Do you know anything about Pseudoxanthoma Elasticum (PXE)??? Please give me all the information you know!!!?

Question

Pseudoxanthoma is a genetic skin disease, also called Grönblad-Strandberg-Touraine syndrome and systemic elastorrhexis.
I have this disease and I need to know all I can about it. And yes, I've used all the search engines, so don't tell me to search yahoo.

Answer 1

http://www.pxe.org/about/genbul.html