Endometriosis?

Question

I am looking for someone who has been diagnosed with this. I have been having spotting the week that my period is due, which is then followed by my period. I thought this was strange, so I looked it up online and found this diagnosis. I made an appointment with the doctor in 10 days (need to wait until my period is over in case an internal exam is necessary). But now I am worried and I just want to hear from other woman who may have this...what are your symptoms, what treament has been done, what can I expect if I do have this?? ANY advice would be appriciated.

Answer 1

Symptoms: Endometriosis simply means that there is ectopic endometrial tissue - which can bleed during your cycles - causing heavier menses or even inbetween cycles. An especially common sign is pain during periods.
Diagnosis: is by Laprascopy - a small incision about 1cm is made under the belly button and another a little lower - and the doc uses a laprascope to see if there's any ectopic endometrial tissue.
Treament: For the pain you can use antiinflammatory meds like brufen, the doc will prescribe some hormonal therapy - like oral contraceptive pills. Another treatment option is zoladex injections given subcutaneously for about 6months - 1 injection every month - and symptoms usually resolve.
Ok... some general advice- endometriosis is remarkably common, don't worry! Get treated! Yes... there are complications - but timely intervention can usually prevent them.

Answer 2

I was diagnosed with endometriosis last year when I had my tubes tied. Doctors cant find it without doing surgery although they can guess at it before hand. Its nothing to really freak out about, all it is, is tissue that looks and acts like the uterine lining grows outside the uterus. It can grow on or under the ovaries, behind the uterus, on the tissues that hold uterus in place, the anus, etc. My smptoms of it were heavy periods lasting close to a month at a time (would get three whole days a month that I wasnt on my period or bleeding), pain in my lower back all the time (not just while on my period), I had very painful cramps as well. I was constantly wanting to stay in bed due to pain, but couldnt because of kids. I tried birth control and pain meds to ease the flow and regulate my periods and the pain med was for my cramping-didnt work, tried hormone pills and pain meds for cramps -didnt work, then I had something called a d&c done and a thermal ablation (also called endometrial ablation by some people). With the d&c they scrape you out and with the ablation they take the uterine lining off. With the ablation I had, they knocked me out so i wouldnt feel it. They inspected my uterine cavity to make sure it was ok to go ahead with the procedure. Then a latex balloon containing a heating element was passed into the uterine cavity and inflated then the solution is heated up and the balloon is left in for 8 minutes to destroy the lining of the uterus. This procedure is not for someone that wants kids as it destroys the uterine lining needed to help with a pregnancy. I ended up needing a hysterectomy from the ablation because my uterus started hemorrhaging after the ablation. If you want more info feel free to contact me

Answer 3

The only way to diagnose endo is through a lap (surgery to check your insides). Spotting during your luteal phase is a sign but not the most common one. Common signs are pain during sex and very heavy menstrual cycles with terrible cramps. Unfortunately, a lot of women have endo and have no signs. Spotting during your luteal phase could also mean low progesterone so I would ask for a progesterone test 7 days past your ovulation.

Answer 4

I had to have surgery where they put the scope through your belly button and a sample had to be examined. My symptoms were: Extremely heavy bleeding, cramps that nothing but a heavy duty pain killer could touch and hurt during sex. I survived but some women have it so bad that have to have everything taken out. Good luck I hope you do not have it

Answer 5

You really need to read "Endometriosis Bible & Violet Protocol" by Zoe Brown (also available in electronic format here: http://www.endometriosisbible.info ). It's about how to eradicate endometriosis disease forever. It worked for me, you will see results in only a matter of weeks. Good Luck!

Answer 6

Here's some info on Endo that I hope helps you.

First off, it can't be detected without surgical intervention. Diagnostic tests like CT scans, ultrasounds, etc. do not confirm a true diagnosis of Endo. However, it can be suspected based on symptoms.

Join others who understand at the internet’s largest electronic support group: http://health.groups.yahoo.com/group/erc...
*note - be sure to check out the "files" there, as they have free laparoscopy info manuals and lots of "how to cope well with Endo" type of info

Girl Talk, for young women with Endo
http://groups.yahoo.com/group/ercgirltal...
*note - they have an awesome "Girl Talk Kit" for free also, discussing Endo in younger patients and treatments, etc.

Endo Research Center (www.endocenter.org) literature states:

About Endometriosis:

With Endometriosis, tissue like that which lines the uterus (the endometrium) is found outside the womb in other areas of the body. Normally, the endometrium is shed each month through menses; however, with Endometriosis, these implants have no way of leaving the body. The implants still break down and bleed, but result is far different than in women and girls without the disease: internal bleeding, degeneration of blood and tissue shed from the growths, inflammation of the surrounding areas, and formation of scar tissue result. In addition, depending on the location of the growths, interference with the normal function of the bowel, bladder, intestines and other areas of the pelvic cavity can occur. Endometriosis has also been found lodged in the skin - and even the brain.

