the chance to hold her and kiss her for an hour. Then she went to God. My heart aches so badly and I want to be pregnant again so bad that I can't stand it. Has anyone had a similiar situation? I feel so alone. Is it normal to feel this way? What should I do?

2006-08-28 10:14:39 · 25 answers · asked by Julia 2 in Pregnancy & Parenting Pregnancy

25 answers

I really just wanted to pass on my condolences to you and your husband. There are no words to adequately describe how sorry I am for you.

I have suffered from an Ectopic Pregnancy and a Miscarriage, so I have some idea of what you are feeling, but I am sure that having to have an induction is worse than what I have experienced. I think it is normal to feel alone and just dumbfounded. Try to take each day as it comes and remember its OK to cry.

Again, I am so so sorry for your loss

Samantha x

2006-08-28 10:22:22 · answer #1 · answered by Anonymous · 1 0

I doubt that any men have answered this but here gos.
First and foremost, I would like to say how very sorry I am over your loss!!
All I can say is that I am glad you had the time with her that you did.
Please also know that Emma is now an angel, and she loves you and will watch over you.
I also think that you should be talking to a professional counselor on this one.
Also remember that it is OK to cry and to grieve, it is healthy to do so.
And there may be some people who do not know what to say,and that is OK too.
Emma was a person, and there are people who will feel differently as well,just because she was only here for a short time.
I can not say anything to ease your pain, but I can tell you that She loves you and is now closer to you because she is with you spiritually.
" May Eternal rest be granted to Emma O Lord, and let perpetual light shine upon her, may her soul and all the souls of the faithfully departed rest in peace, amen"
And may God bless you and your family!

2006-08-28 10:52:36 · answer #2 · answered by jons2375 2 · 0 0

I am so sorry for your loss, I had a "missed miscarriage" and had to have a D & C at 6 weeks pregnant(we had just heard the heartbeat). I cant imagin how you are feeling. Talk to your family freinds or anyone you feel comfortable with. The one thing I can tell you is what my OB told me, 99 percent of people who have a pregnancy that ended had a normal pregnancy the next time. I can tell you that its true on July 12 I had a healthy baby boy. Just remember you can try again. If your interested here is my email dwatters@hotmail.com.

2006-08-28 10:40:55 · answer #3 · answered by NW71206 2 · 0 0

I am so very sorry for your loss ((((hugs)))) I had a miscarriage a couple months ago so I in some way know the pain you are feeling. You aren't alone. I know of a website that you can go to to talk to other women that have gone through the same experience that you did. I am on the website as well. It is called babyfit.com. It has a miscarriage support board and a life after loss board. The women there are very helpful. If you need to talk or scream or vent you can email me anytime. My email is purplecraze501@yahoo.com. I will try my best to answer any question that you may have. I'm here for you if u need to vent.

2006-08-28 15:06:33 · answer #4 · answered by purplecraze501 1 · 0 0

Well, first off, I am so sorry for your loss, and you should thank God for letting you enjoy the time you had with her. I had a boy in Feb 05 with polycystic kidney disease. He was full term, but we only had 2 hours to spend with him. It was the most meaningful 2 hours of my life!! God just wanted another angel. Now he has yours and mine. Even though it is a hard time in your life, just be glad she wasn't born and had to suffer her life with a serious condition such as hers. Before you decide to have another baby, i highly suggest being checked and finding out why this happened. I know nothing about this condition, so I don't know what the chances are of it happening again. I am now pregnant with another boy (35 weeks) and he is very healthy. Actually, he is already well over 6 lbs!! So, I suppose he is way too healthy. LOL!! Anyways, good luck with future children, and love the ones you have. You never know... Maybe your Emma Catherine and my Tyler Lee are going to find each other and have beautiful angel babies together. Look forward to the day you will see her again! She'll be waiting for you. You and your family are in my prayers.

2006-08-28 14:53:32 · answer #5 · answered by hello_heather_03 3 · 0 1

I'm so sorry ... I haven't been in your situation myself, but as a mother, I can't imagine the pain you must be going through.

As far as getting pregnant again: when you feel ready. Grieve for your little one. It may be weeks, months, or years, but only you will know when you're ready. Don't work by anyone else's idea of what's "too soon".

And please know you're not alone. All you have to do is reach out, and your loved ones will be there. And, it's not for everyone, but there are many support groups out there to help you cope with your loss. Sometimes, just being in the presence of people in similar situations can ease the pain.

God bless you and little Emma Catherine.

2006-08-28 10:24:38 · answer #6 · answered by tallulah 1 · 2 0

Oh sweetie I am so so sorry to hear of your loss!

You are SO not alone. There are many other moms out there with aching arms and broken hearts. It is completely normal to feel the way you do.

My baby boy died at 4 days old due to complications with his birth.

One of my very dear friends had a baby girl named Sarah who had holoprosencephaly. She also had other deformities. Because holoprosencephaly is life-threatening for the mother (as you know) her labor was induced and Sarah died just before birth. My friend is Catholic and very pro-life, so it hurts her deeply that some people have accused her of killing her baby girl. It wasn't her fault, and your baby's death wasn't your fault.
http://www.babiesonline.com/babies/s/sarah_anne

My friend went on to get pregnant again and her healthy baby boy was born last December.

I also got pregnant again and gave birth to my baby girl in April.

(((HUGS))) to you. I am including some links that I hope may help you.

2006-08-28 10:30:30 · answer #7 · answered by Kathryn A 3 · 2 0

i'm so sorry about your lost,i know how you feel,we're trying to have a baby after i had and ectopic 7 yrs ago we're so happy i even dream about that baby,had pick out name already we had three embryos but 3 days ago the test came back neg all i've been doing is crying can't eat don't want to do nothing.it hurts real bad but like you said you had the chance to hold your baby,she's and angel looking down on you now god will give you and another baby real soon.you can email if you like because ineed a friend too.god bless you

2006-08-31 13:19:33 · answer #8 · answered by jolie minouche 2 · 0 0

I am so sorry for your loss! It is so hard. I gave birth to a still born girl 4 years ago when I was 7 months pregnant. I was teaching at the time and a student's father beat the living daylights out of me at a parent-teacher conference because I wouldn't change his grade in my class. He killed my unborn child and nearly killed me. He is spending the rest of his life in Jail. We donated Little Katie to UCLA Medical School so that she could help the students there. I know that my love of God and good friends and family helped me out a lot. Keep your faith in God and when He feels it is right he will give you another child. God Bless you and your little angel!!!

2006-08-28 10:25:35 · answer #9 · answered by LITTLE 1 :o) 6 · 1 0

First I am so sorry for your loss...... I am feeling pain at this moment for what you are and have been through. You may want to wait at least a month or two and then try for another baby. In the meantime take care of yourself sweetie and seek God and read Psalm 23 and other chapters of The Bible and pray to him and He will comfort you ok? Have a beautiful day.

2006-08-28 10:22:16 · answer #10 · answered by KK 5 · 1 0

fedest.com, questions and answers