Symptoms include chronic or intermittent pelvic pain, dysmenorrhea (painful menstruation is not normal!), infertility, miscarriage(s), ectopic (tubal) pregnancy, dyspareunia (pain associated with intercourse), nausea / vomiting / abdominal cramping, diarrhea / constipation (particularly with menses), painful bowel movements, painful or burning urination, urinary frequency, retention, or urgency; fatigue, chronic pain, allergies and immune system-related illnesses are also commonly reported complaints of women who have Endo. It is quite possible to have some, all, or none of these symptoms. Endo symptoms are varied and often nonspecific, so they can easily masquerade as several other conditions, including adenomyosis ("Endometriosis Interna"), appendicitis, ovarian cysts, bowel obstructions, colon cancer, diverticulitis, ectopic pregnancy, fibroid tumors, gonorrhea, inflammatory bowel disease, irritable bowel syndrome, ovarian cancer, and PID.

Despite today's age of medical advances, researchers remain unsure as what causes of Endometriosis. There is NO CURE, despite the continued propagation of such myths by the uninformed who still mistakenly believe that hysterectomy, pregnancy and/or menopause can "cure" the disease. Invasive surgery remains the gold standard of diagnosis, and current therapies continue to remain extremely limited, often carrying side effects.

Mistakenly minimized as "painful periods," Endometriosis is more than just "killer cramps." It is a leading cause of female infertility, chronic pelvic pain and gynecologic surgery, and accounts for more than half of the 500,000 hysterectomies performed in the US annually. Despite being more prevalent than breast cancer, Endometriosis continues to be treated as an insignificant ailment. Recent studies have even shown an elevated risk of certain cancers and other serious illnesses in those with the disease, as well as malignant changes within the disease itself.

Research has shown that genetics, immune system dysfunction, and exposure to environmental toxins like Dioxin may all be contributing factors to the development of the disease. Endometriosis knows no racial or socioeconomic barriers, and can affect women ranging from adolescence to post-menopause. The disease can be so painful as to render a woman or teen unable to care for herself or her family, attend work, school, or social functions, or go about her normal routine. It can negatively affect every aspect of a woman's life; from her self-esteem and relationships, to her capacity to bear children, to her ability to be a contributing member of society.

The disease can currently only be diagnosed through invasive surgery, and the average delay in diagnosis is a staggering 9 years. A patient may seek the counsel of 5 or more physicians before her pain is adequately addressed.

Once diagnosed, it is not unusual for a patient to undergo several pelvic surgeries and embark on many different hormonal and medical therapies in an attempt to treat her symptoms. None of the current treatments are entirely effective, and virtually all synthetic therapies carry significantly negative side effects; some lasting far beyond cessation of therapy. The exception to this is excision; see www.centerforendo.com to learn more about excision as the leading treatment.

Though Endometriosis is one of the most prevalent illnesses affecting society today, awareness is sorely lacking and disease research continues to remain significantly under funded. For instance, in fiscal year 2000, the National Institutes of Health planned to spend $16.5 billion on research. Of that funding, only $2.7 million was earmarked for Endometriosis - amounting to approximately $.40/patient. This is in stark contrast to other illnesses such as Alzheimer's and Lupus, which received approximately $105.00 and $30.00 per patient, respectively. American businesses lose millions of dollars each year in lost productivity and work time because of Endometriosis. The cost of surgery required to diagnose the disease in each patient alone adds greatly to the financial burden of both consumers and companies alike.

Once erroneously believed to be a disease of “Caucasian career women who have delayed childbearing,” we know that in fact, Endometriosis affects women of all ages, races and
socioeconomic status. Endometriosis also can and does exist in the adolescent female population. Far from the “rare” incidence once believed, studies have found that as many as 70% of teenagers with chronic pelvic pain had Endometriosis proven by laparoscopy. Other reports indicate that as many as 41% of patients experienced Endometriosis pain as an adolescent. The illness can be quite disruptive and cause significant dysfunction, especially at a time in life when self-esteem, school attendance and performance, and social involvement are all critical. Many adolescents with Endometriosis find themselves unable to attend or participate in classes, social functions, extracurricular activities, and sports due to significant pain and other symptoms of Endometriosis. Sometimes, teens and young women lack support and validation from both the home and the school; told the pain is “in their head,” that they are “faking it,” that their debilitating cramps are “normal” and “a part of womanhood,” that they are merely suffering from “the curse,” or that they should just “grin and bear it.” Their symptoms may also be dismissed as a sexually transmitted disease, which Endometriosis absolutely is not. Failure to acknowledge and address symptoms early in the disease process can lead to significant delays in diagnosis and necessary, subsequent treatments. Lack of support from family and loved ones can also add to the patient’s pain and fear - at any age.

Recent studies have also shown that Endometriosis may in fact have an even bigger impact on younger patients than older women. One such study discovered that in patients under 22 years of age, the rate of disease recurrence was
double that of older women (35% versus 19%). The study also revealed that the disease behaves differently in
younger women; leading some researchers to believe it is a
different form of Endometriosis altogether. Surgery, considered necessary to accurately diagnose and
effectively treat the disease, is often withheld from younger patients based on the injudicious belief that early surgery somehow negatively influences a young woman’s fertility. Extensive, cumulative research has shown this concern to be unfounded. What can impact fertility, however,
is neglecting effective treatment of the disease. Some
researchers also feel that symptomatic, adolescent-onset
Endometriosis is most often a lifelong problem that will
progress to severe fibrotic disease.

While it is possible to become pregnant with Endometriosis, the key is to obtain early, effective treatment such as that offered by specialty treatment centers like the Center for Endo Care (see www.centerforendo.com to learn about the success of excision as treatment). Hysterectomy is not a cure for Endometriosis. Any disease left behind by the surgeon (whether by design because he or she 'couldn't get it all' or accident because they don't recognize the disease in all manifestations) will continue to thrive and cause pain and symptoms. It does not matter if the ovaries are removed or if HRT is withheld; Endo produces its own estrogen-synthesizing enzyme known as aromatase. Thus, it enables it's own vicious life cycle and sustains the disease process.

Due in part to the efforts of foundations like the ERC, research is ongoing in some places as to the causes of Endometriosis and potential cures for the disease. Our organization will continue to push for more widespread research into the many facets of the disease, and ultimately, a cure.

For more information:

http://www.endocenter.org/

Endo Self Test:

Not sure if you have Endometriosis? While pelvic surgery is the only current way to definitively diagnose it, symptoms can lead you and your doctor to suspect the disease. Review the following and consider if any of these common symptoms apply to you. Review your answers with your gynecologist for further discussion.

Do you experience so much pain during or around your period that you find yourself unable to work, attend school or social functions, or go about your normal routine? _____YES / _____ NO

Do you have any relatives diagnosed with Endometriosis? _____YES / _____ NO

Do you find yourself with painful abdominal bloating, swelling or tenderness at any time in your cycle? _____YES / _____ NO

Do you have a history of painful ovarian Endometriomas ("chocolate cysts")? _____YES / _____ NO

Do you have a history of miscarriage, infertility or ectopic pregnancy? _____YES / _____ NO

Do you experience gastrointestinal symptoms during your cycle, such as nausea or vomiting and/or painful abdominal cramping accompanied by diarrhea and/or constipation? _____YES / _____ NO

Do you have a history of fatigue and/or a lowered immunity (i.e., "sick and tired" all the time)? _____YES / _____ NO

Do you have a history of allergies, which tend to worsen around your periods? _____YES / _____ NO

If sexually active, do you experience pain during sexual activity? _____YES / _____ NO

Do you suffer from autoimmune diseases or other conditions (i.e., thyroid disease, rheumatoid arthritis, lupus, fibromyalgia, multiple sclerosis, chronic migraines)? _____YES / _____ NO

Have you ever undergone pelvic surgery like a laparoscopy, in which Endometriosis was suspected but not definitively diagnosed?
_____YES / _____ NO

If you have answered "yes" to one or more of these questions, you may have Endometriosis. Talk to your doctor about getting an accurate diagnosis and effective treatment today. Dull aching and cramping can occur during menstruation in many women and teens, due to uterine contractions and the release of various hormones including those known as prostaglandins. However, period pain that becomes so debilitating it renders you unable to go about your normal routine is not ordinary or typical! Pain is your body's way of signaling that something is WRONG. If you are suffering from pelvic pain at any point in your cycle, an Endometriosis diagnosis should be considered.

Know the Facts:

- Endometriosis can affect women and teens of all ages, even those as young as 10 or as old as 85!
- Hysterectomy, menopause and pregnancy are NOT cures for Endometriosis; in fact, there is no definitive cure!
- Delayed childbearing is NOT what causes Endometriosis; in fact, no one really knows for sure what causes the disease, but research points to multi-factorial origins like heredity, immunology and exposure to environmental toxicants!
- Endometriosis can only be accurately diagnosed via surgery; diagnostic tests like MRIs and ultrasounds are not definitive!
- GnRH therapies like Lupron should never be administered in those patients younger than 18 yrs. of age or before a surgical diagnosis!
- You CAN live well in spite of Endometriosis!
~ www.endocenter.org